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DingoGirl

Celiac Conference In Stanford, Ca - Sept '06

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This is really great, girls! I'm so excited about it. Yes, we must meet each other in person! Karen - maybe the baby will come early - or late - - ;) would be great if she could go. Can she get us discounts? I am so broke.... :huh:

Susan - I'll ask my sister about it, can't hurt. I'll let you know what I find out.

As far as driving around in the bay area, it's really not bad. I live in L.A, and I think the drivers in northern California are a lot more mellow than here. I'm afraid I've become one of those aggressive drivers.


Karen

gluten-free since March 05

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I tend to agree with you Karen, the further south I have gone the more agressive the driving gets. That has been my experience anyway. If it get's too bad, just get in the car and start driving north! :lol: Keep going and we can all meet up someplace and eat! :D


Nostaglia is a file that removes the rough edges from the good old days!!!!

" 15 years of it's stress!"

"blood work show's a disease called celiac,

but it can't be that because it's rare!"

Diagnosed via blood and biopsy 2003

Not a medical professional just a silly celiac

offering support, my

experience and advice

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He Susan:

You were probably an agressive driver due to the gluten you were consuming! :D:PB)


Nostaglia is a file that removes the rough edges from the good old days!!!!

" 15 years of it's stress!"

"blood work show's a disease called celiac,

but it can't be that because it's rare!"

Diagnosed via blood and biopsy 2003

Not a medical professional just a silly celiac

offering support, my

experience and advice

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He Susan:

You were probably an agressive driver due to the gluten you were consuming! :D:PB)

OMG Sally, you have no idea how true this is! Gluten really messed up my brain and emotions, was emotionaly labile for most of my life, esp. in my teens through early thirties....definitely gluten! Could not get from point A to B fast enough.....now I'm mellow and it's a much better - and safer - driving experience for everybody, believe, me... :lol:


SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

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Oo, this looks interesting! I might have to sign up.

Well, here's a tip I can give you about travel. See if there is ANY way possible you can fly into the San Jose airport (about a 1/2 hour south of Palo Alto) instead of San FRancisco - - - that place, and driving out of there, is a freaking nightmare!!! And you don't want to start out your trip wtih a nervous breakdown... :blink:

It all depends on the airline. SFO is best for United. San Jose and Oakland are often cheaper for many airlines, particularly Southwest and Alaska. If I lived closer to SJ, I'd definitely pick that one to avoid driving over bridges.


Gluten free since Feb 2006, Dairy and Soy free since 2009

Anemic off and on since 2003

Negative tTG Ab, IgA, Gliadin Ab IgA, wheat allergy (IgE) blood tests (Feb 2006)

Positive wheat allergy skin test(Apr 2006)and dietary response (Feb 2006)

Celiac grandmother (Dx in 1940s, "grew out of it")

Training for my first triathlon to support the Crohn's and Colitis Foundation of America.

~Amy

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OMG Sally, you have no idea how true this is! Gluten really messed up my brain and emotions, was emotionaly labile for most of my life, esp. in my teens through early thirties....definitely gluten! Could not get from point A to B fast enough.....now I'm mellow and it's a much better - and safer - driving experience for everybody, believe, me... :lol:

Now that made me smile. Glad you are doing so much better! :D


Nostaglia is a file that removes the rough edges from the good old days!!!!

" 15 years of it's stress!"

"blood work show's a disease called celiac,

but it can't be that because it's rare!"

Diagnosed via blood and biopsy 2003

Not a medical professional just a silly celiac

offering support, my

experience and advice

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i run the teen program and the kids program every year, and do set up the night beofre every year, a really good conference! but sign up extremely earrly cause the reg goes really really really fast and it is in a small facility b/c the bigger one raised the price a LOT cause my dad didn't work there anymore so we couldn't get it for the cheaper price.

and about next year, the dates change every year, last year it was in november.


Molly

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Guest BERNESES

Oh my gosh- I really want to go!!!!!!!!!!!!!!!!!

I'm cracking up about all you California drivers. having lived in both San Francisco and Boston, I can honestly say if you think the Bay Area is bad.....try Boston. Talk about road rage....gluten or no gluten!!!!!!!!!!!!!

I'm going to look into plane tix.

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i would just say that before you book the plane tix, get the regestraion becasue we do not let in peple who have not registered. here is all the info

http://www.celiacsprue.org/

Well, here's a tip I can give you about travel. See if there is ANY way possible you can fly into the San Jose airport (about a 1/2 hour south of Palo Alto) instead of San FRancisco - - - that place, and driving out of there, is a freaking nightmare!!! And you don't want to start out your trip wtih a nervous breakdown... :blink:

I'm so excited for you, and we'll have to have an area where all of us from this forum meet up!

I would actually say that they have been changing the SJ airport so much that it is very stressful w/ all the construction SF is really easy during non commute hours/

and yes we should meet up, Scott is usually there and I will be the girl who is frantically running around yelling at the adults b/c the forgot the ovens for the teen cooking program!


Molly

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Molly - - so you're helping with this! Awesome! It would be great to meet everyone and great to meet Scott. I just registered so I'm IN! didn't know about all the construction at SJ airport. Am driving there, styaying at best friend's - with dingos - in Willow Glenn, whihc I think is about a half-hour away, as I remember correctly.

I'm really looking forward to it!


SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

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im from stanford campus so we use SJ a lot and every time we go there it is differnt than the last time we were there. but your friend should be able to help you w/ directions to her house, never heard of willow glenn...

i think this is the 6th year that we have had this conference and this is my 4th year doing the kids/teens programs

its a good conference, yet i have never gone to the speakers be\/c i am always with the teens program.


Molly

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I just registered, so I'm set.

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Yay, Donna! We'll meet in person.

Molly, what do you mean you're at Stanford Campus? Um, you're a bit young for college, aren't you? (here's a secret - it's my dad's Alma Mater and I went to every Big Game there was.....what a hoot and I LOVE Stanford very much)......

Willow Glenn is in San Jose, Bird Ave. exit off 280. They're my extended family and I'm there a lot.


SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

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Okay, I think I'll register now...I was concerned about the price for a family of 5. $385 if we register before Sept., not to mention the gas money!! :huh: But if you guys are going to pay for plane tickets to go, then I really don't have anything to complain about. It is only a 3 hour drive for us! I've been wanting to go for the past 3 years. I just have to bite the bullet and get registered. Anyone know of a good (safe) place to have dinner after the conference?

Molly, they won't be taking the kids off-site to swim this year will they? That is what stopped us from going last year. My husband is a security freak and he would not allow the kids to participate in that. He already worries about just having them be in a different area of the conference with out us!


~West Coast-Central California~

Mariann, gluten intolerant and mother of 3 gluten intolerant children

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Wow I guess there prices are going up. Can one of you stay with the kids it he is that concerned about them? The 2 years I went they had so much food I wasn't hungry for dinner. Of course that never stops kids from eating! :lol:


Nostaglia is a file that removes the rough edges from the good old days!!!!

" 15 years of it's stress!"

"blood work show's a disease called celiac,

but it can't be that because it's rare!"

Diagnosed via blood and biopsy 2003

Not a medical professional just a silly celiac

offering support, my

experience and advice

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I'm paying for a plane ticket, hotel for 2 nights, car rental...and incidentals. That's how important I felt it was for me to be there. Not to mention, dh has to take some time off of work to stay home with the 3 kids. No way could we afford for all of us to fly to California for a weekend. =)

I really wanted to take my daughter, but she *just* turned 5 and she's way tiny and very behind in maturity level (thanks gluten) so I didn't feel she'd be able to seperate from me and go with the kids program. Next year!!!!


Jayhawkmom -

Mom of three....

Jay - 11

Bean - 8

Ian - 3

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Susan,

I finally checked out this thread and now I really wanna go!! :D

How do I register and how much does it cost?? I got scared after I saw Marianne's post quoting $385. :blink:

If thats what it costs I know I cant go. :(


Rachel

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go to www.celiacsprue.org, and click on the conference page.

adult reg is $95, but it is worth it

and i don't think we are taking the kids off site this year we did that 2 years ago but not last year, last year it was really fun for the kids and they all really liked it.


Molly

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Rachel, Molly's right, it's $95 (plus the cost of gas.....and you're not that far!) I just signed up yesterday to be guaranteed a spot. Can't wait! Just sign yourself up, it'll be such a great day!

:):):)


SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

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and i don't think we are taking the kids off site this year we did that 2 years ago but not last year, last year it was really fun for the kids and they all really liked it.

Was that 2 years ago?? Man time flies. I think last year there was a schedule conflict...

It is $95/adults and $65/kids over 5. I really want my kids to go with me which is why it will cost us so much. I feel it is important that they get to spend time with other kids with the same dietary restrictions. And I really think it would make an impression on them to be able to go somewhere and be able to eat ANYTHING that is being served. It just doesn't happen anywhere but at home.

I am going to buy the tickets this Monday (payday) and then I will have no excuses not to go. My husband wants to go with us too. He isn't gluten free, but he does have gluten intolerance genes, is lactose intolerant and has some health issues that could be gluten related. He is open to learning more about it and I think it would help him to decide if he wants to go ahead and either get tested or just go on the diet with the rest of us. Not to mention that he doesn't like us traveling out of town without him...the safety issue again. I don't mind, I hate traveling alone with the kids anyhow and he feels the need to protect us. :D I think it is sweet.


~West Coast-Central California~

Mariann, gluten intolerant and mother of 3 gluten intolerant children

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Wow - I've been so busy this week; I haven't had a chance to check the message board. Molly thanks for all the great information! I was hoping to get some info from my sister who works at Stanford, but I can't get a hold of her. I think she is out of town. Anyhow, I just went ahead and registered. I didn't want to leave it too late and have them fill-up. Looks like a great conference. I'm looking forward to it.


Karen

gluten-free since March 05

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Ok I am going. Now we have to have a place and time to meet up. :D I am so excited


Nostaglia is a file that removes the rough edges from the good old days!!!!

" 15 years of it's stress!"

"blood work show's a disease called celiac,

but it can't be that because it's rare!"

Diagnosed via blood and biopsy 2003

Not a medical professional just a silly celiac

offering support, my

experience and advice

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Hello All,

I am new to this forum - just signed up today - and signed up to attend the Stanford Celiac Conference. Hope to meet some of you there. Still struggling to avoid being "glutened" by accident and can use any advice I can get.

Cheers,

Katja


Diagnosed and gluten-free since March 06

positive bloodwork, no biopsie

Lactose Intolerant

allergic to Eggs, dairy, and Casein

3 years of misdiagnosis

Some sort of digestive problem all my life

trying hard to not be "glutened" - longest period yet: 4 weeks! YAY!

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