Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

Green12 Enthusiast
Dealing with Adrenal Fatigue

Leigh Ann Garsteckil

Nutrition & Lifestyle Coach

Do you always feel fatigued? Are you overwhelmingly stressed? Do you suffer from frequent illness, anxiety, or poor concentration? These are all signs of adrenal fatigue and by eating properly you could alleviate some of your symptoms.

If you suffer from adrenal fatigue, which means the ability of your adrenal glands to carry out their normal functions has decreased, usually due to over stimulation, you may also tend to be hypoglycemic. In order for hypoglycemia to be diagnosed, our doctors typically run a modified glucose tolerance test. If you took the testing one step further and received the whole Diet Typing package (additional pH testing and nutritional evaluation), many people with hypoglycemia tend to type out as a Otters or Lions on the Hauser Diet scale.

Hypoglycemia can cause a person to feel tired and consistently hungry. The combination of low energy and high hunger is not a good one for losing weight or maintaining health. Although a person suffering from this may also need to be on a supplement program to help the adrenal glands, incorporating the right foods and eliminating the wrong ones can provide huge benefits. When we’re tired, sugary foods and caffeine are the usual choices we grab for a quick “pick me up”. However, these are the worst possible choices for a person with adrenal fatigue. Below is a list of foods to choose, foods to avoid, and why to do so.

Foods to Avoid:

1. Coffee-contains caffeine which will stimulate your adrenal gland even more.

2. Fruit-contains sugar, it may be natural sugars, but sugar is sugar in this case. Especially try to eliminate from breakfast when blood sugars tend to be their lowest.

3. Sugar-will increase hypoglycemia

4. White flour products-will increase hypoglycemia.

5. Cola-contains caffeine and unnatural substances, as well as sugar.

6. Chocolate-also contains caffeine and sugar!

Foods to Choose:

1. Foods high in protein-will help stabilize blood sugars.

2. Healthy fats (essential oils and nuts)-will help stabilize blood sugar and provide necessary nutrients.

3. Natural/Organic foods-will decrease the amount of toxins the body has to handle.

4. High fiber foods-can help alleviate constipation which can occur during stress.

5. Complex Carbohydrates - are a better carbohydrate choice for blood sugar stabilization, try to pair it up with a protein source.

6. Bright colored vegetables - great source of antioxidants.

By incorporating the right foods into your diet you can not only improve your adrenal fatigue, you can also see an improvement in your overall health. Although many of the “foods to avoid” are not typically recommended on any of the Hauser Diets, it is important for a person suffering from adrenal fatigue to know why they specifically should not eat them! As previously stated, diet alone may not be the answer to adrenal fatigue. If you think you suffer from adrenal fatigue come and see us at CMRS. The doctors would be happy to educate you on what your plan of action should be and I am ready to discuss dietary changes that you would like to make!

This is great info Andrea. I had been following an adrenal healing program for a little while, my acupuncturist suggested I read the book of one of his collegues, Dr Swartzbein (sp?) I believe she is an endocrinologist. She has a lot of the same ideas, the only thing is she suggested that we eat fruit to get off the sugar. I haven't read the book (the Swartzbein Principle II) in a while, so I would have to go back to it to refresh my memory.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
lindalee Enthusiast

Thanks Andrea, I needed to see that again. :):)

Link to comment
Share on other sites
Guest ~jules~

Wow, I have soo been in your shoes. I just very recently got my diagnosis, and have started my diet. So far so good, I feel really good. I'm just saying that I know how you have to almost become sherlock holmes for your own body! My docotor was a total quack, who sent me to a g.i.doc, and he was the GREATEST! Even though he was the greatest doc for me, he still sent me home with "start a gluten free diet" on the instruction page! Okay I'll do that bozo.. My point here is if you have noticed your body reacts, don't wait for a dr. to tell you so, avoid it. I remember when I was a small child I couldn't eat popcorn, or corn, every time I ate either of them I got violently ill. Now I can eat that, but not gluten. I am totally convinced at this point that medicine has very little bearing on the actuall food allergy, it is so different from a case to case basis, you just have to watch your own body. If the body says no, don't eat it...I just wish I knew what my specific allergy or in this case "disease" was, I would have quit eating the crap along time ago! Hang in there! ~jules~

Link to comment
Share on other sites
VydorScope Proficient

Rach...

