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Omg...i Might Be On To Something


Rachel--24

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AndreaB Contributor
Sudoku? It is the devil's work, my friends......another one of those things they make you do in hell, along with Excel spreadsheets, don't forget........ :lol::lol::lol:

OMG, premature post, drive-by hello, I have only read the last page, :ph34r: am so behind, just saying hi to everybody from my land of Christmas Chaos and the inevitable suffering from procrastination in which I find myself almost every year! :huh::o But I made marshmallows last night, OMG, SOOOOOOOOO good and so tasty.....need to send them off in the mail so I won't eat them all! help me stay away from these fluffly white dream squares..............

I don't know when I"ll catch up..... :huh: Wub you guys!

:lol::lol::lol: We discovered this game on Chevroncars.com/games/

I love puzzle type stuff!

Those marshmellows to sound good. Wonder if I'd still think so after I saw the ingredients.....definately better than store bought I bet. :)

Wow Susan--you MADE marshmallows? That's incredible--they sound delicious.

I was in CVS earlier, and saw a Sudoko book in with the magazines. I thought about Andrea! :D

:lol:

I brought mine to Bioset last night. She looked at it and said "You better start out slow". She tested it and said "2 drops....thats it." :huh:

I told her it says to take one drop and then slowly increase. She said "yeah....you can increase after a couple days...increase to 2 drops a day." I asked how many days I should stay on only 2 drops??

She was like "Ummm.....indefinately....thats all you can handle...2 drops."

How the heck am I gonna kill anything with 2 tiny drops?? :blink:

You'll get there....give it time Rachel. Two drops is a start for now.

Not to worry, we're still in the "I'm sure we can fix you" phase, lol. I may be special in a few weeks though. :lol:

:lol: We already think your a special person, but let us know when your doctor thinks so. :)

Dr. Rick wants to see me in two weeks...can't remember why, lol. I guess cuz I'm sick now...don't know. I should start taking a tape recorder with me. :lol:

Hope you feel better after all is said and done. Glad you are starting to get some answers. :)

And does anyone else see kielbasa when looking at the word klebsiella, lol. :lol:

:lol: Me too.

Miamia, hang in there. You'll start getting some results soon.

I was sitting here (playing Sudoku) and thinking..."boy the board has been quiet". I haven't gotten any email notifications today and didn't realize anyone had been posting. I just signed on to see, just in case and I was 2 pages behind.


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dlp252 Apprentice
I always do--but I didn't want to say anything :ph34r::lol:

:lol:

dlp252 Apprentice
I dont...mainly cuz I dont know what Kielbasa is?? :unsure:

I dont know what Klebsiela is either?? :unsure: Is it a parasite.....ummmm I mean....is it a "bug"? :ph34r:

Did you ever get tested for H. Pylori before? I know HN tested me for it and also the GI did when I had my endoscopy....but I didnt have it.

Keilbasa is a sausage, lol. Klebsiella and H.Plylori are both bactera. I had no parasites and didn't have C.Diff. Dr. R at Camino tested for H.Plylori when he did the endoscope back in April, but he didn't find any. Dr. R at HN said it can easily be missed in the same way blunted villi can be missed if they didn't take the sample from the right spot, but that H.Plylori and klebsiella in the stool can't be missed. I thought they checked for it again when I had the stool testing done by Camino back in February...I know she looked for C.Diff but maybe not H.Pylori.

dlp252 Apprentice
I love puzzle type stuff!

Meeee tooo!

We already think your a special person, but let us know when your doctor thinks so.
Aw shucks. I'm sure my mom thinks so, and I think my friend that went on vacation with me thinks so, and not in the warm & fuzzy sense, lol. :lol:

I just signed on to see, just in case and I was 2 pages behind.

I've been a bit gabby today for some reason...even almost posted a reply to myself. :lol:

happygirl Collaborator

x

Mango04 Enthusiast
Sudoku? It is the devil's work, my friends......another one of those things they make you do in hell, along with Excel spreadsheets, don't forget........ :lol::lol::lol:

OMG I'm so glad someone else feels this way :lol:

CarlaB Enthusiast
I'm afraid of herxing. :ph34r:

I feel like the last few months have been a constant herx ... I wonder how much worse it can actually get ... though I'm sure it can.


