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About this blog

Hay in needlestack - that's what life is for those who have a nameless disturbing problem, constantly lowering your quality of life. Finding the hay (diagnosis) isn't usually very hard if you have good resources; but in some cases you and doctors keep failing for years and years, nothing in the medical database matches your symptoms. NO! One can't give up, because it may be that eventually when the hay is found, it might be curable, or it will at least make doctors more open in prescribing drugs that they otherwise wouldn't.

In this blog I will speak about my search for diagnosis, my diet and supplement experiments, and how the disease affects my life.

Entries in this blog

Two examples about the stupidity of the doctors

Both examples were originally posted on another forum, where I discuss a topic of my initiated. 1. Are doctors able to perform a proper differential diagnosis?  An example about the incompetence of human brain would be medicine. Did you know that the average time that goes for diagnosing Sjogren's Syndrome (an autoimmune disease most often prevalent in middle aged women) is 7 years!? Those poor women suffer years with dry eyes, mouth, and
HayInNeedleStack

HayInNeedleStack

2

Apparently I'm Mycroft Holmes

The last blog entry was about my GI not having a clue what's wrong with me. I was angry, and even more angrier when another senior GI said the exact same thing, although he did say it could be IBS. I loudly thought "f*ck you", because I gave him my whole list of symptoms, and expressed my solemn concern that this list contains A LOT more symptoms than just now cured diarrhea and still present pain in the stomach, which btw is minor. Here is the list: brain fog
HayInNeedleStack

HayInNeedleStack

0

Gi Visited - Still Undiagnosed

○Milk lactose test (blood sugar measured 4 times within 1 hour after consumption) - negative ○No inflammatory markers in blood test, no amnesia, immune cells in their reference range. Hidden blood in stool - 1st time positive, 2nd time negative Calprotectin in stool - negative Parasites in stool - negative -> IBD not likely Endoscopy: ○Some erosions in esophagus (but absolutely no other symptoms, no pain), it isn't strep throat either, no gastro-reflux ever ○Stomach biopsy OK, but
HayInNeedleStack

HayInNeedleStack

3

Another List Of Unsuccessful Experiments

Hi again, dear world.   This is my second blog post. In the meanwhile I have had a really busy time testing new theories about my undiagnosed disease. Here is what has happened:   In the end of November I visited my GP, and got a referral to visit a gastroentrologist in February. At that time I was so sure that I had Hashimoto thyroiditis, and two months of waiting seemed a long time, especially because I was so sure that this horrible brain fog could be maganged with a simple hormone intake
HayInNeedleStack

HayInNeedleStack

0

New Idea

EDIT: Is there a "wrap text" option for the text to eliminate the now-present horizontal scroll of this entry?   Today I was thinking about my back pain during when waking up in the mornings and decided to do some research in the internet. I bumped into diseases like scoliosis, lordosis and kyphosis. I decided to take a look in the mirror and saw that I my back is actually bent, my head hanging far in front of my torso - a clear sign of kyphosis. Now it also struck me that my mother also has s
HayInNeedleStack

HayInNeedleStack

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