Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New User - Gluten Sensitivity Runs In The Family


davemu

Recommended Posts

davemu Newbie

Today I went to the doctor for an antibody blood test. I know something is wrong with my digestive tract but I haven't even thought about it until my dad diagnosed himself as sensitive to gluten (he's an M.D.). His symptoms included bloating, joint pain, peeling skin, etc etc... when he stopped eating gluten (2 years ago), his joint pain went away, he could run again, and bloating went away too. His skin also stopped peeling on his hands. When he eats any pizza or the like, 24 hours his joint pain comes back with a vengeance... Like many celiacs, he connected many of his symptoms (ie: bloating) to the disease only AFTER he stopped eating gluten.

In any case, I am worried I also have the condition. I've always had a sensitive stomach but my other symptoms are as follows:

-I'm pale - much more than my siblings

-I haven't been able to gain weight despite working out for 2 years (resistance training)

-I often suffer from bloating / abdominal discomforts. Sometimes my friends comment that i look sick after eating lunch. I feel it too - I feel extremely exhausted and bloated, a terrible feeling. Last summer my boss asked me a few times if i wanted to go home because i was pale and feeling unwell...

-I am always dehydrated - In the morning my mouth sometimes is incredibly dry till about noon.. I usually drink about 2 litres of water in the morning alone on such occasions (happens about 1/week) - I have a normal blood-sugar level

-Occasionally I have terrible breath (can be smelled many yards away) --> how embarrassing - I have noted that such instances which are relatively rare always are accompanied by really bad bloating. Clearly a digestive problem.

-i feel extremely exhausted, depressed, and generally unwell a lot of the time (usually in the afternoon)

I would be almost relieved to be positive for celiac disease... If I can get rid of all these symptoms i think i would lead a much happier life. What do you all make of these symptoms? Thanks a lot to all of you and it's nice to have people to tlak to about this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I would think that celiac could be causing those problems, but not the only thing causing those problems. Other intolerances, or a slow moving digestive system could allow time for bacteria to ferment the food in your digestive tract (hence the bloating and odor). You've gotten off to a good start, with the blood work. You might consider, even if the test is inconclusive or just negative, trying the diet and seeing how it works for you. It really doesn't have to be that hard, and if that is the answer, then you'll have found your answer.

Guest barbara3675

I totally agree with Tiffany and I think you know that is what you need to do. Go strictly gluten-free for at least six weeks to six months and then you will have your answer. The gene testing through Enterolab would give you a quick answer if that is what you are looking for including whether you are allergic to other things. I did that recently and they are very professional and thorough. As your father is an MD, I am surprised he isn't on you to go gluten-free or have gene testing. Best wishes, actaully going gluten-free isn't as hard as you might think. Barbara

davemu Newbie

What can cause the occasional terrible breath? All i know is that sometimes my saliva is very very thick, and i don't know what would be causing that. I drink nothing but water and maybe one cup of coffee in the morning. It is so embarrassing when it happens... or worse when i come home and one of my family members mentions it... I feel very very self-conscious... I brush my teeth like 4-5 times a day and go through a pack of gum in 2 days. :(

The worst feeling i've had is when one of my friends wrote on one of his pages of notes that my breath smells awful, which he showed my other friend sitting beside him. These friends were very good people, and wouldn't tell me... But I inadvertantly read it when i looked over at his page of notes... I felt so hurt after. (this was 5 years ago).

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Seeking advice on potential gluten challenge

    2. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Seeking advice on potential gluten challenge

    3. - Wheatwacked replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Have I got coeliac disease

    4. - Jmartes71 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Gluten tester

    5. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,152
    • Most Online (within 30 mins)
      7,748