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Judyin Philly Enthusiast

Hi Everyone..

Laura Your idea sounds good but how about a ground hogs day card in Feb?

when we moved..during the holidays one year, we sent a gh day card and people loved it we got letters back ..so extra mail for them at a blagh time of year..and we got mail at our new address...

be good to yourself.

love

judy

AndreaB Contributor
I made an executive decision today....since I decided there was no way that I had the power to send out Christmas cards this year, and I was really sad about that....I decided I'll write upa nice Christmas letter and insert pictures and send that out....not what I wanted to do, but sometimes, we have to learn to say no, right?! (I am learning, albeit slowly, I'm learning).

xoxo

That's what we do.

Hope you have a good holiday weekend......that goes for everyone.

georgie Enthusiast

Just a quick hello ! Mango - did you like Aust ?

Anyone think I am onto something here ? - my friends 18yo daughter has mult food allergies, excema, and CFS.All still out of control after 2 years of a naturopath. Could that be Lyme ? They lived in Chicago for a while. And now live in Sydney which has Lyme.

My DH who I wondered re Lyme - now is responding brilliantly to his new cortisone meds for adrenal fatigue. He just needed the more bio identical ones. That's my xmas present - a new man :lol:

Merry Xmas to all. Its hot as hot here and we have Xmas in shorts and have cold cold food like snapper, crayfish and prawns !

miamia Rookie

Donna-

I like when you are gabby- especially sinnce all of us have been so quiet!! Plus with your new picture it is only fitting that you would be gabby- it is so upbeat!! It sounds like you have alot to deal with with all the new test results but hopefully they will lead to some new improvements in your health.

Andrea-

I am a puzzle girl too-

Crosswords and sudoko. I am really a dork and look forward to new york times weekend crosswords- Yes really a dork.

Carla-

I say you should just pull that thanksgiving thing if your tired figure out what needs to be done and assign tasks to everyone - you deserve to relax!!!

miamia Rookie
That made me laugh. :lol:

Yeah.....like what do we get for get for all this "specialness"?? :unsure:

I'm with you....one of these days I wanna be "special" for something a whole lot better than this stuff! <_<

Rachel-

I can just imagine in rachelville we would get awards- the categories-

Who has the leakiest gut

Worst gluten intolerance

Most food allergies

best recovering from a glutening

best bad doctor story

etc.

jerseyangel Proficient
Rachel-

I can just imagine in rachelville we would get awards- the categories-

Who has the leakiest gut

Worst gluten intolerance

Most food allergies

best recovering from a glutening

best bad doctor story

etc.

:lol: I guess this is what we've all come to!

How are you doing today Miamia?

miamia Rookie
:lol: I guess this is what we've all come to!

How are you doing today Miamia?

i am alright I am trying to get stuff done early while i have a liitle energy I just made like 100 biscotti- ithought of you with your cookies!! Of course right now I can't eat them because of candida issues but at least my house smells really good. Its crazy that I can;t eat cookies that are wheat dairy and soy free but I am looking at it as funny instead of sad and I know the people I am amking them for will enjoy them and that makes me happy. Now I may go attempt to wrap gifts- a scary thought .

How are you?

jerseyangel Proficient
i am alright I am trying to get stuff done early while i have a liitle energy I just made like 100 biscotti- ithought of you with your cookies!! Of course right now I can't eat them because of candida issues but at least my house smells really good. Its crazy that I can;t eat cookies that are wheat dairy and soy free but I am looking at it as funny instead of sad and I know the people I am amking them for will enjoy them and that makes me happy. Now I may go attempt to wrap gifts- a scary thought .

How are you?

I'm good, and in the same boat that you are. All of those yummy cookies, and I can't eat them. :angry: Oh well, the rest of the family will enjoy them.

I didn't feel well after eating them, and now have developed a yeast infection :ph34r: I think it must be from all of the excess sugar. I just can't believe how sensitive my system had become. I was so careful to use safe ingredients--none of anything I'm sensitive to.

What the heck are we gonna do??? I thought by now, some of this would have cleared up, but I'm more sensitive than ever. Ugh! At least we have each other--people try, but just don't understand this type of thing.

