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radgirl

Tooth Decay And Very Noticeable Hair Loss

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Have any of you had tooth decay, i.e. cavities and gum problems due to gluten (although your dental hygiene was near perfect)?

Also, anyone here suffered(s) from noticeable hair loss - actual scalp shows?

I ask because these are two issues that I'm dealing with. I'm having my 2nd cavity in a year filled today. I'd like to hear people chime in.

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Celiac.com Sponsor (A8):

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Yes, I've had tooth issues. 11 cavities in about 18 months, with proper hygiene. This was shortly before I was diagnosed. I have also had hair loss issues, which I attributed to being hyperthyroid at the time.


Jennifer

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Have any of you had tooth decay, i.e. cavities and gum problems due to gluten (although your dental hygiene was near perfect)?

Also, anyone here suffered(s) from noticeable hair loss - actual scalp shows?

I ask because these are two issues that I'm dealing with. I'm having my 2nd cavity in a year filled today. I'd like to hear people chime in.

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I think lots will chime in on this one. Celiac does seriously effect our teeth in a great many cases. Many of us also have hair loss. Some due to nutrient deficincies and some due to autoimmune factors.

One thing I found helpful, other than avoiding gluten in my shampoos and such, was a good 'hair' vitamin. The one I take is by country life and is called Maxi Hair. I take Royal Jelly about once a day and it seems to help also.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Yes, yes, yes I had hair loss like you wouldn't believe. I went from hair just past my shoulders to hair just below my ears within a few days. I had gone to get my haircut on a Sunday and my hairdresser noticed a few bald spots on my head that were in the back and sort of covered by hair so I had not caught them. I thought it might be my thyroid so I went and had that checked and all was normal. By Tuesday my hair had dried up and sort of looked like pinestraw - and this was all over. By Thursday I had hair on one side of my head that was about three inches shorter than the other side, it all just started breaking off. It was horrible and I looked so sick to all of my co-workers. I can say that within about 6 weeks of going gluten free it all started to grow back. It is softer than it has ever been and is growing faster than I ever remember before. If you are really having this problem, I promise it will get better. While I was going through this problem I also started using Nioxon hair products, not cheap, but they seemed to help stop the situation from getting too much worse, added moisture to the hair and the scalp treatment is suppossed to help with hair growth. Can't say it will always work, but it was good for me.

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Oh yeah, oh yeah. I'd wash my hair and have tons of it left in the tub.....lots of it on my pillow in the morning. It also has become very dry and "tough", not at all soft like before. I've been wearing short hair for a long time now, think I might cut it even shorter. The mouth issue is a worrisome one. I once had a dentist tell me the enamal issues were because I brushed too hard and too much. Can you believe that? I don't go to him anymore! In the past year I have had many abcesses that do not respond to antibiotics. I've had 2 teeth break off at the roots, under the gumline. I think I'm going to be losing at least one, if not two more. I cried when the dentist told me this last one could not be saved and had to come out. Until I was almost 30, I had only 2 fillings and thought my teeth were forever, now I'm losing too many! I really don't know what to do about it! This, on top of feeling so sick and so very tired.....and they wonder why we get depressed?!?!


GOD IS GREAT, GOD IS GOOD, THANK YOU FOR OUR GLUTEN-FREE FOOD!

MUSIC IS THE BREATH OF LIFE

Theresa

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Both my teeth have gotten stronger as well as my hair and nails having gone gluten free and adding the more absorbable co-enzyme B vitamins and vitamin D plus digestive and fibronylitic enzymes. I no longer have tooth decay whereas I used to get a filling nearly every year. My gums are now healed too. My formerly thin straight hair now has body and waves. I can no longer peel my fingernails.


Diagnosed celiac sprue as infant: failure to thrive & pneumonia-back on grains age 4. Began herbs 1971 combating chronic kidney disease/general ill health 1973. Avoid wheat family and "allergens" by 1980. Late 80's doc. diagnosed candida: cave-man diet. Diagnosed degraded myelin sheath 2006; need co-enzyme B vitamins. Discovered celiac fall 2007; finally told diagnosis as infant. Recently found I am salicylic acid intolerant. Ironically can't tolerate most herbs now. Can now eat brown rice & other gluten-free grains (except corn) & even maple syrup & now homeopathic medicine works! Am still exploring the shape of this elephant but I've made progress!

