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About this blog

Probably boring once I figure out how to do this

Entries in this blog

Emotions

Today is a really bad day for the exhaustion, even with the liquid vitamins. And now I am in a very deep emotional slump. I have been raining tears continuely for a long time today. Today and too many other days this past year, I wonder why I was so happy that they diagnosed celiac disease. Another two weeks and I would have died. I wish that I had. I really don't mind the diet and it really is not that hard once you get the hang of it. But, my quality of life really sucks. When we moved
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Gluttened!

The bad heartburn started yesterday afternoon and we thought that I had accidently got some of my husbands bread crumbs when I made my sandwich. So, we have now designated a counter just for him (his idea). Then we decided to have two dish towels - one on his counter and one on mine. This afternoon the heart burn has gotten worse and I again have a temper, plus extra trips to the bathroom. I only get the temper when I get gluten. So, a few minutes ago I went to get a couple of Midol cookies
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Todays Lab Tests

This morning I had my blood work done after fasting for eight hours. They will also check my white and red cells. Then I went to the place where I will have the CT scan of my abdomen and pulvis (sp) on Monday. Picked up the Barium junk I have to drink before the test and asked if it was gluten free. They checked and still were not sure. So, I am hoping it is gluten-free. If it is not, I suppose there is nothing I can do about that. I don't feel well this morning and the stomach pains I st
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Length Of Recovery And Today's Doctor Visit

I was going to address my recovery time, after the diagnosis. But, yesterday was a bad time for me emotionally, because of the doctor appointment today. My recovery is still ongoing after being diagnosed early February of 2004. As soon as I went gluten-free, I noticed a mark improvment right away and thought it would keep going at that pace. It did not. They said I would gain some of my weight back and I did not. I am still the size I was when I was diagnosed. I am probably at 50 % or so
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Diagnosis & How We Got There

Well, I just had a nice long nap and I will try and finish this. When I went to the doctor's and stated how I was losing weight, they ran the typical blood tests that came back negative. Thereafter I would go in with more of a weight loss and be greeted with the same statement from the nurse - EVERY TIME. "I don't know why you are here - You Look Great". Needless to say my blood pressure would rise. And I would also say the same thing each time. " I am not dieting, I am not bulimic and I
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Who I Am-do Any Of Us Really Know?

THIS WAS REALLY WRITTEN ON SATURDAY, BUT I DID NOT FIGURE OUT HOW TO ENTER IT UNTIL TODAY. THIS IS BLOG NUMBER ONE. I absolutely have NO idea what I am doing. I am totally computer illiterate. I sold on eBay for several years and figured out the basics, but this is Greek to me. What I hope to do is write down the LOOOOONG path to my diagnosis. After all I am 63 and probably have both feet on two bannana peels. LOL. I really don't have many hobbies anymore as my lack of energy put most in
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Health History

I was born with both lungs collapsed and had pneumonia several times in childhood, then advanced to a lifetime of bouts of bronchitis. Because I was a skinny child, my parents decided that pure cream would put weight on me, little knowing that fat cells are formed in the first two years of life. Boy, do I have the fat cells LOL. The blister rash on my hands started as a child which I inherited from my Dad. Sometimes the blisters and itch would last just a week and then leave. I was always s
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Nyc - No Postcards Wish You Were Here

After reading Lindylynns blog about eating in NYC, I wish we had retired there. Of course I hate the humidity, but the eating out sounds great. Coulter has talked about the same things in the dining section. NYC also has wonderful plays to go to. I love the size of the theaters - small. I am also like Mosaics' blog, after you tell about the illness what do you write about. So, I will do what she did and tell you a little about me.I have been married to a wonderful man (really he is) for 42
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Can't Sleep

I seem to be unable to get to sleep tonight. My husband is coming home tomorrow and I am so excited to see him after his being gone 6 weeks. He is in New Mexico tonight and will be here sometime early afternoon. Today is his 65th birthday and he was going to ride through Durango, Colorado to celebrate but he hit rain on his way up the mountains. So, he turned around and took to the highway and just headed the fastest way into New Mexico. I am sorry that his birthday was not what he hoped.
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Tests Results

My husband arrived home Sunday and it was so great to have him home. The only thing is that he arrived home with his ankles swollen worse then ever. But, this time he agreed to see a doctor. I had my CT scan on Monday and so I set up a doctor appointment for both of us on Thursday - to get my results and have him checked out.My tests came back normal - NO CANCER!!! . My blood work was normal with no anemia. My exhaustion must mean I am still recovering. The doctor said that my weight lo
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Gluttened Twice & More Blood Tests

Three weeks ago I ate two cookies with gluten, thinking since they were Midol, they were gluten free. No wonder they were so good. LOL. Later discovered the mistake before I ate anymore. Four days later I accidently got cross contaminated. Needless to say I have not felt good since then. Start to feel better and then I am sick again. Yesterday I went to the lab and had nine vials of blood drawn to check out all of the vitamins. Came home and slept for almost three hours. I just want the
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Rash, Itching, Welts

I have spent the last seven days with a rash that itches unbelievable. When I can't stand the itching anymore, I then scratch like my life depends on well I can scratch LOL. Then I get the welts where I have scratched. Because this happened two days after I started this high protein, vitamin drink, I thought maybe the drink caused it and so I quit the drink. I know that the drink is gluten-free as I talked to someone in their research and development department. I don't know if my vitamins
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Vitamin Testing Results

I just found out that all my vitamin levels are in the normal range. I was really hoping that something was wrong. It has been over a year and a half since my diagnosis and I have been gluten-free since the day of the test for Celiac. Yes, I have had accidents and twice I delibertly ate gluten dinners. That was several months back for the dinners. I am so tired of the exhaustion and now I find out that I am still recovering. When do I fully recover? The doctors' don't think I will as too
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I Can't Think Of One-brain Is Foggy

I guess it is time to add to my blog. I almost feel that I am obligated to do this for myself. So, I can look back and see where I was and where I am now. I am still fighting depression over the lack of energy. I have a doctor appointment next Monday for that specific thing. I don't want to go on anti-depressents, if they are going to make me into a bigger slug then I am. I am under a great deal of stress with our almost 18 granddaughter (who lives with us) and don't know what I can do to
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Vision, Scleroderma, Google & Brain Fog

Yesterday was kind of a cruddy day. I did some errands in the morning and on the way home I noticed that I could not see the signs very well. And when I closed my left eye, my right eye vision was all blurred. I got home and my husband said to call the eye doctor. They wanted me in within 30 minutes which really upset me. They were concerned about the possiblility of a detached retina. I had had one in my left eye in the late 60's or early 70's (what does my memory know LOL) and I can tell
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Vision & Scleroderma

I cannot believe how dumb I can be at times. I noticed AGAIN that the next to last posting was not published and so I click on the mouse and publish it. Now my last blog is further down the line. I think I did this once before. I hate when I do something like this without thinking it through.   My vision has been really bad on and off today. When it is a little better, I then pick up the book I am reading and hold it about 6 to 8 inches from my face. But at least I can read. Yesterday m
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Energy Is Getter Better

Today is a good day. Some of my energy has returned and I have been able to clear some things off of my desk. I have gotten about a week behind on things, due to the severe exhaustion I have been having. Then I took a bath in my deep whirlpool tub. It felt so great and I really needed the jets on my poor spine. Tonight my sweetie (husband) and I are going to Buffalo Wild Wings for dinner. I am really looking forward to that. Tuesday I see the specialist about my vision. If he has no answ
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