I finally did get all of the gifts wrapped--a lot of them had to be sent out of town, and we did that on Monday. Believe me, when you finally get through with all of that wrapping, you will feel so much better! It was a load off my mind :D

miamia Rookie
I'm good, and in the same boat that you are. All of those yummy cookies, and I can't eat them. :angry: Oh well, the rest of the family will enjoy them.

I didn't feel well after eating them, and now have developed a yeast infection :ph34r: I think it must be from all of the excess sugar. I just can't believe how sensitive my system had become. I was so careful to use safe ingredients--none of anything I'm sensitive to.

What the heck are we gonna do??? I thought by now, some of this would have cleared up, but I'm more sensitive than ever. Ugh! At least we have each other--people try, but just don't understand this type of thing.

I finally did get all of the gifts wrapped--a lot of them had to be sent out of town, and we did that on Monday. Believe me, when you finally get through with all of that wrapping, you will feel so much better! It was a load off my mind :D

I did some of the wrapping so I jsut ahve to finish. Since I ahve been sick it seems like I really can't stand having anything I have to do - it eats at me. So I just try to get things done right away. I guess part of it Is i never know how I am going to feel so if I feel like I can do it I am better just to get it done as opposed to putting it off.

I am definitly more sensitive now than I ever was before I ahve said this before but I swear the more I cut things out and the longer I am off something the more sensitive I become. It is the opposite reaction alot of people have . Thats why at this point even if something leaves me alittle uncomfortable I try to just cut down on it as opposed ot eliminating it completly- If I keep doing that I will end up with nothing to eat.

I agree thank god we have eachother!! Who else could possibly understand these things?

CarlaB Enthusiast

Mia, I think I will do what I did Thanksgiving (this was two Thanksgivings ago). I also told Adam that I'm not going to feed everyone coming over ... I'll have out appetizers and sweets, but I'm not doing the whole dinner. Just the thought of not feeding all of them makes me feel better already. They'll be able to make a meal out of it, but just the fact that it doesn't have to seem like a meal makes it easier! Maybe I can find some jewel colored plastic plates ... totally not me, I'm usuallly a "It's Christmas, get out Grandma's china!!" person. We will have our "traditional" Christmas dinner Christmas Eve, but it's different than what most people think of for Christmas -- shrimp, cheese grits, asparagus, and cole slaw -- so it's easy. The kids talk about this dinner all year and could care less what we eat Christmas day.

Sounds like most of you need a Morgan! Last night I gave her gifts to wrap, told her who they were for and she wrapped them. I'm all done with Christmas shopping and wrapping except for her stuff, which I'm doing today with Adam. I tried to help wrap, but I was too sore to lean over and do it. I'm assuming this increase in muscle aches may be due to the samento. I'm also lifting weights, but I've been doing that for years and it doesn't make me sore anymore.

My family is all understanding, the big difference with you guys is you can relate!

CarlaB Enthusiast

Georgie, it could be Lyme. I have rashes and CFS symptoms, too. I also get some joint pain, sometimes, but that has gotten better going gluten-free. Muscle aches, too. The only way to know is to get tested as I don't know if you have LLMD's in Australia.

I think it would be fun having Christmas in the summertime, though it would be a little strange. This year is strange enough as we've had weather in the 60's! We used to live in Florida, but misteltoe and poinsettias grow outside there, so at least it looked a little like Christmas.

dlp252 Apprentice

Ha, when I lived in Hawaii, it was really hard to get used to Christmas...it just didn't seem natural for it to be near 70, lol.

Speaking of becoming more sensitive. The one thing I DO remember the doctor saying yesterday, is that since I have adrenal fatigue and all this other stuff going on that it only takes a little extra stress to push me over the edge...stress can be anything out of the ordinary, and there was a whole list of things from the obvious to just eating something your system doesn't like or not getting enough rest. He is convinced Disneyworld put me over the top because I wasn't following my elimination diet, ate more sugar (in the form of fruit and maple syrup) than normal and wasn't getting enough rest. He thinks I did okay on the cruise because I was getting plenty of rest and my only eating sin was extra fruit. It's like how on earth can anyone get better if EVERYTHING turns out to be a stressor, lol. Truly, you all are the only ones who can related to it.

Georgie - could be Lyme. After reading about it lately, it seems like it might be much more common than people think.