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Oh wow, thank you everyone for chiming in on this. I was blown away to have had a 2nd cavity in about a years time. I was told by my new dentist that my old dentist did such a bad job on my teeth and gums, that my gum line was reseeding (sp?). I was 29 @ the time. I found that odd as could be, but now it's all finally making sense. I'm also on thyroid meds because I was convinced that I was hypoT. Now, I'm not so sure. I have a very noticeable piece of scalp that you can see on the top of my head. I've been losing my hair since I was about 16. As it is, it's very fine. So combine the two and you've got some problems. I've got impeccable dental hygiene and to have so many cavities and to be told that my gums are in bad shape nearly freaked me out. I'm blown away. This disease (whatever you'd like to call it) almost makes me feel like I'm anorexic without actually being so. We become so sick, so mal/undernourished. It's horrible.

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Oh wow, thank you everyone for chiming in on this. I was blown away to have had a 2nd cavity in about a years time. I was told by my new dentist that my old dentist did such a bad job on my teeth and gums, that my gum line was reseeding (sp?). I was 29 @ the time. I found that odd as could be, but now it's all finally making sense. I'm also on thyroid meds because I was convinced that I was hypoT. Now, I'm not so sure. I have a very noticeable piece of scalp that you can see on the top of my head. I've been losing my hair since I was about 16. As it is, it's very fine. So combine the two and you've got some problems. I've got impeccable dental hygiene and to have so many cavities and to be told that my gums are in bad shape nearly freaked me out. I'm blown away. This disease (whatever you'd like to call it) almost makes me feel like I'm anorexic without actually being so. We become so sick, so mal/undernourished. It's horrible.

Am so glad we are helping you. This stuff can be pretty darn scary. If its doing that to your hair and teeth, just think what its doing to your bones! Am hoping you have gone off all gluten meanwhile.

Just wanted to add that taking the fibronylitic enzyme combo of bromelain/papain plus nattokinase or serrapeptidase on an empty stomach with the co-enzyme B's turned this totally around for me--this was long after I was off almost all gluten. In one month I no longer needed to have gum work--when previously it was pretty bad. Try it out! The above firbronylitic enzymes also get rid of scar tissue in the intestines and thus help restore the villi sooner. Helps against old injuries too...and built up plaque in the blood vessels and heart...

The last 4 months I went off trace glutens that previously I wasn't aware of and am noticing if I don't wash my hair each day the second day its really wavy. Everyone thinks I have a perm or something but I just have a short layer cut. Pretty weird, eh? Hope you get good results too.

Just be careful of getting CC'd. It can be really shocking to your system! I am thinking of carrying around Rescue Remedy in case I get glutened inadvertently again--that is if RR doestn't have grain alcohol in it. A series of CC's whacked me out so much I got quite ill after not being for nearly 2 years.


Diagnosed celiac sprue as infant: failure to thrive & pneumonia-back on grains age 4. Began herbs 1971 combating chronic kidney disease/general ill health 1973. Avoid wheat family and "allergens" by 1980. Late 80's doc. diagnosed candida: cave-man diet. Diagnosed degraded myelin sheath 2006; need co-enzyme B vitamins. Discovered celiac fall 2007; finally told diagnosis as infant. Recently found I am salicylic acid intolerant. Ironically can't tolerate most herbs now. Can now eat brown rice & other gluten-free grains (except corn) & even maple syrup & now homeopathic medicine works! Am still exploring the shape of this elephant but I've made progress!

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I have had a bone density test as well. That came back normal. I will take a look at these supplements that you mentioned as well. I have taken Rescue Remedy, but I didn't know it could be useful for a glutening? How so? I know it does contain alcohol, but I think it is gluten free. I thought we didn't have to worry about alcohol? I am very watchful for CC. I was doing so much CC for a long time (I didn't know any better) that I should have eaten the straight gluten. I still have to be super careful with CC and certain foods. Who knows how long my body and mind have been suffering through this whole ordeal. I'd say at least the last 15 years. I'm so happy to know that I'm not alone. I have tons more questions as my health will always come into play. Someone please chime in about alcohol. I'm by no means a big drinker, but I do have one here and there. I also steer clear from malted alcohol.

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Both my teeth have gotten stronger as well as my hair and nails having gone gluten free and adding the more absorbable co-enzyme B vitamins and vitamin D plus digestive and fibronylitic enzymes. I no longer have tooth decay whereas I used to get a filling nearly every year. My gums are now healed too. My formerly thin straight hair now has body and waves. I can no longer peel my fingernails.