If your trying to aviod sugar, Agave is a poor choice, so is honey, etc. Instead try Stevia or even Xyitol (though I do not know much about it). Agave is a beter choice then white sugar, but it still is a sugar. Same with honey, etc.

And that post by Andrea has a lot of good info in it. (though I cheat and drink diet caf free soda, hey no one is perfect! ) As for the test for hypoglycemia, you do not do a oral glucouse test, you do a 4 hour blood sugar monitoring, I can post how to do it again if you want it, its in the back pages.

Realy EVERYONE should aviod that white crap that ppl call sugar.. but the secret sugar mafia on this board usally comes up piles hate on me everytime I mention that. :)

Protien and Fat are much better sources of energy then cafine, and sugars (or other stimulants).

Link to comment
Share on other sites
dlp252 Apprentice

I know that Agave is supposed to be low glycemic, but I too find myself Rachelling it, so I've cut it and all sugars out for this week and next, and LET ME TELL YOU....I AM SEVERELY CRAVING IT! :lol: Must be on to something cuz hardly a minute goes by without me thinking of what I can have that is sweet, lol. Just call me sugar junkie. Two days down and the third is beginning nicely. No sugar, but I have been having some starchy veggies...corn mostly, but not a lot of it. So, just meats and veggies. Boring, but hopefully effective.

Xylitol is made from corn I think, so that might not work for some. I've been trying Stevia too...the kind I buy is in packets so it has maltodextrin in it, but the maltodextrin is made from rice. I've also cut that out this week.

If I can get to a point where I don't itch for several days in a row, I'll know I'm on to something...then will try adding things back one at a time.

I am experiencing a little herxiemer effect though...I was so congested yesterday...it was almost like old times when I was getting sinus infections all the time. I'm not getting one, but I sure was congested last night and this morning. Hopefully this will only last a day or two...hopefully the itching will go with it.

I also realized on the way home last night that I was supposed to get my allergy shots last Thursday, lol. Forgot. It's been a month since I've had them so maybe that will help too.

Oh and on the beans thing...I didn't eat them for years because it seemed like they gave me problems, but within the last few months I've been eating them here and there and haven't noticed any extra gas or problems from them...also eat peanuts without obvious affects, but I'm wondering if it's a synergistic thing in my case...too much of little bits of a lot of different things.

Link to comment
Share on other sites
VydorScope Proficient
I know that Agave is supposed to be low glycemic,

Well LOWER not low...

Link to comment
Share on other sites
dlp252 Apprentice
Well LOWER not low...

:P Ha, it says right on their label...low glycemic...we ALWAYS believe everything on a label, right!?! :lol:(pssst, I didn't believe it).

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast
Rach...

If your trying to aviod sugar, Agave is a poor choice, so is honey, etc. Instead try Stevia or even Xyitol (though I do not know much about it). Agave is a beter choice then white sugar, but it still is a sugar. Same with honey, etc.

And that post by Andrea has a lot of good info in it. (though I cheat and drink diet caf free soda, hey no one is perfect! ) As for the test for hypoglycemia, you do not do a oral glucouse test, you do a 4 hour blood sugar monitoring, I can post how to do it again if you want it, its in the back pages.

Realy EVERYONE should aviod that white crap that ppl call sugar.. but the secret sugar mafia on this board usally comes up piles hate on me everytime I mention that. :)

Protien and Fat are much better sources of energy then cafine, and sugars (or other stimulants).

Andrea, can we add Sugar Police to Vincent's job description?

