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Rachel--24

Omg...i Might Be On To Something

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Okay, my dear:

Not only do you need to change the filter, but if you don't change it every couple of months, you should vacuum it with the crevice attachment EVERY week!!!!! I'm not kidding, it makes a huge difference. So that means your mom is probably due to change the one she replaced already, or at least vacuum it.

You also need to contact a reputable heating company to come out and clean yor furnace twice a year. I believe that is considered standard maintenance.

You can't afford to be lazy about this, especially if you are expending so much energy running to doctors and Bioset (I am not implying that you shouldn't be, just that you're shooting yourself in the foot if your household air is poisoning you the minute you return home!!).

Sorry if I sound so stern--it's just that I care--very much!

Alison...I appreciate all of it.

I didnt know they should be cleaned so frequently. :huh:

Yeah....no WONDER the heaters are killing me. :o My house is 7 years old and I havent had anyone come to clean the furnace yet because I didnt know it was necessary. :unsure:

Shoot...I guess I'm poisoning myself worse. :(

Patti had mentioned that someone needs to come clean all the ducts....that molds, dust and other allergens can collect in there. Is this the same as having the furnace cleaned?? This is the first home I've ever owned and everything was new when we moved in so I didnt really worry about having anything cleaned....plus I never knew about the proper heater maintenance....just that the filters needed to be changed every so often. :ph34r:

What about fans....there are fans in every bathroom and in the laundry room. The crevices of those have dust also. I should get up there and clean those too??

Thanks for your help. :)

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The worst thing happened last night. :(

I was so happy cuz I had that seen that cute movie and had fun...I was driving home....realized my cheeks were hurting from smiling. I just wanted to enjoy the rest of my night and relax.

I have a cat and when I leave on Monday mornings I always shut all the bedroom dorrs upstairs except for one. I dont want my cat sleeping on my bed since I'm allergic to everything. Sometimes he tries to be sneaky....he knows when I leave I'm gonna shut the doors so he'll try to hide in my room.

He'll try to sneak into my closet, go under my bed or hide behind the door.....very sneaky kitty. <_<

I always have to make sure hes not hiding in one of the rooms before I shut the doors. Last week I couldnt find my keys before I left so was frantically looking everywhere...thought I'd be late for work. I was going in and out of the rooms....finally found the keys in the most obvious place....right by the front door. :ph34r: Stupid brainfog. :angry:

So I get home last night and when I open my bedroom door....I'm overwhelmed by a funky smell. Ceasar had hid in my room and got locked in there for 5 days! :o He is perfectly fine....he didnt even seem to lose any weight. He didnt have food or water all week but he was perfectly fine....how is that possible?? :huh:

He had done his business all over my bed. :(

I had to throw away my comforter, pillowcases, comfortor cover, sheets....everything. :(

Now I have to buy a new comfortor. It totally sucked....my room smelled like pee. :(

I'm really glad it was on my bed rather than the carpet...but still....it sucked. My new electric blanket was underneath all of the bedding...so it survived....thank God because I would have froze without it. I wouldnt turn the heater on because I havent changed the filter yet. I couldnt go to bed until I washed and dried the electric blanket.

On top of that....because I'm soooo sensitive to smells...the smell was still lingering in my room. I ended up spraying some kind of air freshener...perfumey stuff all over my room. OMG....what was I THINKING!!! :blink:

So then I was dying from that and had to leave my window open all night to air out the room...woke up with a sore throat. :(

It was soooo WRONG....a good night that turned into a not so good night. :angry: Oh well....its all cleaned up...I gotta go shopping for new bedding and air filters now. :rolleyes:

If I have time I'll post a pic of the sneaky kitty later. He's sleeping on my lap right now....purring away....doesnt even care that all my bedding is now in the trash. :rolleyes:

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I did register at LymeNET...I've done plenty of reading but havent posted yet.

I'm shy. :ph34r:

I couldn't pass this up! :lol::lol:

Actually, I haven't registered, but I read there.

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I did register at LymeNET...I've done plenty of reading but havent posted yet.