Also, where can I find these enzymes?

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16 cavities and I have to be in twlight sleep soon to get them fixed. I have an appt. Weds and I am terrified because my teeth are so sensitive air hurts them let alone a drill.

My hair has been thinning for about 4-5 years. Always thought it was from having my daughter or horomones but seeing this I guess it's allergy related.

So yes, I am there with you. My hygiene isn't perfect BUT neither is my husband's and he's had two problems in years and years.

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16 cavities and I have to be in twlight sleep soon to get them fixed. I have an appt. Weds and I am terrified because my teeth are so sensitive air hurts them let alone a drill.

My hair has been thinning for about 4-5 years. Always thought it was from having my daughter or horomones but seeing this I guess it's allergy related.

So yes, I am there with you. My hygiene isn't perfect BUT neither is my husband's and he's had two problems in years and years.

FSG, this is so frustrating. Every time I think I've got something figured out, BAM, we go right back to gluten being the problem. You name it, I've struggled with it and it all seems to have on common denominator. I simply want peace and good health. I want this to go away, although I know it never will It such a struggle and I hope and pray we all find resolve with it. Good grief, my teeth and hair! Lord knows what else (I pray nothing else), but who knows. I've had many cavities, but this one was a doozie. My tooth has been bothering me for month. They dentist didn't see anything. Finally, the hole appeared. The cavity started from the inside and move out! Not wide, but deep. No wonder it hurt. Not to mention the gum issue. Makes me want to pull my hair out, but can't because I need the little that's on my head.

Good luck with your appointment.

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My dentist seems to think my gums are receding more than my hair, but who's to know for sure? I didn't see her measure or anything. :) I know my gums were often sore prior to going gluten-free, but now are much better. Brushing and flossing all that good stuff didn't seem to keep them from getting sore before gluten-free. After gluten-free they seemed to take on a new life and start getting stronger I have taken calcium pills for years due to being lactose intolerant also, but that didn't keep my gums from getting in trouble. Baldness runs in my family so not too surprised about some hair loss. Then again, I was getting gray hairs at 20 so maybe I'm on the accelerated plan for some things. :o:lol:


Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."

Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.

Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, eggplant, celery, strawberries, pistachios, and hard work. Have a good day! 🙂 Paul

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Also, where can I find these enzymes?

I get them at the local herb and supplement store as well as Whole Foods. However I am certain you can order them online.

I get the Nature's Life bromelain & papain. I read they work together synergistically and thus make each other more effective. I get the Now nattokinase. Its cheaper than another variety I was purchasing and seems just as effective.

For enzymes to take with your meals you can use th bromelain/papain then too and/or take pancreatin or some general plant enzyme formula. I again like the Now brand for these since they are cheaper yet good and no gluten.

Another thing I have found for me is that its difficult for me to absorb just any old calcium. Fortunately now I can eat plain organic non fat yogurt--however that wasn't always the case. Long story short I got osteoporosis in my neck and general joint pain. Being off all gluten has helped however I also take mineral supplements. I found E-zorb the only calcium I could take that worked other than the stuff made from bones. Problem is is that I don't want mad cow disease later on. I have struggled with enough problems as is.

So I order the E-zorb. I get the powder since its cheaper. I actually found with it I have to take a low dose or otherwise I for once have too much calcium!! They claim its roughly 90% absorbable. Its made from plants so I believe it well could be. It was first created by the Chinese after many years of research --the research was done due to the fact 20% of their population doesn't absorb calcium very well. My mother recalled reading about it in Scientific American years ago however I haven't seen anything to corroborate it on the internet, however it does seem to work for me. I have gone on and off a few times and notice the difference, especially in my neck and fingernails.

I also take magnesium powder and liquid sea minerals plus kelp caps since I tend to go a little low thyroid otherwise.


Diagnosed celiac sprue as infant: failure to thrive & pneumonia-back on grains age 4. Began herbs 1971 combating chronic kidney disease/general ill health 1973. Avoid wheat family and "allergens" by 1980. Late 80's doc. diagnosed candida: cave-man diet. Diagnosed degraded myelin sheath 2006; need co-enzyme B vitamins. Discovered celiac fall 2007; finally told diagnosis as infant. Recently found I am salicylic acid intolerant. Ironically can't tolerate most herbs now. Can now eat brown rice & other gluten-free grains (except corn) & even maple syrup & now homeopathic medicine works! Am still exploring the shape of this elephant but I've made progress!

