Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Colitis, Crohn's & Celiac


Guest gillian502

Recommended Posts

Guest gillian502

I was diagosed with celiac disease last August, and was finally getting used to that disease when, 2 days ago, I was diagnosed with Colitis, which is chronic and located in all parts of my colon. However, although chronic and everywhere, it's also a "mild" case. I'm about to start medication tonight.

My questions are: What's the difference between Colitis and Crohn's, and what link does Colitis have to Celiac? Steve W. helped me out with some info on this a couple days ago (thanks! :) ) but I'd like to know more. I'm also terrified of losing my whole colon one day, and would like to know if that is rare, or common, or what. Not to mention my chances for cancer must be sky high at this point considering I now have 2 of these diseases! Also, is Colitis also auto-immune like celiac disease is?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest jhmom

Hi I am not sure how to answer your question but here is a link that may help you out. I do hope you find some answers.... good luck to you and God Bless

Research on Diseases and Disorders Associated with Celiac Disease

LDHV Newbie

Hi Gillian

sorry for the bad news but, now that you know your headed in the right direction.

I am the mother of a 13year old with Crohn's and Ceilac. We were told in August also that she had both through colonoscopy. All of this came about because of anemia........

To answer some of your questions: Yes - all are autoimmune. My understanding is Colistis - effects the large intestines-rectum. Crohns - effects the whole or any part of the digestive tract. both diseses have some serious consequences if you dont treat them. Including, the chance of getting more autoimmune diseases.

for now we are lucky she is responding to the meds trying to keep the crohns under control but, it does take time. As for the question is this common? Our doctor said NO but after being on this board there is quite a few of us out there diagnosed and Im afraid alot more may get it if they dont take Celiac and the diet serious.

Please remember now that you know look ahead and take care of yourself. My daughter hasn't slowed down much at all (then again) we didn't know anything was the matter with her. I had never even heared about Celiac till July 2003 and all those little signs came together. the only sign of sickness that I see now is she is still small, pale skin, and gets tired by the time the week-end rolls around. Between playing soccer and running up to two miles a day Im tired just keeping up with her..........

Hope this helps,

Leah

Jacie's mom

LUAP Newbie

Hey, here is my explanation and sorry for my bad english. I

SteveW Rookie

Me again :)

Open Original Shared Link

Lots of info on this site.

  • 1 month later...
khyricat Rookie

another Crohns/COlitis link: Open Original Shared Link

Mom is on their board. She has Crohns and I have had a diagnosis of it for years but my symptoms were not always consistant.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,339
    • Most Online (within 30 mins)
      7,748

    Teresa King
    Newest Member
    Teresa King
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.