I'm shy. :ph34r:

Me too. I registered there a couple of weeks ago, but haven't posted...may not post there until I find out for sure that Lyme is really even a possibility, but I've been reading (well, up until I went on vacation, lol).

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heck rachel, did a post question to you and not here.

need a break..will be back maybe it will apear ..it's christmas and maybe there will be a miracle.

:)

judy

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it's christmas and maybe there will be a miracle.

:)

judy

:lol::lol:

Judy...thanks for the giggles. Yeah...Xmas miracles...I'm praying for some of those too!

I'm still gonna look for the stuff about Igenix....hopefully I'll be able to find it.

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fast repy rachel..don't waste time found a pm from rinne and think i have what ineed will write after dinner.

i'll try to remember what i was typing.omg i'm brain dead..rachel..do those little wormy things 'spirokets' eat brain cells. omg

tell me no.

j

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Put up a new avatar...me in my Minnie Mouse Christmas ears from this tryip and sunglasses (kiddies) that I bought in February, lol. :lol:

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Rachel, thank Heavens your kitty is okay! Maybe he could come with you to your mom's next time?

Do you have a box fan or a window fan? You could put it in the window and turn it on high and blow lots of nice fresh air in (leave the bedroom door open and a window open somewhere else in the house so the bad smelly air leaves the bedroom).

Yes, you need to dust the fan blades. Also the tops of the window and door frames. Since you are so sensitive to chemicals, don't use Pledge or any dusting spray. You could use some diluted Simple Green on a rag..

Having the ducts cleaned is not the same as having the furnace cleaned, but it is probably a good idea, too, especially as you never changed the filter. I have never had it done, but I know people who swear by it. I sort of do it myself with an extra-long vacuum cleaner hose attachment, but I'm sure it's not as effective as the pros.

Sounds like the new year will be a fresh start for you, indeed!

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love the ears and specs!

Thanks! :P

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I want to possibly take antibiotics briefly and then redo my Lyme tests...or do the urine test for Lyme bacteria. Still thinking about it.

Hi Again,

I found it. I would love to know more about the urine test for lyme bacteria.

For more years than i can count, my urine tests have always come back with bacteria. I used to go on antibo all the time. Last 9 years just take cranberry capsules and it detures it..Did have a full blown UTI after returning from Mom's funeral where i ran a 103 temp and went on Clyndmycin. This was before the celluitis end of May this year.

So never could figure out what the bacteria was..all said.."it's just me..that's the way i test..

So if there is a test that picks this bactera up woud like to discuss with dr tomorrow.

Another question..in a argument for the enderol lab tests for genes for celiac.....

If you don't have the genes for celiac disease, how can the lymes trigger it if you have to have the gene.??

then it would be lyme based gluten intollerance, correct.

anyone jump in here..i'm open and trying to get prepared.

thanks all.

judy

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So I get home last night and when I open my bedroom door....I'm overwhelmed by a funky smell. Ceasar had hid in my room and got locked in there for 5 days! :o He is perfectly fine....he didnt even seem to lose any weight. He didnt have food or water all week but he was perfectly fine....how is that possible?? :huh:

Kitty smells have a way of getting us to not think to clearly. Phew, smelly, smelly. I hope your mattress is ok. :blink:

Put up a new avatar...me in my Minnie Mouse Christmas ears from this tryip and sunglasses (kiddies) that I bought in February, lol. :lol:

Love it!!!

then it would be lyme based gluten intollerance, correct.

Gluten intolerance can still cause other damage, but yes, if you don't have the celiac genes it would be pretty safe to say you don't have celiac but gluten intolerance. Of course, if they are still studying this so who knows if they'll say another gene can tend towards celiac.

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Kitty smells have a way of getting us to not think to clearly. Phew, smelly, smelly. I hope your mattress is ok. :blink:

Love it!!!

Gluten intolerance can still cause other damage, but yes, if you don't have the celiac genes it would be pretty safe to say you don't have celiac but gluten intolerance. Of course, if they are still studying this so who knows if they'll say another gene can tend towards celiac.

thanks andrea.

how are you and how's dad doing.

judy

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thanks andrea.

how are you and how's dad doing.

judy

We are doing good. Been watching the special Little House Release that has the 3 wrap up specials from after Season 9. Dad is doing well as far as I know. He sounds good. Just talked to him today.