PS, Vincent the sugar mafia doesn't tease you because it hates you ... you only tease those you love!! :)

I used to be a sugar addict, much like my daughter ... once I got off it when I did a candida cleansing diet for six months, I've never craved it again. I eat it ocassionally, but I feel like I'm in control, I don't "have to eat it now" like I used to. In fact, I'll often choose to eat something else when others are eating something sweet ... except last night, I had to help polish off those meringues so Morgan wouldn't eat them today on her sugar-free day!! Yea, it was to help Morgan! :P I pretty much rotate sugar like I rotate other things that bother me but aren't an intolerance -- like beans, peanut butter, fruit juice, etc.

Link to comment
Share on other sites
VydorScope Proficient
:P Ha, it says right on their label...low glycemic...we ALWAYS believe everything on a label, right!?! :lol:(pssst, I didn't believe it).

Well depends on who is measuring it and what thier opinion of low is and what kind of agave it is. It is lower then Honey, but last number I saw was 48 (58 is honey, 100 is pure glucose). But I have not spent to much time researching it out. Many ppl will label anything below 55 "low" , but even on that scale, that a very high low :)

Link to comment
Share on other sites
Jean-Luc Rookie

Drive-by posting --

Here is a question are carrots considered nightshades?

Link to comment
Share on other sites
CarlaB Enthusiast
Drive-by posting --

Here is a question are carrots considered nightshades?

I don't think so. I think it's just peppers, potatoes, eggplant and tomatoes.

Link to comment
Share on other sites
morganb Newbie
Andrea, can we add Sugar Police to Vincent's job description?

PS, Vincent the sugar mafia doesn't tease you because it hates you ... you only tease those you love!! :)

I used to be a sugar addict, much like my daughter ... once I got off it when I did a candida cleansing diet for six months, I've never craved it again. I eat it ocassionally, but I feel like I'm in control, I don't "have to eat it now" like I used to. In fact, I'll often choose to eat something else when others are eating something sweet ... except last night, I had to help polish off those meringues so Morgan wouldn't eat them today on her sugar-free day!! Yea, it was to help Morgan! :P I pretty much rotate sugar like I rotate other things that bother me but aren't an intolerance -- like beans, peanut butter, fruit juice, etc.

Mmmmhmmm, to help me <_<

Link to comment
Share on other sites
Rachel--24 Collaborator
Rach...

If your trying to aviod sugar, Agave is a poor choice, so is honey, etc. Instead try Stevia or even Xyitol (though I do not know much about it). Agave is a beter choice then white sugar, but it still is a sugar. Same with honey, etc.

Thanks Vincent,

I guess just cuz something is organic and natural...doesnt mean I can eat all of it at once. I'm gonna stay away from high sugar stuff and if I do end up eating it again...it'll be a tiny amount. Although a tiny amount just doesnt do anything for me so I might as well leave it out altogether. :(

Link to comment
Share on other sites
VydorScope Proficient
Thanks Vincent,

I guess just cuz something is organic and natural...doesnt mean...

...does not mean its good, or safe. Ppl seem to forget that, its like those magical words "organic" and "natural" make all things good, and "artifical" or "chemical" makes all things bad. heh.

Link to comment
Share on other sites
Jean-Luc Rookie
I don't think so. I think it's just peppers, potatoes, eggplant and tomatoes.

thanks

Link to comment
Share on other sites
diamondheart Newbie
Ovarian Cyst update

I finally talked to the OBGYN...we played phone tag for a couple weeks.

She said my fibroid and cyst are still there...the cyst is small. It was first seen in a CT scan and now in 2 ultrasounds. This last ultrasound was done a week after my period so it should have been gone if it were a normal cyst. It doesnt seem to be leaving so she said at this point they would normally try birth control pills. She said we cant do that for me because of my sensitivities.

She said the only other option would be surgery to take a look around and get rid of the cyst. She mentioned the procedure...it started with an "L"...cant remember the word but we've discussed it here before. I think maybe Patti knows??

Anyways...she said maybe I have Endometriosis...which I know nothing about. I do recall reading it could cause food sensitivities though. She said there is no guarantee that they could diagnose it with the surgery...even if I had it. There is also no guarantee that the cyst wont come back after they remove it either.