Mia - I'm sort of opposite, since I've been sick having things to do makes me overwhelmed and a little mad, lol. I don't have the energy to do anything so I just don't do it.

CarlaB Enthusiast

I used to do things like Mia, "If I don't do it now, I certainly won't do it later." But now I find I physically cannot do things I used to do. If I try, I will get dizzy and worry about falling down. I've never actually fainted, but I've come close.

miamia Rookie
Ha, when I lived in Hawaii, it was really hard to get used to Christmas...it just didn't seem natural for it to be near 70, lol.

Speaking of becoming more sensitive. The one thing I DO remember the doctor saying yesterday, is that since I have adrenal fatigue and all this other stuff going on that it only takes a little extra stress to push me over the edge...stress can be anything out of the ordinary, and there was a whole list of things from the obvious to just eating something your system doesn't like or not getting enough rest. He is convinced Disneyworld put me over the top because I wasn't following my elimination diet, ate more sugar (in the form of fruit and maple syrup) than normal and wasn't getting enough rest. He thinks I did okay on the cruise because I was getting plenty of rest and my only eating sin was extra fruit. It's like how on earth can anyone get better if EVERYTHING turns out to be a stressor, lol. Truly, you all are the only ones who can related to it.

Georgie - could be Lyme. After reading about it lately, it seems like it might be much more common than people think.

Mia - I'm sort of opposite, since I've been sick having things to do makes me overwhelmed and a little mad, lol. I don't have the energy to do anything so I just don't do it.

oh no donna-

I didn't mean I am overly productive- and I feel the sme way I get really overwhelmed and angry when I ahve stuff that I ahve to do so I freak out and feel like I have to get it done right away - this usally ends with me feeling really crappy but I just can';t stand knowing there is anything to do it drives me insane

jerseyangel Proficient
oh no donna-

I didn't mean I am overly productive- and I feel the sme way I get really overwhelmed and angry when I ahve stuff that I ahve to do so I freak out and feel like I have to get it done right away - this usally ends with me feeling really crappy but I just can';t stand knowing there is anything to do it drives me insane

I'm like that, too. Especially now, with the holidays and everything.

I go to the hospital for my surgery in 2 weeks. I am so afraid of eating while there. I plan to bring everything I need with me--but have no idea what shape I'll be in after the surgery. I am thinking this thing to death, and honestly, it's driving me nuts.

After I get home, the recovery period is 6 weeks. The last tme I had abdominal surgery, (a c-section), I did too much too soon and developed adhesions--which I still feel after 22 years. The doctor is fixing those and my old scar, but this time, I want to give myself time to heal correctly. I am terrible at asking for help--just yesterday I told my parents to wait to come down until after I was feeling better. Can't stand the thought of someone doing my housework for me as I lay around. It's just is the way I am.

My husband says he and Matt will pick up the slack--they will, but I know this whole thing is going to be hard. I may hire someone to come in once a week to do the basics. I'm just overwhelmed, and I haven't even let myself thing about the surgery itself--just all the other stuff.

I wish I could go to sleep and wake up in February!

Judyin Philly Enthusiast

PATTI WROTE-

I didn't feel well after eating them, and now have developed a yeast infection I think it must be from all of the excess sugar. I just can't believe how sensitive my system had become. I was so careful to use safe ingredients--none of anything I'm sensitive to.

What the heck are we gonna do??? I thought by now, some of this would have cleared up, but I'm more sensitive than ever. Ugh! At least we have each other--people try, but just don't understand this type of thing.

I'm like that, too. Especially now, with the holidays and everything.

I go to the hospital for my surgery in 2 weeks. I am so afraid of eating while there. I plan to bring everything I need with me--but have no idea what shape I'll be in after the surgery. I am thinking this thing to death, and honestly, it's driving me nuts.

After I get home, the recovery period is 6 weeks. The last tme I had abdominal surgery, (a c-section), I did too much too soon and developed adhesions--which I still feel after 22 years. The doctor is fixing those and my old scar, but this time, I want to give myself time to heal correctly. I am terrible at asking for help--just yesterday I told my parents to wait to come down until after I was feeling better. Can't stand the thought of someone doing my housework for me as I lay around. It's just is the way I am.