My brother did fine after adding back in gluten Friday. I told him a reaction could be delayed by about 3 days. He doesn't know about his test yet.

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fast repy rachel..don't waste time found a pm from rinne and think i have what ineed will write after dinner.

i'll try to remember what i was typing.omg i'm brain dead..rachel..do those little wormy things 'spirokets' eat brain cells. omg

tell me no.

j

Glad you got something from Rinne. :)

Judy,

The spirochete "wormy things" (:lol:) dont "eat" brain cells...at least I dont think they do. :unsure:

Lyme Disease causes major brainfog....confusion, short-term memory loss, disorientation (going to the wrong places etc.), lack of concentration....all kinds of cognitive stuff.

The bacteria produces toxins....neurotoxins. I think this may have alot to do with the brain stuff.

Heres a link about that

http://www.johndrullelymefund.org/lyme_dis...itive_impai.htm

About the urine test....its usually recommended for people who have problems testing positive in the Western Blots. The Western Blots are antibody tests but sometimes the immune system is too weak and not producing the antibodies....even though the Lyme is there....so the test is false negative.

I went to Igenix and talked to the director...he gave me the kit for the urine tests and explained it all to me.

The urine test looks for the actual particles of the Lyme bacteria and its DNA. There are false negatives with this test too but if there is any Lyme DNA found....or pieces of dead bacteria....then its a *sure* thing.

You're supoosed to do a specific sort of antibiotic challenge before you take the test....to kill some bacteria so that there is a higher chance of it showing up in the urine.

It would probably be better to have the Igenix Western Blots before trying the urine test. Its mainly for people who get inconclusive or negative Western Blots.

Let us know how everything goes tomorrow.

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Glad you got something from Rinne. :)

Judy,

The spirochete "wormy things" (:lol:) dont "eat" brain cells...at least I dont think they do. :unsure:

Lyme Disease causes major brainfog....confusion, short-term memory loss, disorientation (going to the wrong places etc.), lack of concentration....all kinds of cognitive stuff.

The bacteria produces toxins....neurotoxins. I think this may have alot to do with the brain stuff.

Heres a link about that

http://www.johndrullelymefund.org/lyme_dis...itive_impai.htm

About the urine test....its usually recommended for people who have problems testing positive in the Western Blots. The Western Blots are antibody tests but sometimes the immune system is too weak and not producing the antibodies....even though the Lyme is there....so the test is false negative.

I went to Igenix and talked to the director...he gave me the kit for the urine tests and explained it all to me.

The urine test looks for the actual particles of the Lyme bacteria and its DNA. There are false negatives with this test too but if there is any Lyme DNA found....or pieces of dead bacteria....then its a *sure* thing.

You're supoosed to do a specific sort of antibiotic challenge before you take the test....to kill some bacteria so that there is a higher chance of it showing up in the urine.

It would probably be better to have the Igenix Western Blots before trying the urine test. Its mainly for people who get inconclusive or negative Western Blots.

Let us know how everything goes tomorrow.

Thanks Andrea and Rachel

just got my questions all typed out the Igenix papers printed to show him.

will maily tackle the candidia problem tomorrow and see how receptive he is to that.

i'll post after i get home.

thanks for all the help you guys

nite

judy

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Judy - praying for a good, productive appointment for you today! I'm kind of excited about it, lol. You're going very well prepared, so I'm very hopeful!

Grrrr...woke up today with a bad sore throat. I'm staying home from work cuz I'm not feeling good, but really can't afford to stay home...after vacation I only have 3 days (well 2 after today) of time off left. I'm drinking some white tea (doctor said it has antioxidants) and will take some Vit. C today as well.

I have a chiropractic/PT appointment today and will call as soon as their office opens to see if I can keep it...maybe they can do a quick test for strep throat just to be safe (that's what I had last year in October which made me so sick). Not sure that the HN doctors can do that test or not though.