She doesnt think the cyst is causing my abdominal pain....she made that clear. Its not really the occassional abdominal pain that concerns me though....its mainly the other stuff I'm dealing with. I asked her how they normally diagnose Endometriosis...she said they usually put the patient on hormones and if it works they diagnose based on that. I dont want to try hormones or BC or anything like that. I'd rather go ahead with the surgery.

She said they can do the surgery and get a good look around but she is going on maternity leave and wont be back until November. I need to set up an appt. with her in Nov. for a surgery consult where she said we can discuss all of this stuff in more detail. It sucks to have to wait that long but I figure I'll get another ultrasound around that time to make sure the cyst is still there before we do surgery.

I dont know if any of this will help but I'm willing to try anything. Its process of elimination...if I dont do anything about it...I'll always wonder if its causing me problems. I know we've talked about all this before but what do you guys think about the cyst and does anyone know about Endometriosis?? Could any of this be causing sensitivities in your opinions??

Hello, I'm new here, but have frequented other boards. I've been intrigued by the Rachelville discussions, and leaky gut discussions. It would take me forever to get through this whole thread, so I skipped about 380 posts. Forgive me if I've missed something, but I couldn't pass up responding to Rachel's post above.

A little bit about me: I've known I've had a gluten sensitivity for sometime, but never completely cut it out until last September. I'm 40 and I want to get pregnant sometime in the near future. I was having problems with my cycle for 5 years. I had 3 fibroids that were causing my bleeding problems. Of course I didn't know that for sure until I had my fibroids removed this past April. To make a very long story short, I am not the kind of person who takes surgery lightly. Last September, I embarked on a holistic healing quest to try to get rid of my fibroids naturally. I stopped eating gluten, dairy, corn, quinoa, and sweets (the "no fun" diet) at the advice of my acupuncturist. After flying to NYC from Colorado to see a gyno who specializes in holistic treatment of fibroids, I decided to have my fibroids removed laparoscopically because the holistic methods where going to take too long. It would have taken years to get rid of my fibroids naturally, and I don't have years at my age to get pregnant.

The surgery and recovery went pretty smoothly, but it did not make my digestive problems go away. In fact, if anything, it made it worse. I also had the Enterolab test done right before my surgery, and all my stool tests were negative for gluten and casein, but that wasn't surprising to me as I had been off all gluten and dairy for 7 months. I do have two copies of the DQ1 gene (HLA DQB1 0501), which predisposes me to gluten sensitivity. I cut out all hidden sources of gluten, and was still having problems. I started the SCD diet, and was still having diarrhea. I was tested for parasites, and was negative. I then requested a food intolerance panel (IgG antibodies), and discovered I was moderately reacting to lamb, soybeans (which I already suspected), almonds, and sesame. I cut those out of my diet, along with the foods I was mildly reacting to, including peanuts, sunflower seeds, and cashews. I stopped SCD. I have been fine since, and it's been a couple of weeks.

Back to Rachel's post: Rachel, I think you should be glad your doc is on maternity leave because it will give you a chance to get a second opinion. I got 5 opinions (no lie, all different doctors) before I decided to do surgery. Every doctor told me something different. I went with doctor #2, who was the only of all the doctors I saw who could do my procedure laparoscopically, which gives you and idea of how complicated my surgery was. Actually, for him, it wasn't that bad, because he was specially trained in laparoscopic procedures for women. If your cyst is small, I think you have a good chance of having your body heal it naturally. You might want to try acupuncture and Open Original Shared Link. I wonder how big your fibroid is? I think that's going to be your bigger problem. You can have abdominal pain from your fibroid. I did, but it was mild and was always in the same place. "The Infertility Cure" by Randine Lewis is a great place to start to get acquainted with Chinese medicine and how it treats ovarian cysts and fibroids. It might give you some insight to your thyroid issues as well. It's all connected.