My husband says he and Matt will pick up the slack--they will, but I know this whole thing is going to be hard. I may hire someone to come in once a week to do the basics. I'm just overwhelmed, and I haven't even let myself thing about the surgery itself--just all the other stuff.

I wish I could go to sleep and wake up in February!

HI PATTI

I'M SO SORRY YOUR FEELING LIKE THIS..THIS IS SO UNLIKE YOU TO SHARE A POST LIKE THIS. I'M SO GLAD YOU POSTED AS I THOUGHT YOU WERE 'HOLDING IT ALL TOGETHER....TO WELL' PLEASE TAKE THE ADVICE YOU ALWAYS GIVE US AND

BE GOOD TO YOUR SELF...STOP THAT INTERNAL CLOCK THAT'S SPINNING 1,000 MILES A MINUTE.

THERE ARE WORSE THINGS THAN 'HIRING SOMEONE TO HELP YOU CLEAN' GOOD GRIEF GIRL..6 WEEK RECOVERY AND YOU'LL GOT NUTS LOOKING AT ALL THE NEEDS TO BE DONE...PLEASE DO LOOK INTO HIRING SOME ONE.

I'D LET YOU USE MY 'DEAR FRIEND' BUT SHE DOESN'T CROSS THE BRIDGE EITHER..WE NEED SOME FEARLESS CLEANING LADIES.

DO YOU KNOW ANYONE WHO HAS ONE. NEVER TRIED THOSE.. MINI MAIDS ..NOT SURE I'D WANT TO BUT IF I WAS DESPERATE I SURE WOULD.

I THOUGHT YOUR VOICE SEEMED ALITTLE 'TENSE' THIS AM..I'M SO SORRY..YOU'VE ALWAYS BEEN THERE FOR ME..WAS I COULD HELP YOU NOW..

A CYBER HUG IS REALLY ALL I CAN GIVE OTHER THAN PRAYERS..WHICH YOU HAVE..

LOVE YOU PATTI

JUDY

jerseyangel Proficient

Aw, thanks Judy! I'm ok, really. Just nerves :lol:

The woman 2 doors down from me has a cleaning woman--I may ask her for her number.

Didn't mean to sound tense--I was doing laundry, and had to run to catch the phone before the machine picked up. :)

CarlaB Enthusiast

Patti, my pregnancies were rough and I usually had to hire someone to help clean. Once I got better, I wanted to get back to cleaning my own house, but it was a HUGE help to have someone come in to do it. I would have someone now, but Adam says to just have the kids do it .... it's not that we can't afford it, I think he just wants them to have the lesson of picking up the slack and helping when needed. After the doc visit in January, if it seems I'm going to be like this for months longer, I'll push for hiring someone then. Just ask around, I'm sure some of your friends know someone.

I think the samento might be causing a herx ... I got up and ate, and was going to go to the gym with Morgan. I knew I wouldn't be able to do much at the gym today, which happens often, but I ended up going back to bed instead, which is where I would be now if we weren't having our regular service on our heaters (LOL :P ). I just feel achy and tired. A little nauseous. All of it is "normal" for me, but has wiped me out more than normal. Feels like a bad hangover, which makes me wonder if alcohol causes a herx and that's why it makes those with Lyme feel so bad ... I mean, we kill bacteria with alcohol, it seems possible.

