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Possible Celiac

LOney

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LOney Rookie
LOney
Posted

I have suspected for a couple of weeks that my son (3.5 yrs) has celiac disease. We brought him to the ped, and he agrees that something is not right. His stomach is distended, he fluctuates between diarrhea and just large poops - always pale in color, he is lethargic, complains occasionally that his legs hurt, has reduced appetite, and has occasionally gagged on food when husband and I try to push him to eat more, and he is losing fat in his butt. We got labwork done and are still waiting back on celiac tests, but we brought him in to have an ultrasound because his other labs indicated a higher than normal white blood cell count. They saw inflammation in his small intestine, and just basically told us there is something going on in his small intestine. The GI doc said it definitely sounds like celiac, and crohn's under 10 years of age is fairly rare (my sister has it, so it was a question we had). We are going to Boston tomorrow for a consultation and then hopefully a biopsy the next morning - if not then the beginning of next week.

We have reduced but not taken out gluten completely because of a possible biopsy. My questions are: would we see any positive impact of even reducing the gluten, although not eliminating? I feel like I am poisoning him when I give him a bit each day - it makes me so angry to have to wait for the biopsy. Does this sound like celiac disease? Will they be able to tell anything else from an endoscopy - such as reflux ? I am questioning if we get positive labwork back if it is worth the agony of putting him through a biopsy.

I have been reading a lot and this is the first time posting. Thanks in advance for your help.

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