What does ovarian cysts and fibroids have to do with digestive problems? I am beginning to think that the digestive problems are the root of the gynecological problems. Do not take birth control pills or any female hormones to try to figure out if you have endometriosis. I don't know how you figure out if you have endometriosis, but this seems like a ridiculous way. On second thought, I think you should ditch your current gyno, because she should know that any excess estrogen or progesterone is going to cause your fibroid to grow. Check it out for yourself (click on "About Fibroids", then "#7. Theories of Fibroid Formation"):

Open Original Shared Link

Also check out this interesting piece written by an acupuncturist on how if a woman has leaky gut syndrome, she can reabsorb estrogen she is trying to excrete, thereby causing fibroids (click on "Leaky Gut Syndrome"). It's long, but worth the read:

Open Original Shared Link

My estrogen levels had been very high on one test I had done for estrogen metabolism, and I always wondered where all this estrogen had been coming from? I think cutting out dairy helped with that, since dairy has a lot of estrogen, even if it is organic/growth hormone free. I think my next move is to go see this doc, who happens to be in my town.

You may want to thoroughly research your conditions before agreeing so readily to have surgery. After reading this article, I wondered if all the ibuprofen I had taken after my surgery had damaged my intestines. I took a lot of ibuprofen for a couple of weeks.

Feel free to e-mail me if you have any questions about fibroids.

Claire

Link to comment
Share on other sites
dlp252 Apprentice

Welcome Claire!

Link to comment
Share on other sites
Green12 Enthusiast
I am beginning to think that the digestive problems are the root of the gynecological problems.

Welcome Claire, good information and insight.

I believe strongly in what you said that I quoted, a wise man once told me "health begins in the gut".

Link to comment
Share on other sites
Rachel--24 Collaborator

Thanks for your post Claire...I would like to respond to some of what you've written but I'm way too tired tonight. I think I may just get a good nights sleep for once.

I'll be back tomorrow....I also have some new scientificness I'd like to share. :)

Link to comment
Share on other sites
Judyin Philly Enthusiast

Welcome Claire

Very informative Post, thanks

Rachel,,,hope you get a good nite sleep. think it's what i need too

hugs

judy

Link to comment
Share on other sites
miamia Rookie

I think it was donna who had talked about refllux but I thought this would be of interest it has to do with the cause of intestinal periability and leaky gut

The body's first line of defense against intestinal infection is the acid produced by a healthy stomach. Stomach acid kills most of the bacteria and parasites that are swallowed along with meals. Strong suppression of stomach acid increases the risk of intestinal infection. The widespread use of antacids is, therefore, a reason for concern, and the FDA's recent decision to make the acid-lowering drugs Tagamet and Pepcid available without a doctor's prescription is a terrible disservice to the American people. Most people who take treatments to buffer or reduce stomach acid do not need acid reduction and should avoid it. Tagamet and Pepcid are called H-2 blockers because they block certain effects of histamine in the body. (Conventional "anti-histamines" used for treating symptoms of allergy are called H-1 blockers). They were originally developed for the treatment of ulcers and they made huge profits for the companies which owned them. Doctors soon began using H-2 blockers for relieving stomach pain which was not caused by ulcers (this pain is called "non-ulcer dyspepsia"), even though their efficacy for non-ulcer pain was disputed. The most common cause of non-ulcer dyspepsia, by the way, is taking NSAIDs. If NSAID use were markedly reduced, the frequency of stomach pain and the need for H-2 blockers would also be reduced. Recently, it has become quite clear that most ulcers are triggered by a bacterial infection of the stomach and that antibiotics are superior to H-2 blockers for treating ulcers. As the need for H-2 blockers in the treatment of ulcers just about vanished, the FDA suddenly approved their non-prescription use for the treatment of heartburn. The truth is that H-2 blockers are rarely needed to treat heartburn, because heartburn is not caused by excess stomach acid. It is caused by reflux of normal amounts of stomach acid into the esophagus, which occurs when the valve responsible for preventing acid reflux is not working properly. The usual reason for valvular incompetence is dietary. Coffee, alcohol, chocolate and high fat meals prevent the valve from closing properly. Calcium, in contrast, makes it close more tightly.

