Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This Celiac? If Not, What Is It?


cvll

Recommended Posts

cvll Apprentice

Here's my symptoms:

Super sticky/bulky? stools with blobs of white attached

Hair loss(very thin)

stomach aches

pretty sure I have some kind of dairy problem, so have given up completely(i was having constant mucas stools little bits at a time, gone now)

Very dry palms of hands and soles of feet

Feel like all my guts are falling out

Tired/irritable/etc.

Can't seem to gain a lot of weight even though I eat well/a lot

Bloating

Sometimes feel constipated

My mother has Sjorgens Syndrome

I was blood tested by a GI doctor back in Nov. and she said it all came back fine. Still feel like something is wrong. Also had abdominal/pelvic ct scans done and all fine too.

  • 1 month later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



leethinker Rookie

Hi cvll,

It looks like your post fell through the cracks here. Sorry you didn't get any replies at all!!! That's frustrating.

I don't know if you'll read this at all but I wanted to say that your symptoms seem to be celiac. I have not been diagnosed but from what I've read it seems like it could be celiac. I personally think that the blood tests can come back negative if the disease has just started developing. In other words, it might have been negative a year ago, but now (after continuing to eat gluten of course), you might get positive results.

I am definitely going to get tested even if original results were negative. You should too, unless you are willing to just skip the diagnosis and try a gluten-free diet. If your body responds well to it, it might be all you need! Good luck!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,201
    • Most Online (within 30 mins)
      7,748

    Judy Wysocki
    Newest Member
    Judy Wysocki
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
    • trents
      @JettaGirl, "Coeliac" is the British spelling of "celiac". Same disease. 
    • JettaGirl
      This may sound ridiculous but is this supposed to say Celiacs? I looked up Coeliacs because you never know, there’s a lot of diseases related to a disease that they come up with similar names for. It’s probably meant to say Celiacs but I just wanted to confirm.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.