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    • cristiana
      My chest pain has been caused by costochondritis, as well as times when iron supplements has given me such bad bloating it has put pressure on my back and chest, and reflux can do the same. Also, along the lines of Wheatwacked's suggestion above, is it possible you had an injury to your chest/ribs way back that is being set off by either some sort of gastrointestinal bloating/discomfort? I distinctly remember really hurting a rib over forty years ago when I misjudged a wall and thought it was just behind me but in fact it wasn't.  I fell badly against the wall and I think I cracked a rib then.  For some strange reason I didn't tell anyone but I think had I gone to hospital an X-ray would have revealed a fracture. I think that rib has not been right since and I am sure that bloating makes it worse, as well as heavy lifting.
    • Dora77
      Sorry for the long post. I’m 18, and I was diagnosed with celiac disease and type 1 diabetes (T1D). My transglutaminase IgA was >128 U/mL, EMA IgA positive twice, and I’m HLA-DQ2 and DQ8 positive. I’ve been completely asymptomatic since diagnosis, even when I cheated with gluten sometimes in the past and used to eat out(2-5 years ago) I don’t get the typical celiac reactions, which makes it really hard to know when (or if) I’ve been glutened. But for the past year, I’ve been the most strict with my diet, and that’s also when a bunch of new issues started. I eat completely glutenfree, never eat out, dont eat food that says „may contain gluten“.   Current Health Problems • Floating, undigested stools for over a year now. Dont think its related to celiac as it was like this since im 17 and not 13-16( i got diagnosed at 13). • Chronic back pain started gradually, worsens with movement, lots of cracking/popping sounds. Been ongoing for a year now. First noticed in the gym. • Abdominal bulge on the right side, not painful but seems to be getting slightly bigger. Doctor didn’t find a hernia on ultrasound, but it was done lying down (I’ve read those can miss hernias). Noticed it like 6 months ago, couldve been there longer. • extremely dry and mildly swollen hands (this started before I started excessive hand-washing), and bloated face. • Signs of inattentive ADHD (noticed over the past 3 years), now combined with severe OCD focused on contamination and cross-contact. • Growth/puberty seemed to started after going gluten-free. Before that I was not developing. Dont know if any of these are because of celiac as my dad doesnt have those and he is a lot less strict gluten-free then me. I also had pancreatic elastase tested four times: values were 46 (very low), 236, 158, and 306 (normal). Gastroenterologist said one normal value is enough and I don’t have EPI. Family doctor prescribed Kreon anyway (after I pushed for it), and I just started taking 1 capsule (10,000 units) with meals 2 days ago, but couldn‘t see effects yet because I’ve been constipated the last few days. Maybe because of thyroid. I don’t have Hashimoto’s. No thyroid antibodies. But I took levothyroxine for slightly low FT4 levels. My thyroid levels fluctuated between borderline low and low-normal. And recently lowered my dose so that may have caused the constipating. I probably didn’t need it in the first place, and am thinking about stopping it soon.   Current Diet Right now, I only eat a very limited set of “safe” foods I prepare myself: • Gluten-free bread with tuna or cheese • Milk and cornflakes • gluten-free cookies/snacks • Bananas (the only fruit I trust right now) I rarely eat other fruits or vegetables, because I’m scared of contamination. My dad, who also has celiac but doesn’t care about CC, buys fruits, and he might’ve picked them up right after handling gluten bread. That makes me feel unsafe eating them. Even fruit at stores or markets feels risky because so many people with gluten on their hands touch them.   My Home Situation (Shared Kitchen) We’re a family of 5. Only my dad and I have celiac. He eats glutenfree but doesn’t care about CC and sometimes (but rarely) cheats. My mom and siblings eat gluten bread at every meal. My mom is honest (so if i ask her to be cautious, she most likely would try to), but doesn’t seem to understand how serious celiac is. She: • Stopped using gluten flour • only cooks gluten-free meals (but they still heat up gluten bread and also cook gluten noodles) • Keeps separate butter/jam/jars for me • Bought me a stainless steel pan Bu we didn’t replace old wooden utensils, cutting boards, or other pans. The new they bought me pan was even carried home in a shopping bag with gluten bread in it, which triggered my OCD. It also has a rubber handle and I’m scared it might still hold onto gluten. Even if it’s washed well, it’s stored next to other pans that were used for gluten food/bread. Our kitchen table is used for eating gluten bread daily. My mom wipes it but not with soap. I’m scared tiny particles remain. If she made gluten-free bread dough on a board at the table, I’d still worry about cross contmaination contamination even with something under the dough and on the table as at one point the dough would probably touch the table. So I stopped eating anything she makes.   