Jump to content
  • Sign Up
Celiac.com Sponsor:


Celiac.com Sponsor:

Archived

This topic is now archived and is closed to further replies.

Rachel--24

Omg...i Might Be On To Something

Recommended Posts

I think I might go pick up my Samento now. I'm scared to start taking it though. :ph34r:

At least if I buy it I can take it to BioSET tomorrow and have them test the real thing to make sure I can have it. I dont wanna get sick right before Xmas.....and I dont want to be wondering if its a Herx or just a reaction to the stuff. <_<

Share this post


Link to post
Share on other sites
I have an Orek upright with an anti-allergen bag -- the permanent bag is the one that traps the allergens, so you just get regular bags for inside. They're expensive, but I really like it. It comes with a second more portable vacuum, and a dust-buster, so you have all the vacuum cleaners you need with just one purchase! :lol: Expensive though.

I have one of those "bagless" ones. The dust and dirt just goes into a plastic thingy and you dump it out. I think I just need to replace filters....but where the heck do I get them??? :unsure:

Share this post


Link to post
Share on other sites
I have one of those "bagless" ones. The dust and dirt just goes into a plastic thingy and you dump it out. I think I just need to replace filters....but where the heck do I get them??? :unsure:

My upright came with one of those. I like it. I get the filters and bags for the other ones at the Oreck store. I think that's the only place that sells them.

Share this post


Link to post
Share on other sites
I asked about whether the results of my stool testing were in, and they were, but they won't tell you like that, you have to speak to one of the doctors...I'll do that on Wednesday. I do know that whatever they found needs a prescription, cuz they mentioned that one was already written. :( Hoping it's not C.Diff, but also not sure if I want any of the other parasites/bacteria either. Not really sure if any others can be fixed by prescription, Candida maybe??

Friday I will be re-evaluated for the chiropractic/physical therapy stuff to see if there is any improvement (um, my best guess, NO, lol). Preparing myself for the :huh: look I'll get when I reemphasize the mercury/lyme thing. :lol:

I'll be waiting for more news from you this week Donna.

I think you'll get that look also. :P

Judy - take your time about posting, but hurry up okay, lol. :lol: Just kidding, sort of. :P

:lol::lol: I agree.

Is everyone ready for Christmas??

I'm considered a very early shopper for the most part. I get most of it done in Sep/Oct.

I did this to a dog that lifted his leg on a chair ... only it was more of a castration ... from then on my hubby would tell people, "You'd better not make her mad, you should see what she did to the dog!"

:lol::lol::lol:

I had my blood taken for the coinfections today. She had the seal break on the blood container -- TWICE! So the other nurse came in and took it from the other arm. HEINOUS!

Uggghhhh! I hope you recover from that quickly. I also hope you are feeling better. How long before you know about the co-infections....2-3 weeks?

I think I might go pick up my Samento now. I'm scared to start taking it though. :ph34r:

At least if I buy it I can take it to BioSET tomorrow and have them test the real thing to make sure I can have it. I dont wanna get sick right before Xmas.....and I dont want to be wondering if its a Herx or just a reaction to the stuff. <_<

What about waiting to start it until after Christmas.

Share this post


Link to post
Share on other sites

Yes, two or three weeks. Just so long as it's before my doctor appt. in January is all that really matters!

I asked the nurse if they reported my Lyme to the CDC. The nurse said the doctor had some questions for the lab first ... who knows why she hasn't called them yet ... I asked what the questions were, and she said she didn't really know but the doc wasn't sure if it was an active infection or antibodies from a past infection. I told her that the doc must be questioning because the Igg was raised not the Igm. She said that was the reason ... I told her it didn't matter with Lyme which it was, that you have Lyme either way, that Lyme was somehow different than other infections. I don't know why she hasn't called the lab yet.

Share this post


Link to post
Share on other sites

I got the cats claw.....it says right on the box "Herxheimer's reaction may occur". It says sensitive individuals may have to stay on one drop per day for a period of time...then gradually increase. Well....thats me. I guess I'll be taking one drop...and probably feeling like death from it. :(

I'm definately waiting till after Xmas to start on it. I'm scared. :ph34r:

Rinne....did you herx from the cats claw?? How many drops do you take??

