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chgomom

You're Know You're A Celiac If...

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You know you're a celiac if...

...you've ever been caught licking a discarded Twinkie wrapper.

...at Christmas, visions of guar gum dance in your head.

...you've ever had to give a doctor a crash course in Celiac 101.

...you weep at picnics, parties, receptions and fast food joints.

...you weep at breakfast, lunch, and dinner.

...you've ever "brown bagged it" to an elegant dinner engagement.

...a 7 Course Meal is a 1 Course Meal for you. Lettuce.

...you've installed floor-to-ceiling bookcases in your bathroom.

...you've ever driven more than 40 miles to buy flour or a cookie.

...it takes you 4 hours to grocery shop and your eyesight is

ruined.

...you hyperventilate when passing by the bakery counter.

...you've ever deliberately rammed your cart into a Shredded Wheat

display in a fit of rage.

...you've ever had to take out a loan to pay the grocery bill.

...you'd gladly pay any price for a pretzel that doesn't taste like

sawdust, or bread that doesn't taste like an old shoe.

...the centerpiece on your dining room table is a bread machine with memorial candles.

...your bread looks like a moon rock and tastes like dried out Play

Doh.

...your bread weighs more than any moon rock could possibly weigh.

...one of your primary goals in life is to create "Fake Oreo

Cookies".

...you've disinherited loved ones for putting their knife in your

mayo.


Quod me nutrit, me destruit

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I don't have anything to add........ :lol::lol::lol:


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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I actually did that. And the airlines and the cruise line searched my suitcase twice! Probably thought I was a whacko. :blink:

:ph34r::blink::lol:

They obviously hadn't met too many celiacs.


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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.........You pace and circle the store three or four times when deciding on a new product, pick it up look at the ingredients, each time. Only to leave without it, figuring why bother.

Boy, do I relate to that. :blink:


Valda

Enterolab results: ...two genes for gluten intolerance ...casein intolerance

other sensitivities: corn, eggs, soy, potato, tapioca

Hypoglycemic

Sensitivity to high EMFs [electromagnetic frequency] (limits my time in front of the computer)

Living a healthier, happier life.

-------------------------------------------------------------------------------------------------------------------

If I take the wings of the morning, and dwell in the uttermost parts of the sea, even there shall thy hand lead me, and thy right hand shall hold me.Psalm 139: 9,10

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Guest Kathy Ann

.......your financial portfolio consists of stock in two major toilet paper companies.

.......you are up late at night trying to develop a recipe for pizza without flour, cheese, yeast, tomatoes, beef, garlic and oregano.

.......you can spell transglutaminase and dermetitis herpetiformis.

.......you just discovered how to make flour out of turnips.

.......you show up at the annual church pancake breakfast with a mask and sardine lettuce rollups

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.......your financial portfolio consists of stock in two major toilet paper companies.

.......you are up late at night trying to develop a recipe for pizza without flour, cheese, yeast, tomatoes, beef, garlic and oregano.

.......you can spell transglutaminase and dermetitis herpetiformis.

.......you just discovered how to make flour out of turnips.

.......you show up at the annual church pancake breakfast with a mask and sardine lettuce rollups

hahahah... :lol:

I can't think of anything... I've only been a certified Celiac for three days now. :(


"I have failed and that is why I succeed."

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Kathy Ann,

Those are great!

:lol::lol::lol::lol::lol::lol:


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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....having solid poop is the highlight of your day.

....you have actually doodled a new cartoon dog on your notes named "Sprue"

.....you have a sign in your kitchen saying "Gluten free environment"

.....you have actually considered using a gluten-free bagel for a hockey puck

:P


Mrs. Tholen

Eat. Sleep. Research

Diagnosed w/DH August 17, 2006

Diagnosed w/ Celiac Sprue Oct. 2, 2006

October 11th, 2006 confirmed healing intestine.

Gluten-free since August 18, 2006

IgA test August 17th confirmed diagnosis

Chronic Hives for 3 years

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.......you can spell transglutaminase and dermetitis herpetiformis.

haha just incase you are practicing the spelling.............................dermAtitis herpetiformis :lol:


Jessica

Gluten Free since 12-31-2002!!

Kansas

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...you've mastered saying "I actually enjoy MY food" ... without your face twitching ... :D Marcia


Jan 1990 - Dx CFS/ME/FM (URI's, Ataxia, myoclonus, orthostatic hypotension, insomnia, brain fog, swollen lymph nodes, sore throat... ) Completely Disabled (housebound and bedridden at times)

2004 - Digestive pain all the time.

May 2004 - Hiatal hernia, erosive gastritis, gastroparesis (endoscopy)

August 2004 - Colon polyps, diverticulitus, internal hemorrhoids (colonoscopy)

No relief from Nexium, Prilosec, Protonix, Zelnorm, Miralax, Imodium, Lomotil ...

July 2005 - GP recommended WFDFSFEFCF + vegan (Also, anything that hurts free)

Immediately stopped needing naps and digestive pain reduced.

Sept 2005 - GFDFCFSFEF + chemical free - Immediately stopped feeling jittery / buzzing and digestive issues were much better.

June 2006 - Dx B12 and iron deficient. Started B12 injections and using cast iron pan.

August 2006 - MYOCLONUS GONE. (off Klonopin)

September 2006 - ATAXIA, INSOMNIA and Feeling like the floor was moving under my feet gone.

June 19, 2007 - Positive DQ2, Dx Celiac

October 2007 - Sleeping like a baby, waking up with energy, but still having fatigue/stamina issues

Nov 2007 - Started Paleo diet for chronic hypoglycemia

April 2008 - GTT normal. I'm no longer hypoglycemic. Started Low oxalate diet for kidney stones.

May 1, 2008 - Began salt loading for OI/NMH - noticed immediately muscle weakness was gone. I was sodium deficient but my labs don't reflect it. Still working on OI and PEM.

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...you know all about xanthan gum and its uses.

...you have ever dreamt about Wonder Bread.


Richard

"Not all who wander are lost" - J.R.R. Tolkien

Diagnosed 3/8/05

Sister also Celiac

Risus remedium optimum est

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... you hide the gluten-free cookies when guests come over, so they dont eat them.


Sandy

Type 1 diabetes - 1986

hypothyroid -1993

pernicious anemia

premature atrial beats

neuropathy

retinopathy

daughter is: age 15

central hypotonia and developmental delay

balance issues (rides an adult 3 wheel bike)

hypothyroid 1996

dermatographia - a form of angioedema 2002

celiac 2004 - by endoscopy

diagnosed Aspergers at age 7 - responded very well (HUGE difference) to gluten-free diet

recovered from Kawasaki (2003)

lactose intolerant - figured out in Oct/06

Gilberts syndrome (April/07)

allergy to stinging insects

scoliosis Jan 2008

nightshade intolerance - figured out April 2008

allergy to Sulfa antibiotics

son is 13

type 1 diabetic - 2003 diagnosed on his 9th birthday

celiac - 2004 by endoscopy

lactose intolerant - figured out Nov/06

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You read the ingredient label on green tea - plain green tea.


Tiffany aka "Have I Mentioned Chocolate Lately?"

Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy

G.F. - September 2003; C.F. - July 2004

Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me

Bellevue, WA

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