Follow Up Testing?

[GFinBC]

I'm sure that someone on this board recommended that a short while after diagnosis that I should have my GP re-test my TTG. Did I make this up or is that a test that should be re-run to make sure that my numbers are in fact on the decline?

My doctor says that "they" (whomever they may be) only run the test as a diagnostic and that after that they will use my feritin levels as a marker for how I am doing (my only symptom was a very low iron level). My concern is that, as he has told me himself, there are some patients whose iron levels haven't elevated for years post diagnosis.

I would love any links to medical recommendations for any tests that are recommended that I can bring to him as he clearly has no idea about the disease and I am going to have to educate him .

[LDJofDenver]

Hello,

I was just diagnosed with Celiac Disease this past August.

My G.I. doc that I recently made an appointment with just ordered the blood work a couple weeks ago, stating that it's been six months so my levels should be re-checked. Now, my primary care doc would not have known this and probably never would have ordered a re-check. I would say persist and/or go to a knowledgeable G.I. doc if need be.

My G.I. doc also ordered an endoscopy, which my primary care doc never ordered when I was diagnosed. He (primary care doc) said the endoscopy was just to confirm diagnosis and it was unnecessary since my blood work was positive and I had a first-degree relative (an adult son) who had also been diagnosed with it. My G.I. doc says, not so. The endoscopy is important so they can view the level of damage and have a baseline for that as well.