Link to comment
Share on other sites
queenofhearts Explorer
I think it was donna who had talked about refllux but I thought this would be of interest it has to do with the cause of intestinal periability and leaky gut

The body's first line of defense against intestinal infection is the acid produced by a healthy stomach. Stomach acid kills most of the bacteria and parasites that are swallowed along with meals. Strong suppression of stomach acid increases the risk of intestinal infection. The widespread use of antacids is, therefore, a reason for concern, and the FDA's recent decision to make the acid-lowering drugs Tagamet and Pepcid available without a doctor's prescription is a terrible disservice to the American people. Most people who take treatments to buffer or reduce stomach acid do not need acid reduction and should avoid it. Tagamet and Pepcid are called H-2 blockers because they block certain effects of histamine in the body. (Conventional "anti-histamines" used for treating symptoms of allergy are called H-1 blockers). They were originally developed for the treatment of ulcers and they made huge profits for the companies which owned them. Doctors soon began using H-2 blockers for relieving stomach pain which was not caused by ulcers (this pain is called "non-ulcer dyspepsia"), even though their efficacy for non-ulcer pain was disputed. The most common cause of non-ulcer dyspepsia, by the way, is taking NSAIDs. If NSAID use were markedly reduced, the frequency of stomach pain and the need for H-2 blockers would also be reduced. Recently, it has become quite clear that most ulcers are triggered by a bacterial infection of the stomach and that antibiotics are superior to H-2 blockers for treating ulcers. As the need for H-2 blockers in the treatment of ulcers just about vanished, the FDA suddenly approved their non-prescription use for the treatment of heartburn. The truth is that H-2 blockers are rarely needed to treat heartburn, because heartburn is not caused by excess stomach acid. It is caused by reflux of normal amounts of stomach acid into the esophagus, which occurs when the valve responsible for preventing acid reflux is not working properly. The usual reason for valvular incompetence is dietary. Coffee, alcohol, chocolate and high fat meals prevent the valve from closing properly. Calcium, in contrast, makes it close more tightly.

That's very interesting. I was given Tagamet for a severe case of hives, which I didn't understand at the time, but now I see the histamine connection. More recently my GI gave me Prevacid, & the rebound burrning when I stopped was horrific. I ran out when away from home so stopped suddenly. If I take it again I'll know better than to do that, but I'm not really eager to take it again, especially after this info. I should add though that reflux is not my problem-- the doc saw irritation in the endoscopy. Does that change anything in your opinion?

Link to comment
Share on other sites
Green12 Enthusiast
I think it was donna who had talked about refllux but I thought this would be of interest it has to do with the cause of intestinal periability and leaky gut

The body's first line of defense against intestinal infection is the acid produced by a healthy stomach. Stomach acid kills most of the bacteria and parasites that are swallowed along with meals. Strong suppression of stomach acid increases the risk of intestinal infection. The widespread use of antacids is, therefore, a reason for concern, and the FDA's recent decision to make the acid-lowering drugs Tagamet and Pepcid available without a doctor's prescription is a terrible disservice to the American people. Most people who take treatments to buffer or reduce stomach acid do not need acid reduction and should avoid it. Tagamet and Pepcid are called H-2 blockers because they block certain effects of histamine in the body. (Conventional "anti-histamines" used for treating symptoms of allergy are called H-1 blockers). They were originally developed for the treatment of ulcers and they made huge profits for the companies which owned them. Doctors soon began using H-2 blockers for relieving stomach pain which was not caused by ulcers (this pain is called "non-ulcer dyspepsia"), even though their efficacy for non-ulcer pain was disputed. The most common cause of non-ulcer dyspepsia, by the way, is taking NSAIDs. If NSAID use were markedly reduced, the frequency of stomach pain and the need for H-2 blockers would also be reduced. Recently, it has become quite clear that most ulcers are triggered by a bacterial infection of the stomach and that antibiotics are superior to H-2 blockers for treating ulcers. As the need for H-2 blockers in the treatment of ulcers just about vanished, the FDA suddenly approved their non-prescription use for the treatment of heartburn. The truth is that H-2 blockers are rarely needed to treat heartburn, because heartburn is not caused by excess stomach acid. It is caused by reflux of normal amounts of stomach acid into the esophagus, which occurs when the valve responsible for preventing acid reflux is not working properly. The usual reason for valvular incompetence is dietary. Coffee, alcohol, chocolate and high fat meals prevent the valve from closing properly. Calcium, in contrast, makes it close more tightly.