What do you guys think.....if I start herxing should I redo the Western Blots?? Anyone think that the cats claw is strong enough???

Share this post


Link to post
Share on other sites
What do you guys think.....if I start herxing should I redo the Western Blots?? Anyone think that the cats claw is strong enough???

I don't know. As much as they cost, I'd probably try the antibiotics to be SURE they are right. I hope my samento comes soon ... I had to order it!

Share this post


Link to post
Share on other sites

Hi everyone. I'm back in the US. I was away from the board for a while and now suddenly everything's different :unsure: I'm too tired and lazy to figure it all out right now but it kind of looks like myspace with friends and comments and what not lol how weird. I'll have to stop by again when I'm more awake to read and catch up with everyone. It's just too exciting that it's Monday here where I am AND where you all are (except I just saw Georgie here so almost all of you lol).

ps sorry for the pop in/drive by that has nothing to do with what's being talked about. I guess I've done lots of those lately lol

Oh and I'm not the koala but I can't figure out how to change the caption. Okay I'm really leaving now :)

Share this post


Link to post
Share on other sites

Hey Meredith!

Good to see you!!!

Actually it's Monday today. :)

Get some sleep and come back to learn the new board after you catch up from jet lag etc.

Share this post


Link to post
Share on other sites
:lol: Yeah I caught that. Well it was summer two days ago for me so I'm just really confused :blink::lol:

:lol::blink:

Isn't is warm in California? I know, it's not for you but it would be for us.

After you get some rest you'll have to fill us in on your avatar. Beautiful picture.

That koala looks pretty human to me. :P:lol:

Share this post


Link to post
Share on other sites

QUOTE(dlp252 @ Dec 18 2006, 02:42 PM)

Judy - take your time about posting, but hurry up okay, lol. Just kidding, sort of.

I agree. QUOTE(Rachel--24 @ Dec 18 2006, 03:33 PM)

Is everyone ready for Christmas??

NO NO NO NO NO NO ! I'M NOT..MAYBE I'LL CELEBRATE IT IN AUGUST.

Thanks guys.

Could feel the strength from all of you today.

I want to post when i feel like I'm emotionally stronger.

The apt was ..can't even think of the word for it

too much history that i didn't even share earlier..basically i'm back to square one.

referal to see a dermatologist...who knows how long that will take TO GET IN . He thinks it will be hard to get rid of..a fungal infection..the white stuff i can scrap off is dead skin???

Want's a total new work up with GI ..a newGI DR. MY CHOICE TOO...don't know her..scope, colonoscopy, etc nothing about testing for more answers with celiac..he wants to rule out cancer...of course he does,, but it's celiac and all that means.

" said since I'm not 100% better on celiac diet, there are other things going on."

Going to bed with the pump and call it day and try not to think about everything..17 months gluten-free and he's suggesting a gluten challange that's when i kinda felt i needed some time off from thinking. SAID "if i do that i'll be in bed for weeks."

love and thanks for all your info. didn't need it today as NONEof those issues were discussed.

omg i'm tired.

love you guys.

it's wonderful to be able to count on you all.

Judy

Share this post


Link to post
Share on other sites

Judy,

How totally frusterating! I hope you can get a good nights sleep. We'll talk to you tomorrow.

Share this post


Link to post
Share on other sites

Andrea, how sweet.

yep, it was.

worked on Christmas cards till 3:00 am and woke up at 6:00...guess that's 3 hrs sleep.

Cleaning lady. (don't begrudge me, ladies..at 65, it's always been my dream to have the little 'pixies' or faries come and clean while I sleep, well guess at my age it's ok, right?) she hadn't been here for 3 months then came andour company left on the 10th and now getting guest b/room ready for son again. In a 2 b/room cape cod with 3 frigging closets it's like a major move (out and into ) everytime there is company. She's retired and only comes to me..so i'm blessed to have her..we start out with coffee and catch up chatting then I clean along with her (in other rooms..like a tornado before she hits the next room) remember my favorit motto...' CREATIVE WOMEN HAVE COBWEBS IN THEIR CORNERS, NOT IN THEIR MINDS.' AND MY house reflects my motto. :lol: See I'm smiling this am...no worries friends.

judy

Share this post


Link to post
Share on other sites
Is everyone ready for Christmas??

