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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About toomuchagony

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  1. How Soon After Eating It Do We Get Sick?

    With all due respect to gfp... regards "cleaning with bleach"... firstly, bleach is absolutely a "hostile" and "destructive" environment for BOTH "enzymes & proteins", and not only just "living organisims like bacteria, etc". Secondly, in cleaning with bleach the "lifting off of the dirt" is accomplished with "effort" I term it the "elbow grease" part of the process, after scrubbing with full strength bleach & a brush, one is advised strongly to "blot up the wet bleach" using "paper towel" (so it can be disposed of rather than just rinsed inadequately perhaps and wrung repeatedly in a rag), and then one further should take a clean rag and hot water and "rinse" the surfaces that were bleached, and finally again "blot the area DRY", in my own humble opinion a process which more than adequately "lifts dirt / germs / and gluten" OFF of the surface being cleaned. I would note personally I do wear a mask and rubber gloves during this process. All that said... lastly, my intended point was really "a need to CLEAN surfaces you store/prepare gluten free foods on which have been in contact with gluten and can not just be replaced, like cupboards", and was not really concerned with what actual "method of cleaning" that any given soul might wish to use to do so.
  2. Hi nora... thanks for yer reply (and thanks fer not giving me a well deserved chibe for transposing the acronym "DH" in my post eh All I know fer sure about my poor feet is they're remarkably better since I stopped gluten. Guess it could be "coincidence" (though I don't believe in them personally I believe in God), however the fact is that apart from my departure from gluten I have done absolutely NOTHING to "treat" my foot rash, and yet it is "changing". Also, this improvement began to occur nearly immediately after I began gluten free efforts, (though I was a few weeks at least still likely having major CC issues so it was slow then) it definetly however had a distinctly noticeable "raging flare up" in a direct and immediate response to the one particularly bad instance of me glutening myself by licking an envelope. It raged bad a week & half, now today (I think gluten free) they are once again demonstrating a significant "healing" and importantly (for me) are NOT ITCHING at all... so DH or no, my feet seem to like my current diet eh! Regards my query about the "gastric ulcers" and Celiac... I went to the "online medical encyclopedia" at the "College Of Family Physicians Of Canada" website today and used it to research gastric ulcers, and I noted two things from doing so... firstly, once again there is NO mention what so ever of "D" being one of the "symptoms" of gastric or peptic ulcers, and I most certainly had D occuring spuratically in January and then DAILY ongoing non-stop D from Feb 11 (my birthday wouldn't ya know eh right through until just this past Thursday, April 17th, so a "run" (no pun intended huh) of 66 full days straight. Also, I think notably, one of the chief symptoms of gastric type ulcers is "vomiting", I have never once through all of this done so. My primary symptoms all along have been SEVERE weight loss / GAS / Bloating / CRAMPS / Back Ache / Brain Fog / and D!D!D!D! And ALL of which now since da 17th (prior to my gastric ulcer even being found on my Apr 22nd GI scope) (and a'course since I went gluten free) are absolutely and significantly improved, and in the case of my D it has abated for a whole week now! The second thing I noted at that website I will quote to ya here directly from the page: "For some people, physical stress (such as being sick for a long time) may help cause ulcers." So it seems to me that fairly answers my question of whether or not my "Celiac sickness" & "Stress" may be a "cause" of my gastric ulcers. Anyhoo... shall have to see what the results are in 3 wks to know more from biopsies. Naturally I'll post an update to this thread when I get them.
  3. Hi Folks So okay, figured I was due to give ya an update on my progress here... and I have a question on what was found during my gastroscopy. Firstly, I'm doing really good ever since Thurs. April 17th (I marked it on my calendar as the difference from the day prior was miraculous, and I knew I had finally turned the corner towards HEALING at last I awoke that morning without what has been my "usual GAS" for the past 4 months, and thru the day it was reduced so that I did NOT have to eat my typical daily "30 Rolaids PLUS 1 zantac 75, and 3 peppermint caps & 3 Phayzme simethicone caps" , and only needed to take the zantac & Phayzyme and about 10 Rolaids that day. AND my D stopped completely and has NOT returned now for a week! So in general I'm thinking that I have actually finally succeeded in ridding my environment of hidden gluten and am actually (at least til my next CC honestly GLUTEN-FREE here! Meanwhile in the "medical dept"... things are slow going due to our crappy health care sysytem in BC, I have had to do a lot of "waiting" through this diagnostic testing process which has made me slightly more cynical of the medical system and it's delivery, BUT none the less, I did have my bloodwork tests done, in March they were "Negative, Iga 2 <20", however I was gluten free for 4 days prior to testing so who knows eh. I also had a "Breath Test for Helicobactor Pylori" which was a negative result at same time. Now I've finally gotten a Gastroscopy done as well on Tuesday, a'course now I have to WAIT another 3 weeks to actually learn the full results of biopsies that were taken, though I did learn (not from Dr but by asking a nurse myself what was found out before leaving!) I do have "Gastric (stomach) Ulcers", which he also took biopsies from and apparently is checking those for both the H. Pylori Bacteria Infection (which my "Breath Test" in March was negative for and Stomach Cancer as being the "cause" of the gastric ulcers. From my own perspective today, I just can't imagine I would be feeling so much better every day if in fact I was currently dying of Stomach Cancer eh (prognosis & speed not good) so I really doubt that is a cause. Perhaps the bacteria breath test was a false negative, that I'd maybe go for. So anyhoo, now this has me wondering here... Is it possible my digestive system being so compromised by Celiac for months AND my life being extremely STRESSFUL during the same period of time would or could have contributed to either, "causing ulcers" OR "permitting H. Pylori to overproduce" and cause ulcers. I'm myself not at all convinced that "Gastric Ulcers" were the "entire problem" or the cause of my 4 month long bout of D. Typically from what I've read on them one tends to "vomit" (and I have not and do not have that symptom at all), and no where did I read that D was a usual symptom of ulcers. In the case of H. Pylori Infection certainly that can/does cause D as a symptom as well, BUT then I have to ask eh... "would an H. Pylori infection react POSITIVELY from the gluten-free diet"??? It would seem obvious that my having gastric ulcers would certainly exaserbate my "intestinal healing" if I am suffering prior or already from celiac damage. BUT from view in side of this poor old body, truly the one thing that made a difference to my being sick, consistently and progressively day by day, was/is "NOT eating gluten"! So I sure would appreciate hearing folks thoughts on all this. AND also btw... one other important (to me) thing... for da past 20 or more years I've had a "itchy rash" which is on my feet, it flares and abates, it has always been diagnosed as "exzema/dermatitis" etc and I have been prescribed "creams" which do nothing at all to either relieve or cure my rash, it does as it does. Well gee go figure huh... since I have become gluten-free - my rash is at least 80% HEALED a first for decades! So hmmm eh, I have a feeling it is a mild form of HD that is on my feet... my Dr says no. Anyhoo... love to hear what ya'll thinks eh
  4. Dairy Queen?