    SinnamonToasty
    Newest Member
    SinnamonToasty
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome, @JudyLou, Your rash sounds very similar to the one I experienced.  Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well.  Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside of Celiac, too.  Symptoms can wax and wane depending on dietary intake.  I knew an alcoholic who had the "boots" of Pellagra, which would get worse when he was drinking more heavily, and improve when he was drinking less.   Niacin deficiency is called Pellagra.  Symptoms consist of dermatitis, diarrhea, dementia, and death (the four D's).  A scaly rash on the feet and hands and arms are called the "boots" and "gloves" of Pellagra.  Darkened skin around the neck exposed to the sun is Casal's necklace.  Poor farmers with niacin deficient diets were called "red necks" because of this.    Does your rash get worse if you're in the sun?  Mine did.  Any skin exposed to the sun got blistered and scaly.  Arms, legs, neck, head.  Do you have dry, ashy skin on your feet?  The itchiness was not only from the rash, but neuropathy.   My doctors were clueless.  They didn't put all my symptoms together into the three D's.  But I did.  I'd learned about Pellagra at university.  But there weren't supposed to be deficiency diseases anymore in the developed world.  Doubtful it could be that simple, I started supplementing with Niacin and other essential nutrients.  I got better.   One of Niacinamide functions is to help stop mast cells from releasing histamine.  Your allergist gave you doxepin, an antihistamine which stops mast cells from releasing histamine.   Since you do have a Celiac gene, staying on the gluten free diet can prevent Celiac disease from being triggered again.   Interesting Reading: These case studies have pictures... Pellgra revisited.  https://pmc.ncbi.nlm.nih.gov/articles/PMC4228662/ Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Cutaneous signs of nutritional disorders https://pmc.ncbi.nlm.nih.gov/articles/PMC8721081/#:~:text=Additional causes of yellow skin,the clinical features of Kwashiorkor.   Hello, @Staticgypsy, I would not recommend cutting so many nutritious foods out of ones diet.  Oxalates can cause problems like kidney stones, but our bodies can process oxalates out of our systems with certain vitamins like Vitamins A and D and Pyridoxine B 6.   People with Celiac disease are often low in fat soluble vitamins A and D, as well as the water soluble B vitamins like Pyridoxine B 6.  Focus on serving your granddaughter nutrient dense meals to ensure she gets essential vitamins and minerals that will help her grow. Micronutrient inadequacy and urinary stone disease: an analysis of the National Health and Nutrition Examination Survey 2007-2018 https://pubmed.ncbi.nlm.nih.gov/36976348/ Multivitamins co-intake can reduce the prevalence of kidney stones: a large-scale cross-sectional study https://pubmed.ncbi.nlm.nih.gov/38564076/
    • Wheatwacked
      This doctor is obviously under educated about Celiac Disease. Deficiencies that can cause oral thrush (Candidiasis) mouth ulcers: Thiamine B1 B12 Folate Zinc Vitamin C B2 B6 Iron Malabsorption Syndrome is often co-morbid with Celiac Disease causing multiple deficiencies of the essential vitamins and minerals.  Low or deficient  Vitamin D is almost always found in undiagnosed Celiac Disease. "Over 900 genes have been reported as regulated by vitamin D"  Possible Role of Vitamin D in Celiac Disease Onset  "The overall prevalence rate of vitamin D deficiency was 41.6%, with the highest rate seen in blacks (82.1%), followed by Hispanics (69.2%)."    Prevalence and correlates of vitamin D deficiency in US adults
    • Jmartes71
      I saw the thing for testing for gluten when at public places.I absolutely love but I wonder if they would come up with a bracelet or necklace that can detect gluten in the air.I would LOVE that, i know i get debilitating migraine from smelling gluten wheat what have you, all I know is when I go into places like Chevron- gluten Subway, migraine, Costco that food smell of nasty gluten- migraine and same with Walmart subway.I absolutely HATE im that sensitive, my body reacts.Sadly medical hasn't taken core issue of celiac being an issue considering glutenfree ever since 1994 and in their eyes not because they didn't diagnose me. I am and wish I wasn't. If there was a detector of gluten in the air it would make a world of difference. 
    • JudyLou
      Oops! @Staticgypsy, I’ll get the book! Thank you! 
    • JudyLou
      Thank you so much for your help, @trents and @Staticgypsy! I so appreciate your thoughts. My diet is high in foods with oxalates and I don’t notice any issues there. If eliminating gluten from my diet had changed anything I’d be happy to just keep on the gluten-free diet, but with eating gluten several times with no rash, and having a rash when I was many years into gluten-free eating (and was much more careful at that point), I’m just baffled. Many, many thanks to you both. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.