Hi mia mia :) , how have you been feeling??

This is great information, thanks so much for posting it. This is exactly what I am trying to figure out, what is happening in my gut that is causing excessive histamine release/or lack of dietary histamine degrading, reflux, infection, and slow digesting.

This post gave me a lot of clues.

Link to comment
Share on other sites
miamia Rookie
Hi mia mia :) , how have you been feeling??

This is great information, thanks so much for posting it. This is exactly what I am trying to figure out, what is happening in my gut that is causing excessive histamine release/or lack of dietary histamine degrading, reflux, infection, and slow digesting.

This post gave me a lot of clues.

Julie-

I am so glad you found it helpful!!! It is part of a larger article I will try to locate it or find you the link.

I have not been great that is why I have not been posting so much. I just feel overwhelmed I don't know anymore what to cut out or put in- its all so confusing. I am just trying to listen to my body and give it what it asks for. Sometimes I think thats the best thing I can do for myself.

I got some of the test results back I have a high iron count so I have to do further testing for that becaus eit can afffect the liver and the pancreas it could also explain some of my symptoms though not all. I would love it though if it turned out to be something at least it would give me a proactive direction to move in.

again I am glad the info was helpful .

miamia

Link to comment
Share on other sites
rinne Apprentice

Thanks for the post Miamia, very informative.

I find myself thinking about all of you and wondering how you are doing.

I've been trying the Salt/Vitamin treatment that has been used successfully for Lyme Disease. I am taking a 1/4 teaspoon of Real Salt and Vitamin C twice a day in a glass of water and have been doing so for the past twelve days. I will post more about it later.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - BluegrassCeliac replied to lasthope2024's topic in Food Intolerance & Leaky Gut
      7

      This forum might be the last hope I have in my life. Please I beg you

    2. - Scott Adams replied to Nacina's topic in Related Issues & Disorders
      1

      14 year old with Celiac & EOE still suffering...

    3. - Nacina posted a topic in Related Issues & Disorders
      1

      14 year old with Celiac & EOE still suffering...

    4. - trents replied to Fluka66's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Waiting for urgent referral.

    5. - Fluka66 replied to Fluka66's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Waiting for urgent referral.



  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,067
    • Most Online (within 30 mins)
      7,748