NO!!! :lol: I don't even know if my family is exchanging gifts this year. I suppose I really SHOULD ask my mom, lol. I figure I'll go out and get some gift cards or something. I haven't had any energy to even THINK about it much less do it, and same here with the medical expenses and vacation expenses. :(

Share this post


Link to post
Share on other sites
I did this to a dog that lifted his leg on a chair ... only it was more of a castration ... from then on my hubby would tell people, "You'd better not make her mad, you should see what she did to the dog!"

:o

Share this post


Link to post
Share on other sites
I had my blood taken for the coinfections today. She had the seal break on the blood container -- TWICE! So the other nurse came in and took it from the other arm. HEINOUS!

:o:o

Share this post


Link to post
Share on other sites

Wow Judy, the appointment really does sound frustrating, but I'm glad you are in good spirits today!

Andrea, we weannies in California can't take this current cold spell...it's been below freezing at night, burrrrrr, lol. I was so cold all day yesterday...had on a long sleeve tee-shirt, a sweatshirt over that, and a blanket and was still shivering on the couch.

Rachel - good luck with the cat's claw...I'd be scared too.

Welcome back Mango!!!!

I'm home from work again today...still have ZERO energy and a sore throat. I sound like I have a cold, but my nose is not congested or stuffy, so I don't know what's going on. I may see if one of my doctors can test for strep throat today...don't know though. I woke up at 2:00 because of the throat and couldn't get back to sleep.

Share this post


Link to post
Share on other sites

Judy, apparently your doc and some of my docs must be buddies...suggesting the gluten challenge! we KNOW gluten is a problem....I don't care what you want to call it....celiac, gluten intolerance, gluten allergy...

Share this post


Link to post
Share on other sites

Judy,

I think Laura's right about the gluten challenge. Why test something we already know the answer to? :huh: You have bigger issues to address ;)

Donna,

I'm sorry you are still sick today. I was wondering about you, hoping you felt better and were posting from work. Get lots of rest, and let us know :)

Hi to everyone!

I made like a million christmas cookies yesterday..Worked on them all day--and they look and taste wonderful. I used rice flour and for the frosting, confectioner's sugar (cornstarch). I even colored my own sugar to avoid CC.

This morning, my stomach was not happy--I don't ever eat rice more than once a week, and have been avoiding corn. I guess the 10 or so cookies were a bit too much to handle :P

The good news is that my husband said they're the best ones he's ever had. At least the guys can enjoy them.... :lol:

Share this post


Link to post
Share on other sites

Judy,

I agree with the nonsense of a gluten challenge. Don't you get sick when you get glutened? That's your answer then.

Donna,

I hope you can get your test today. :( Keep us posted. Glad to have you back. :)

Patti,

I hope this doesn't leave you down long. I would be mourning not eating all the goodies you've taken the time to bake.

Share this post


Link to post
Share on other sites

Hi Andrea :D

Naw--I'm fine. The stomach stuff is over and I'm pretty used to not being able to eat what I'd really like to.

The important thing is that the guys will enjoy everything--that makes me really happy!

Share this post


Link to post
Share on other sites
He thinks it will be hard to get rid of..a fungal infection..the white stuff i can scrap off is dead skin???

Judy,

They need to figure out *why* you're getting fungal infections, candida, etc. It happens when the immune system is run down. What is the point of the gluten challenge??? To make you feel worse and drag your immune system down even further??? :blink:

"said since I'm not 100% better on celiac diet, there are other things going on."

I agree...but why go BACK on gluten and REVERSE the healing you've already done?? :huh:

Share this post


Link to post
Share on other sites

I wanted to check in...

No Lyme antibodies. No neutrophils. High Glucose count in Cerebral Spinal Fluid. What the heck? I know it probably wasn't Igenex but I don't know anything or what direction to even take. It is very frusterating to be a medical zebra.

Boo Hoo

Share this post


Link to post
Share on other sites

Angst,

If you suspect you might have Lyme you should see a Dr. who specializes in Lyme Disease. The tests arent very sensitive at all. Igenix has the most sensitive test.

LD is frequently misdiagnosed. Physicians frequently overlook cases of Lyme disease simply because they don

Share this post


Link to post
Share on other sites
Guest
This topic is now closed to further replies.

×
×
  • Create New...