    OH WOW EH Well gee I just LOVE soft-serve!!! Here I usually buy it by the "take-home liter" (quart for ya southers!) I am going to go and pay an in person visit to the DQ here in my little town and ASK them about their current practices and what they can assure me IS in fact gluten free tomorrow. I'll post my results after.
  5. How Soon After Eating It Do We Get Sick?

    Hi There, to BOTH - Death_Cab_Doll and donnal I too am fairly new to Celiac, but fortunately (or unfortunately pain wise I have managed to educate myself, primarily by doing MEGA amounts of "searching & reading on this forum", and by "trial & ERROR" In my own case, I found that at first to spite my concerted efforts to "go gluten-free" none the less because I'd both "consumed TONS of wheat/grains" and had further TONS of it within my environment/home for all of my 51 years, that it actually took me several weeks to "root out hidden gluten sources", and really I'm fairly sure that even now there is likely more than a few "molecules" left hiding here somewhere yet awaiting my discovery in days ahead! A'course, I rather dread the discovery being after I've "ingested" it, and I pray occurences of my cross-contaminating myself will be few and far between, BUT that said I am a realist and so I know that there will be occasions when it will happen yet. My last CC resulted due to "licking a mail-reply envelope" which enlightened me to "gluten in some adhesives" at a horrible and painful price! In my de-glutenizing efforts here I found I had to both completely "sanitize/scrub with bleach" ALL of my kitchen cupboards and counters surfaces, before I even began to "restock my pantry gluten-free". I also had to purchase many new items, pots, pans, baking pans, plasticwares, cooking utensils, toaster, mixer, a wood cutting board, a rice steamer/fryer/slow-cooker appliance, colanders, drink jugs, and well basically EVERYTHING POUROUS OR PITTED OR SCRATCHED that was ever in contact with ANY gluten source. I've also had to be consciously careful around a few things I know can CC me but that I either, "can't" do any replacement of (my pet Ferret eats and LOVES wheat fortune cookies for her treat, so I have to immediately wash my hands after feeding her a piece, and store them in a sealed container OUTSIDE of my kitchen area), OR as in the case of my pet Finch birds, I still need to "replace their cage" even though I have already managed to find a "gluten-free seed mix" which I started feeding them now. I also had to switch both my Ferret's and Dog's daily food/treats to "grain free" varieties. And then too lastly but certainly NOT leastly, in my case I had to "change medications" in some instances as well, ie I'd been "treating my gas/bloating" using Mallox Berry Suspension or Chewables, BOTH have gluten in them so here I was "pouring gluten on my poor sick intestines to try to relief the symptoms and pain caused from gluten ingestion, sheeeeesh eh"! I then found a couple of the meds I used had gluten finally by "phoning the maufacturers with the barcodes". Using them obviously resulted in my "healing being impeded/prevented", even though I was doing "correctly" as far as my "actual diet consumption" all the while. Thus given that ya are as I, fairly new to this gluten-free lifestyle change, I just wonder if in fact you too are not perhaps still ingesting gluten which is not so obvious as your "diet"? Certainly, ANY gluten even a "minute trace", say left behind in the metal seam of a spatula used to flip wheat pancakes prior, or say perhaps contained in a lipstick/cosmetic you use or come into (kissing) contact with, WILL be enuf gluten to effect you negatively, (not to mention actually do more physical damage to your intestines!) As for the queston of "how long does reaction take"... I agree with emcmaster... typically I find if I get a larger dose of gluten then within mere hours I will be literally doubled over with severe cramping & gas! If however I ingest a small trace it seems to take me 24 hrs - 48 hrs to acheive FULL AGONY & D, D, D! Conversly, with a larger dose of gluten I will stay SICK for more days overall than if I get a wee dose I'll usually only suffer for a few days total time before I start back to mending mode. Anyhoo... just some "gluten-free food for thought" for ya.
  6. More Advice Needed. Still New To This.