I know OCD is making it worse, but I can’t tell how much of my fear is real and how much is anxiety. Examples: • I wash my hands 20–30 times a day — before eating, after touching anything at home or outside, after using my phone/laptop. • I don’t let others touch my phone, and I’m scared to use my laptop because friends at school or my brother (who eat gluten) have touched it. And it annoys me a lot when others touch my stuff and feels like it got contaminated and is unsafe instantly. • I stopped eating while using my phone or laptop, afraid of invisible gluten being on them. • I wash my hands after opening food packaging (since it was on store cashier belts where gluten food is placed). • I avoid sitting anywhere except my bed or one clean chair. • I won’t shake hands with anyone or walk past people eating gluten. • At school, when switching classes, I wash my hands before getting out my laptop, again before opening it, etc. • I open door knobs with my elbows instead my hands   Job Concerns (Powder Coating, Sandblasting, Etc.) I’m working a temporary job right now that involves: • Powder coating • Sandblasting • Wet spray painting • Anodizing There’s also a laboratory. I don’t need this job, and my OCD makes me believe that dust or air particles there might contain gluten somehow. Should I quit?   Doctors Haven’t Helped My family doctor told me: “Asymptomatic celiac isn’t serious, if you have no symptoms, your intestines won’t get damaged, so you don’t need a gluten-free diet.” I knew that was wrong, but he wasn’t open to listening. I just nodded and didn‘t argue. My gastroenterologist (who’s also a dietitian) said: „If your antibodies are negative, there’s no damage. It might even be okay to try small amounts of gluten later if antibodies stay negative.“ Also said, pepper that says “may contain gluten” is fine if it only contains pepper. She was more informed than my family doctor but didn’t seem to fully understand celiac either.   Questions I Need Help With 1. Is it realistically safe to eat food my mom cooks, if we get separate pans/ and boards even if gluten is still used in the same kitchen? There will always be low risk of cc chances like that she will still touch stuff that was touched by her and my siblings after they ate gluten. And as there are gluten eaters in the house and she also prepares and eats gluten. So would opening the fridge then getting the food and touching the food be okay? So basically what i am doing, washing my hands multiple times while preparing food, she would only wash it once before, then touch anything else (for example water tap or handles) that were touched with gluteny hands, then also touch the food. I dont know if I ever could feel safe, I could try telling her how important cc really is. And I trust her so she wouldnt lie to me then be careless about cc, but idk how safe it really can be if she and everyone else keeps eating gluten and touching stuff in the house after eating. 2. Do I need to worry about touching doorknobs, fridge handles, light switches, etc. that family members touched after eating gluten? What about public places like bus handles or school desks? Or like if i went to the gym, I would be touching stuff all the time, so there will be small amounts of gluten and those would get transferred on my phone if I touch my phone while in the gym. But I want to knos if it would be enough to do damage. 3. Is an endoscopy (without biopsy) enough to tell if my intestines are healed? I’d pay privately if it could help and if i dont get a refferal. Or do i need a biopsy? 4. Could my job (powder coating, sandblasting, etc.) expose me to gluten or damage my intestines through air/dust? 5. Do I need certified gluten-free toothpaste, hand soap, shampoo, or moisturizer? (For example: Vaseline and Colgate don’t contain gluten ingredients but say they can’t guarantee it’s gluten-free.) 6. Is spices like pepper with “may contain traces of gluten” safe if no gluten ingredients are listed? Or does everything need to be labeled gluten-free?  7. Is continuing to only eat my own food the better choice, or could I eventually go back to eating what my mom cooks if she’s careful? 8. is cutlery from dishwasher safe if there are stains? Stuff like knives is used for cutting gluten bread or fork for noodles etc. I often see stains which i dont know if its gluten or something else but our dish washer doesnt seem to make it completely clean. 9. I wash my hands multiple times while preparing food. Do i need to do the same when touching my phone. Like if i touch the fridge handle, I wash my hands then touch the phone. I dont eat while using my phone but i leave it on my bed and pillow and my face could come in contact with where it was.  10. Do i need to clean my phone or laptop if theyve been used by people who eat gluten? Even if no crumbs fall onto my keybaord, i mean because of invisible gluten on their fingers. 11. Does medication/supplements have to be strictly glutenfree? One company said they couldn‘t guarantee if their probiotics don’t contain traces of gluten.  12. I had bought supplements in the past, some of them say glutenfree and some of them dont(like the brand „NOW“ from iherb). I bought them and used them when i wasnt washing my hands so often, are they still safe? As I touched and opened them after touching door knobs, water taps etc. It was like a year ago when i bought those and even though i was eating gluten-free, I never worried about what i touch etc. I know this post is long. I’m just extremely overwhelmed. I’m trying to protect myself from long-term health damage, but the OCD is destroying my quality of life, and I honestly don’t know what’s a reasonable level of caution anymore. Thanks for reading.
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