Celiac.com Sponsor (A1):


Celiac.com Sponsor (A1):


Archived

This topic is now archived and is closed to further replies.

chick2ba

Feeling 50% Or Less

Recommended Posts

I have very similar frustration and am a bit new to this. I also feel, where all my life I've eaten a very well-rounded, healthy diet, I have eliminated so much it seems there's about 5 things I can tolerate! Meats, salmon, fish and veggies and a little fruit seem okay. Yet things still are unpredictable and although I keep a detailed food log with symptoms on it, I'm still not always sure what caused a problem. And it does seem to have taken over my life. However, a few weeks ago I wrote down ALL the symptoms from big to small that I had been living with, then a couple days ago wrote which had lessened or gone away. I realized I really have improved somewhat and I am terrified to try gluten ever again. I've also had some weird allergic-type reactions in my throat to some things (nuts, soy...) which make me quite nervous of them as well. "Roller-coaster" is a good word for this experience. Please hang in there. Your body may just need more time. Acupuncture helps-it REALLY does.

lisa

I was thinking about trying Acupucture. How did you select who to go to and how did it help you? Thanks, LL

Share this post


Link to post
Share on other sites

It is good to know that healing takes time. I know I keep thinking that if I am not eating any gluten then I should be fine but I know I'm not and then there is the anxiety about what else could be wrong...other than what I already know. :rolleyes:

Ursula could you say a little more about lectins? Or do you have a link to the site you mentioned?

I have found Acupuncture very helpful in connecting me with my body and what my body needs. I am very interested in how others may feel it benefitted them.

Share this post


Link to post
Share on other sites
Guest laferriere

I was lucky to have a friend who recommended a wonderful acupunturist to me when I just COULD NOT get over a 2- month case of pneumonia a few years ago- she truly helped me. I think because my immune system was just way out of whack. Of course, she's in Portland, Me. and I see you are in Virginia. Ask co-workers or friends if anyone has seen one they like. Of course, you can always try one out and if it's not a good match, try again. I really can't emphasize enough how much I believe in it. I am also lucky to work in High School Spec. Ed program and have very good insurance so I have seen her through referral from my GP for "IBS" for a year or more. Oh yes, about Gatorade- that stuff is full of high fructose corn syrup which is getting a pretty good reputation for being bad for everyone. Why doesn't the food industry just leave our food alone??!!! Good luck to you!

lisa

I realized I forgot to say how it helps! It helps with pain, for sure! And I think just balancing and "quieting" my whole system.

lisa

Share this post


Link to post
Share on other sites
Hi everyone,

I am in a similar situation, 5 months of diet (tested positive to gluten intolerace with enterolab) and recovering veeery slowly. I've been recently reading a lot of material about heavy metal toxicity especially about dental amalgams, and I was amazed to read how many people discover that their problems are related to the mercury fillings.

Without going too much into details, the mercury contained in those dark grey fillings is slowly released and accumulated in certain organs (liver, kidneys, intestine) and after a number of years it can cause serious problems, it just depends on how strong is your body and immune system.

So I guess people with celiac and/or intolerances should be concerned with this aspect, maybe the fillings are not the cause of our problems but they can seriuosly contribute to depress the immune system and slow down or even paralize the recovery.

It's unbelievable to read that dentists have to take so many cares about handling the mercury: don't touch with hands, keep in ubreakable containers, work in well-ventilated spaces, avoid heating the mercury, preserve the amalgam scrap under water... but then it goes straight in our mouth, where it slowly corrodes in years and it's transported all over! :o:o

I guess it's important to eliminate check and possibly eliminate all the sources of "stress" for our body.

You can find a lot of info around the web and there're also several books on the topic, I can provide links and titles if anyone is interested.

I had my amalgam fillings all replaced about ten years ago. The dentist did half one day, then the other half another day because he didn't want all that mercury released all at once. He had me take various antioxidants to get rid of the metal in my system. I found that if I was away from home and missed the time for the glutathione, I would start feeling sick. I felt like I had a bad case of the flu the first few days. There definately was a detox period with having them removed. I did not know about my gluten intolerance back then, but it did make me feel somewhat better having them removed. He took all kinds of precautions in his office to address all the mercury being released into the air. I am glad I had it done.

Share this post


Link to post
Share on other sites
Ursula could you say a little more about lectins? Or do you have a link to the site you mentioned?

I have found Acupuncture very helpful in connecting me with my body and what my body needs. I am very interested in how others may feel it benefitted them.

Rinne,

Ursula has a link to the lectins in her signature...if you scroll up you can see it.