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Has your dentist mentioned dry mouth as a possibility? I'm one of those celiacs with Sjogren's so have severe dry mouth issues, which causes all sorts of tooth problems

There is this great (gluten free) prescription stuff, Caphosol,to remineralize your teeth, I love it-most dentists have never heard of it

http://www.caphosol-us.com/

I never had proper calcium levels until I got on high dose prescription vit. D. My vit D levels were pathetic

Vitamin D is a big issue right now-

http://www.chron.com/disp/story.mpl/front/5605118.html

http://dietary-supplements.info.nih.gov/fa...ts/vitamind.asp


I don't eat gluten and neither do my cats

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Pano, I'm so sorry to hear that. Looks like we are all in the same boat.

I'm now freaking out about the Crest Prohealth Rinse I've been using for MONTHS! Looks like I've been glutening myself some more? Is this an unsafe product for us to use?

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i HATE the upkeep with my teeth. its an ongoing battle despite flossing and brushing 2-3x a day. and a HEALTHY diet to booth! <_<

but your dentist can actually prescribe a toothpaste for you, which is gluten free, and it has TONS of extra flouride in it. it reeeeeeeeeeeeeeeeeeeeally helps.


Sara, Austin TX

Diagnosed Celiac Disease

2001 via endoscope

gluten free for 10 years!

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yes......I had really beautiful hair, strong and curly and suddenly they went dry and looking dead and I don't know what else to say....really bad...Now, after 3 months gluten-free they are better but still not great.....


Celiac September 2007

Graves disease June 2008

Candida overgrowth / started treatment November 2008

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I'm now freaking out about the Crest Prohealth Rinse I've been using for MONTHS! Looks like I've been glutening myself some more? Is this an unsafe product for us to use?

I spoke with the company about Crest a few months ago and was told that all Crest products were gluten-free. If you think it may be causing you problems, the best thing to do is call and ask :)


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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i HATE the upkeep with my teeth. its an ongoing battle despite flossing and brushing 2-3x a day. and a HEALTHY diet to booth! <_<

but your dentist can actually prescribe a toothpaste for you, which is gluten free, and it has TONS of extra flouride in it. it reeeeeeeeeeeeeeeeeeeeally helps.

Not to contradict, however for me just using baking soda to brush with works great. Plus it helps keep down the residual candida.


Diagnosed celiac sprue as infant: failure to thrive & pneumonia-back on grains age 4. Began herbs 1971 combating chronic kidney disease/general ill health 1973. Avoid wheat family and "allergens" by 1980. Late 80's doc. diagnosed candida: cave-man diet. Diagnosed degraded myelin sheath 2006; need co-enzyme B vitamins. Discovered celiac fall 2007; finally told diagnosis as infant. Recently found I am salicylic acid intolerant. Ironically can't tolerate most herbs now. Can now eat brown rice & other gluten-free grains (except corn) & even maple syrup & now homeopathic medicine works! Am still exploring the shape of this elephant but I've made progress!

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I spoke with the company about Crest a few months ago and was told that all Crest products were gluten-free. If you think it may be causing you problems, the best thing to do is call and ask :)

This is why I'm very concerned:

From their web site:

I am allergic to gluten. I would like to know if Crest Pro-Health products contain any type of gluten/wheat substances?

Pro Health Rinse does not directly add any ingredients that contain gluten , it is possible that the product could contain trace amounts. We recommend you contact your doctor before using Crest Pro-Health Rinse.

Pro Health Toothpaste: No current version of Crest Toothpaste contains gluten.

I understand the whole CYA deal, but this doesn't sit well with me at all.

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I understand the whole CYA deal, but this doesn't sit well with me at all.

I don't blame you....I hate when there seem to be different answers to the same questions depending on who you speak to.


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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I don't blame you....I hate when there seem to be different answers to the same questions depending on who you speak to.

Thank you for understanding my frustration. On another section of their website, it states that none of their products contain gluten. This is why I switched from Listerine to the Crest product. I don't think they understand that they are messing with the health and well-being of customers. To me, that statement says that basically their is a trace of gluten in their product and I'm not willing to play. I will try Tom's of Maine and see what happens. I'd like to know if the Wal-Mart/Equate store brand has any gluten in it.

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