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About this blog

just my musings about my life and experiences

Entries in this blog

Endoscopy - R/o Esophagitis, Check Up On celiac disease

Well... yesterday I had my second endoscopy performed. My GI doctor wanted to check up on my small intestine to see how its healing, as well as check my esophagus to rule out eosinophilic esophagitis. He took multiple biopsies and said my SI looked atrophied but otherwise I looked good. The combination of versed and demerol is powerful and I did not remember much of the discharge except for the fact that I Don't think I was ready to be discharged I was so out of it. But I slept it off and now I'
moosemalibu

moosemalibu

4

1 Week Into Mc Therapy

I am a week into my Entocort steroid therapy for microscopic colitis. I can say that I have no discernible side effects from this drug. It has slowed down my bowel significantly. I am no longer running to the bathroom 8-10x/day. I probably go about half that amount now. The quality of the bowel movements has improved but it varies throughout the day. I have not had significant cramping/pain since starting therapy. That was the most debilitating for me was the cramps. I would be late to work cons
moosemalibu

moosemalibu

3

Budesonide For Mc

I saw my GI yesterday. He and I agreed to start me on Entocort EC/Budesonide medication. It is a slow release 3mg capsule that is not dissolved by the stomach pH and instead gets broken down and absorbed in the intestines. It is supposed to have a local effect versus systemic and is considered safer than prednisone. I will be on 9 mg dose once a day for 2 months then we will start to taper the dose down pending my symptoms and then wean off completely. Many have good results with the course of m
moosemalibu

moosemalibu

4

Yup... I Have Microscopic Colitis

I just got the message from my doctor that I have microscopic colitis. I had a colonoscopy last month with biopsies. The colonoscopy prep was not nearly as bad as what people have told me it would be. Honestly the best part of my experience was the prep. The scope was not so great - I woke up several times during the procedure - I was only sedated with midazolam, fentanyl and phenagren - and it lasted over an hour whereas it should have been only 20 minutes. Nothing is every EASY or uncomplicate
moosemalibu

moosemalibu

6

Colonoscopy

Well... my diarrhea has continued and not improved despite resolution of most of my other celiac symtoms. I'm going in to be tested for microscopic colitis next month. I just want to have a normal phucking bowel movement. It's been soo long I don't even remember what one looks or feels like! Hoping for answers.
moosemalibu

moosemalibu

4

I Went Camping For The 2Nd Time Since Diagnosis

Well... my boyfriend is a HUGE 4x4 truck enthusiast. He has 2 rigs that are specifically for off roading purposes. Consequently we take these rigs to remote places and drive over lots of rocky terrain. He has rock crawler and a prerunner or something like that. It is very confusing keeping all the classes straight. It's his hobby that I support but not quite understand. He has a forum for his trucks. I have a forum for my bowel. LOL   Anyway... we went to the big King of the Hammers race in Jo
moosemalibu

moosemalibu

2

Celiac Rage

If there was such as thing as Celiac Rage-- I've got it today.   I am still healing my bowel from diagnosis last year. I thought I was making progress when I had a normal stool this morning. But then I had BM after BM after BM. And each one got progressively worse. Can I not be a human cesspool of Poop all the GD time? I just want one normal BM. I want it to be large in diameter, firm but not dry, and not some stupid pinky sized piece of poo pretending to be a normal poo. I know you're not th
moosemalibu

moosemalibu

11

Am I Being Selfish And Inconsiderate?

So... a little background about my personal life. I live with my boyfriend in a rented house and we split bills and rent 50/50. We've been together for over a year now and he is, in my eyes, 'the one.' I've had several failed relationships and would like to think I have finally figured out what I want from a partner in my 10 years of dating experience.   Back to the topic at hand. I am Celiac. I was diagnosed in August through October. My boyfriend has given me his unwavering support through e
moosemalibu

moosemalibu

13

Ttg/gliadin Antibody Levels

So here is the break down from my blood test results     Deaminated Gliadin Abs, IgA: 50.8 U/mL (8-20-13); 9.4 U/mL (12-11-13) TTG IgA Antibody: 74.0 U/ml (8-20-13); 12.0 U/mL (12-11-13) Reference Range for both is <7 U/mL   Interesting to see this decrease for both becuase in October I did 3 weeks of gluten challenge. I'm shocked my body is able to heal so well. I think I am lucky and caught this earlier than most. I have a Vitamin D deficiency.. less than 27 ng/L (30-100 ng/L referen
moosemalibu

moosemalibu

2

Frustration. All I Want Is To Be Normal

I figured it was time to vent through a blog post. Because I don't think anyone wants to keep hearing the same thing over and over again like a broken record.   Here is a little background...   In December of 2009 I slipped on an icy driveway before work and fractured my right kneecap into 3 pieces and dislocated it up and into my quadriceps muscle. I had surgery to fix it. 6 months later I fractured it again slipping and falling on slippery concrete by a friend's pool. Ironic, right? I had
moosemalibu

moosemalibu

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