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Donna--I'm sorrry about the sore throat :angry: I hope it's not streph--maybe you picked up a cold while still on vacation. Get some rest today :)

Judy--I agree, you're going in today well prepared! I think it's extremely important that you get this yeast problem under control. Hope the appointment is productive--thinking about you this morning. Will talk to you later, of course B)

Andrea--I'm glad your dad is doing ok and that you spoke to him. It will be interesting to see how your brother's gluten challenge plays out.

Rachel--OMG about your cat! Glad the kitty is ok and hope your bedroom is none the worse for wear once you replace the linens. It's amazing how long they can go without food and water--when we first moved here 6 years ago, my cat (an indoor cat) got out and stayed lost for 8 days! When he was finally returned to us, he was thinner, tired-looking but bounced back quickly.

When we had our furnace ducts cleaned, it included cleaning of the furnace itself. Also, they did all of the grates and fans. Basically everything including the filter (which we do change frequently, anyway) One caution--some companies will want to cut into your ducts to put in their vaccum equipment. A good company who knows what they're doing will not need to do this--they will locate the duct over or nearest to the furnace and use that at the register. Ask at the time you make the appointment--we just didn't feel comfortable with cutting holes in the main duct. ;)

Good morning to everyone! :D

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HI

I did a post earlier yesterday on this subject.

can you share more or direct me to s sight on the ways you can test for yeasts = candidia..they are the same..tho yeasts can be different so need different treatment, right/

went on some web site but still don't seem to get it.

have dr apt where i want to address this a seeing him for yeast overgrowth.

Carla recommended the 'the yeast defence' book. did you find it helpful too?

judy in philly

Judy-

I had my tsting done with Genova Diagnstics- their website is www.GDX.com I think. The test I had is the C D S A/P Purge Random. The book the yeast connection I think this is what your talking about was the first thing I bought years ago when i found out about the candida it was reallly interesing time at the time but to me its more of a basic thing it covers alot and I found can be alittle too broad or something- I felt like it was a good starting point becasue I didn't know much about yeast at all but there are definitly other sources out there. I don't know if that makes sense.

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Donna--I'm sorrry about the sore throat :angry: I hope it's not streph--maybe you picked up a cold while still on vacation. Get some rest today :)

Thanks...there were a gazillion kiddies at Disneyworld of course, and they weren't being hunted down with hand sanitizers like on the ship, lol. Hoping it's only a cold. Throat feels slightly better after the tea, so pretty sure it isn't strep cuz nothing seemed to help THAT last year, lol.

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Thanks...there were a gazillion kiddies at Disneyworld of course, and they weren't being hunted down with hand sanitizers like on the ship, lol. Hoping it's only a cold. Throat feels slightly better after the tea, so pretty sure it isn't strep cuz nothing seemed to help THAT last year, lol.

I forgot to add that I LOVE your picture! :D

Yep--with that many kiddo's around, it could very well be a cold--glad the tea is making it feel better.

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Miamia,

I'm glad you checked in with us. I've been wondering how you were doing but wasn't real concerned as at least you had logged in to read.

I wonder if you could do the salt/vit c or take a short course of antibiotics to try to wake up the lyme (assuming you have it). I know antibiotics are terrible for the candida though. Have you looked into doing the bioset? What about checking in with the LLMD in your area and taking your tests to him?

Andrea-

My doctor and I both agree it might be worth it for me to do a short course of antibiotics and then get ttesting done but because I am so sesitive he dosen't think I will be able to take an oral antiibiotic so he wants to do it through a shot- I weigh to little to do it intrevenously. The thinkg is the shots can be really expensive and the only way they are covered at all is if you ahve some sort of diagnosis and prove its totally necessary so he is giving me alot of tests to see if we can get one. He is very cool in this way he knows I don't have alot of money so he really does want to help me in that department as well. I have looked alittle into bioset I am intersted in it I am going to call this acupuncturist he reccomended to me and see if he has ever heard of it. My doctor said he had seen mixed results with it and wasen't sure if I would benefit or not.

Miamia

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