Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New User - Gluten Sensitivity Runs In The Family


davemu

Recommended Posts

davemu Newbie

Today I went to the doctor for an antibody blood test. I know something is wrong with my digestive tract but I haven't even thought about it until my dad diagnosed himself as sensitive to gluten (he's an M.D.). His symptoms included bloating, joint pain, peeling skin, etc etc... when he stopped eating gluten (2 years ago), his joint pain went away, he could run again, and bloating went away too. His skin also stopped peeling on his hands. When he eats any pizza or the like, 24 hours his joint pain comes back with a vengeance... Like many celiacs, he connected many of his symptoms (ie: bloating) to the disease only AFTER he stopped eating gluten.

In any case, I am worried I also have the condition. I've always had a sensitive stomach but my other symptoms are as follows:

-I'm pale - much more than my siblings

-I haven't been able to gain weight despite working out for 2 years (resistance training)

-I often suffer from bloating / abdominal discomforts. Sometimes my friends comment that i look sick after eating lunch. I feel it too - I feel extremely exhausted and bloated, a terrible feeling. Last summer my boss asked me a few times if i wanted to go home because i was pale and feeling unwell...

-I am always dehydrated - In the morning my mouth sometimes is incredibly dry till about noon.. I usually drink about 2 litres of water in the morning alone on such occasions (happens about 1/week) - I have a normal blood-sugar level

-Occasionally I have terrible breath (can be smelled many yards away) --> how embarrassing - I have noted that such instances which are relatively rare always are accompanied by really bad bloating. Clearly a digestive problem.

-i feel extremely exhausted, depressed, and generally unwell a lot of the time (usually in the afternoon)

I would be almost relieved to be positive for celiac disease... If I can get rid of all these symptoms i think i would lead a much happier life. What do you all make of these symptoms? Thanks a lot to all of you and it's nice to have people to tlak to about this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I would think that celiac could be causing those problems, but not the only thing causing those problems. Other intolerances, or a slow moving digestive system could allow time for bacteria to ferment the food in your digestive tract (hence the bloating and odor). You've gotten off to a good start, with the blood work. You might consider, even if the test is inconclusive or just negative, trying the diet and seeing how it works for you. It really doesn't have to be that hard, and if that is the answer, then you'll have found your answer.

Guest barbara3675

I totally agree with Tiffany and I think you know that is what you need to do. Go strictly gluten-free for at least six weeks to six months and then you will have your answer. The gene testing through Enterolab would give you a quick answer if that is what you are looking for including whether you are allergic to other things. I did that recently and they are very professional and thorough. As your father is an MD, I am surprised he isn't on you to go gluten-free or have gene testing. Best wishes, actaully going gluten-free isn't as hard as you might think. Barbara

davemu Newbie

What can cause the occasional terrible breath? All i know is that sometimes my saliva is very very thick, and i don't know what would be causing that. I drink nothing but water and maybe one cup of coffee in the morning. It is so embarrassing when it happens... or worse when i come home and one of my family members mentions it... I feel very very self-conscious... I brush my teeth like 4-5 times a day and go through a pack of gum in 2 days. :(

The worst feeling i've had is when one of my friends wrote on one of his pages of notes that my breath smells awful, which he showed my other friend sitting beside him. These friends were very good people, and wouldn't tell me... But I inadvertantly read it when i looked over at his page of notes... I felt so hurt after. (this was 5 years ago).

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,918
    • Most Online (within 30 mins)
      7,748

    Dizzyma
    Newest Member
    Dizzyma
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.