    myneckmybackmyceliac
    Newest Member
    myneckmybackmyceliac
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • BluegrassCeliac
      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
    • Nacina
      Hello, I am a 45 year old mom, who was diagnosed at 29 with Celiac. My now 14 year old son was diagnosed just before his 4th birthday. Needless to say, we are old pros with the diet. He was experiencing some issues, overall health took a major plummet a year ago, and through a bit of work, was diagnosed with EOE. Tried diet alone, but his follow up endoscopy didn't show the improvements his DR. wanted to see, so I tried the medication. (Steroid). He became extremely backed up, and they had him taking Miralax daily. His health plummeted. He is a straight A honor's 8th grader who plays club soccer very competitively. His health continued to decline and at 13 had a colonoscopy and another upper gi. (He was still compacted even with the prep). I finally pulled him off all meds and mira lax, after reading much negative literature online, and put him on a gut detox diet and took him to a nutrition response dr. Finally things have improved. However...over a year later and he is having relapse stomach pain, debilitating stomach pain. Missing a day of school a week, to three this week. This is where we downward spiral with him. He says it doesn't feel the same as when he has gotten backed up before. He is eating prunes, taking his supplements, drinking water...all of the things. Yet, he is feeling horrible. Pain is abdomen, headache, lethargy, diarrhea . He is on a strict gluten dairy, egg free diet. He has adapted well in regards to diet. But I feel like we are missing something here. He is too active, too outgoing to be feeling sick all of the time. His Bilirubin is constantly high. His white blood count always runs slightly low. His vitamin D was very low last time he ran tests, (last month) when he was sick for a week. His celiac markers show negative, so it isn't that. His last endoscopy showed no Eosinaphils in his esophagus.  I have taken him to multiple Ped. Gastro specialists. They run tests, and we get zero answers. I meticulously go through labs, hoping to make some sense and maybe catch something. Any thoughts or ideas would greatly be appreciated. 
    • trents
      But if you have been off of wheat for a period of weeks/months leading up to the testing it will likely turn out to be negative for celiac disease, even if you actually have celiac disease. Given your symptoms when consuming gluten, we certainly understand your reluctance to undergo  the "gluten challenge" before testing but you need to understand that the testing may be a waste of time if you don't. What are you going to do if it is negative for celiac disease? Are you going to go back to merrily eating wheat/barley/rye products while living in pain and destroying your health? You will be in a conundrum. Do I or do I not? And you will likely have a difficult time being consistent with your diet. Celiac disease causes inflammation to the small bowel villous lining when gluten containing grains are consumed. This inflammation produces certain antibodies that can be detected in the blood after they reach a certain level, which takes weeks or months after the onset of the disease. If gluten is stopped or drastically reduced, the inflammation begins to decrease and so do the antibodies. Before long, their low levels are not detectable by testing and the antibody blood tests done for diagnosing celiac disease will be negative. Over time, this inflammation wears down the billions of microscopic, finger-like projections that make up the lining and form the nutrient absorbing layer of the small bowel where all the nutrition in our food is absorbed. As the villi bet worn down, vitamin and mineral deficiencies typically develop because absorption is compromised. An endoscopy with biopsy of the small bowel lining to microscopically examine this damage is usually the second stage of celiac disease diagnosis. However, when people cut out gluten or cut back on it significantly ahead of time before the biopsy is done, the villous lining has already experienced some healing and the microscopic examination may be negative or inconclusive. I'm not trying to tell you what to do I just want you to understand what the consequences of going gluten free ahead of testing are as far as test results go so that you will either not waste your time in having the tests done or will be prepared for negative test results and the impact that will have on your dietary decisions. And, who are these "consultants" you keep talking about and what are their qualifications? You are in the unenviable position that many who joint this forum have found themselves in. Namely, having begun a gluten free diet before getting a proper diagnosis but unwilling to enter into the gluten challenge for valid testing because of the severity of the symptoms it would cause them.
    • Fluka66
      Thank you very much for your reply. I hadn't heard of celiac disease but began to notice a pattern of pain. I've been on the floor more than once with agonising pain but this was always put down to another abdominal problem consequently I've been on a roundabout of backwards and forwards with another consultant for many years. I originally questioned this diagnosis but was assured it was the reason for my pain. Many years later the consultant gave up and I had a new GP. I started to cut out certain food types ,reading packets then really started to cut out wheat and went lactose free. After a month I reintroduced these in one meal and ended screaming in agony the tearing and bloating pain. With this info and a swollen lymph node in my neck I went back to the GP.  I have a referral now . I have also found out that acidic food is causing the terrible pain . My thoughts are this is irritating any ulcers. I'm hoping that after a decade the outlook isn't all bad. My blood test came back with a high marker but I didn't catch what it was. My GP and I have agreed that I won't go back on wheat just for the test due to the pain , my swollen lymph node and blood test results.  Trying to remain calm for the referral and perhaps needed to be more forceful all those years ago but I'm not assertive and consultants can be overwhelming. Many thanks for your reply . Wishing you all the best.
×
×
  • Create New...