I tried acupuncture but I only went like 3 times and didnt notice anything. I was nervous cuz my mom was paying alot of money to have me go and I didnt want it to be a waste for her if it didnt help so I stopped going. I do believe in it but maybe I needed to see a different accupuncturist or maybe I didnt have enough treatments.

Share this post


Link to post
Share on other sites
I was lucky to have a friend who recommended a wonderful acupunturist to me when I just COULD NOT get over a 2- month case of pneumonia a few years ago- she truly helped me. I think because my immune system was just way out of whack. Of course, she's in Portland, Me. and I see you are in Virginia. Ask co-workers or friends if anyone has seen one they like. Of course, you can always try one out and if it's not a good match, try again. I really can't emphasize enough how much I believe in it. I am also lucky to work in High School Spec. Ed program and have very good insurance so I have seen her through referral from my GP for "IBS" for a year or more. Oh yes, about Gatorade- that stuff is full of high fructose corn syrup which is getting a pretty good reputation for being bad for everyone. Why doesn't the food industry just leave our food alone??!!! Good luck to you!

lisa

I realized I forgot to say how it helps! It helps with pain, for sure! And I think just balancing and "quieting" my whole system.

lisa

My dentist is not allowed to do it & I have so many but for last several years I have had composite material put in when an old one need replacing or a new one put in. I like to think it helps. I used to get HEAL magazine (allergies) and writers there sure thought it was worthwhile to have removal of amalgam fillings. I do think could have started a lot of my problems. good day! evie ;)

Share this post


Link to post
Share on other sites
Guest laferriere

Yes, acupuncture takes more time. A six-week program of once a week is a good beginning.

Share this post


Link to post
Share on other sites
I had my amalgam fillings all replaced about ten years ago. The dentist did half one day, then the other half another day because he didn't want all that mercury released all at once. He had me take various antioxidants to get rid of the metal in my system. I found that if I was away from home and missed the time for the glutathione, I would start feeling sick. I felt like I had a bad case of the flu the first few days. There definately was a detox period with having them removed. I did not know about my gluten intolerance back then, but it did make me feel somewhat better having them removed. He took all kinds of precautions in his office to address all the mercury being released into the air. I am glad I had it done.

Sounds like a really good dentist. Do you remember the antioxidants? Not familiar with glutathione.

Share this post


Link to post
Share on other sites

Welcome to the board. I myself am almost a year into the diet. I still have ups and downs. I find if I stay away from too much starches and especially processed gluten free food I am usually ok. Like you Lister, I still will have a week with like 5 or 6 good days and 1 or 2 bad ones. But, it used to be 5 bad and 2 good.

I. would suggest that both of you try enzymes before eating. This helps with digestion and gas and bloating.

Chick- I would also look into candida overgrowth, bacteria or parasites. This is quite common with celiacs. The diet you are currently eating would be making you feel much worse if you have any of these things going on. I echo what others have said about meat, veggies and very importantly foods that are processed and have sugar. Good luck and hang in there!

Share this post


Link to post
Share on other sites
Sounds like a really good dentist. Do you remember the antioxidants? Not familiar with glutathione.

No, I don't remember the antioxidants ... it's been a long time! I just remember glutathione because I had to look all over for it and it was the one that I could tell if I missed it. I believe it's an amino acid.

For those of you in Indiana ... he is Dr. Gary Walton in Indianapolis. I was very pleased with him; if I still lived there, I would still go to him. He gave me a pamphlet that had the list of antioxidants, so I don't know if you could find something like that online.

Share this post


Link to post
Share on other sites

For those talking about amalgams...I would like to have my remaining ones removed also. I got 4 crowns last year and I know they use some kind of metal base to secure them. I have 4 more crowns that need to be done and two other fillings aside from that. The crowns should take care of most of the problem, I just don't have the money with getting the enterolab stuff done. Also, I'm breastfeeding and don't want to add even more mercury to the little one who got enough with the last proceedures while I was pregnant.

Share this post


Link to post
Share on other sites

I got my amalgams removed 2 years back because I thought maybe it was contributing to my problems but for me it didnt make a difference. I had alot of testing for heavy metal toxicity too but they were all negative. I still wonder sometimes though. <_<

Share this post


Link to post
Share on other sites


  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17):




  • Forum Discussions

    Chances are if you have lumps on your body for years and the Dr. isn't concerned they're probably not lymph nodes. Chronically swollen lymph nodes would be something every Dr. would be concerned with.  Chances are you just have cysts ...
    It's different  for everyone, it can be a month or maybe a year. Most probably within a few months. This is assuming the symptoms are in fact related to gluten, which they may not be. 
    Hi Laura I'm so pleased you found answers.  This is very encouraging.  Seven years on from my own diagnosis I wish I could have some vitamin and mineral screening, I'm sure I'm still deficient. Cristiana