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Colitis, Crohn's & Celiac


Guest gillian502

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Guest gillian502

I was diagosed with celiac disease last August, and was finally getting used to that disease when, 2 days ago, I was diagnosed with Colitis, which is chronic and located in all parts of my colon. However, although chronic and everywhere, it's also a "mild" case. I'm about to start medication tonight.

My questions are: What's the difference between Colitis and Crohn's, and what link does Colitis have to Celiac? Steve W. helped me out with some info on this a couple days ago (thanks! :) ) but I'd like to know more. I'm also terrified of losing my whole colon one day, and would like to know if that is rare, or common, or what. Not to mention my chances for cancer must be sky high at this point considering I now have 2 of these diseases! Also, is Colitis also auto-immune like celiac disease is?


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Guest jhmom

Hi I am not sure how to answer your question but here is a link that may help you out. I do hope you find some answers.... good luck to you and God Bless

Research on Diseases and Disorders Associated with Celiac Disease

LDHV Newbie

Hi Gillian

sorry for the bad news but, now that you know your headed in the right direction.

I am the mother of a 13year old with Crohn's and Ceilac. We were told in August also that she had both through colonoscopy. All of this came about because of anemia........

To answer some of your questions: Yes - all are autoimmune. My understanding is Colistis - effects the large intestines-rectum. Crohns - effects the whole or any part of the digestive tract. both diseses have some serious consequences if you dont treat them. Including, the chance of getting more autoimmune diseases.

for now we are lucky she is responding to the meds trying to keep the crohns under control but, it does take time. As for the question is this common? Our doctor said NO but after being on this board there is quite a few of us out there diagnosed and Im afraid alot more may get it if they dont take Celiac and the diet serious.

Please remember now that you know look ahead and take care of yourself. My daughter hasn't slowed down much at all (then again) we didn't know anything was the matter with her. I had never even heared about Celiac till July 2003 and all those little signs came together. the only sign of sickness that I see now is she is still small, pale skin, and gets tired by the time the week-end rolls around. Between playing soccer and running up to two miles a day Im tired just keeping up with her..........

Hope this helps,

Leah

Jacie's mom

LUAP Newbie

Hey, here is my explanation and sorry for my bad english. I

SteveW Rookie

Me again :)

Open Original Shared Link

Lots of info on this site.

  • 1 month later...
khyricat Rookie

another Crohns/COlitis link: Open Original Shared Link

Mom is on their board. She has Crohns and I have had a diagnosis of it for years but my symptoms were not always consistant.

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    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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