    Hi there JgeorgeSCR Hope this helps... I use the following items... Shampoo - Neutrogena Anti-Residue Formula - Soap - Again, Neutrogena Original Formula Transparent Facial Bar - Toothpaste - Crest Pro Health - Rinse same Pro Health - Deodorant - Arm and Hammer Baking Soda Deodorant. There are also others which I'm sure folks will share with ya as well. Hope ya have a "clean & happy day" eh!
  7. Hard Time Dealing

    Greetings Bellababy Well boy oh boy eh... can I ever relate (as indeed so many here do really I'd just like to add both a word of encouragement for ya, and couple other words of "advice" that haven't yet been offered to ya... Firstly, while I know it is NOT what anyone wants to hear when they are eager to be well and trying to do everything they need to do to succeed in acheiving wellness, unfortunately the sad truth is that once you have become so very ill the actuality within your body is that it is "badly damaged" and thus it takes you some time in fact to concretely begin to "heal", and then a while longer yet before you'll start to notice a true difference that makes it evident to yourself that you are in fact healing. I know it is very difficult to exercise patience when it comes to "suffering", BUT never the less, I want to encourage you that honestly there truly is a "light at the end of the tunnel"! Everyone is different in "how long" the time frame for healing is, some folks have seen drastic improvement in just mere weeks or months, others it has taken them from a year to a couple of years to acheive their significant improvement. You MUST be persistently courageous, and try to take heart that every day, (even hard ones) is still a day that will bring you closer to being WELL once again. Now then all that said... I'd like to share some other advice with you, which it happens in my own case made a real difference to my "progress" (and lack of it initially) and which may prove to assist you too... You stated that you are "being very careful about what you eat" (and staying gluten-free), however I wonder if perhaps you may be like I was "ingesting gluten from other sources", for example in my case I had to change my "shampoo, soap, toothpaste, medications, AND all my dishes, pots, toaster, pet foods, etc". Have you do you think Bellababy truly "de-glutenized yer environment" completely? Perhaps you have a substance or item which is unwittingly delivering "trace amounts" of gluten still to spite yer diet changes. Additionally, once again in my own case, I inadvertantly "glutened myself" most recently simply "licking an envelope" (the adhesive on that reply envelope contained gluten!!) and man oh man was I sick from it with raging D and cramps, and naturally the healing that I'd accomplished prior was impeded by this. A perhaps not so obvious "other source" which ya might be encountering gluten from is "yer work place" if in fact you "share kitchen/coffee room space" with others who "use gluten containing things". With Celiac "cross-contamination" can and does occur regularly and even the most minute trace of gluten on or in your shared environment is and will be enough to cause you to "react" (and do damage to your intestines and impede your healing progress), so say for example if you "place your food onto a place where someone has prior placed a nice 7 grain sandwhich and not washed the surface after, well gee eh the sad fact is that you can unfortunately end up ingesting the left behind gluten right along with your nice "gluten free sandwich/food item" unawares it has even occured! Now I am happy to report however, and share with ya the fact is that here myself I am FINALLY (6 monhts) actually "feeling better" and my D & cramps have stopped and I'm keenly aware that I am now truly "mending" within my own intestines. (Which in truth, shall turn out to be a "negative" (literally) for me as it happens I am actually scheduled for my "Gastroscopy" TODAY, (took months to get it booked here!), I'm extremely doubtful now that the scope will provide a "positive confirmation of Celiac villi damage" as a result of my obvious healing from being gluten free (even from traces of it) for the past few weeks. But none the less, I am gonna go have the dang test anyhoo, I figure at the least while it may not "rule in Celiac" it should most likely anyway "rule out everything else" huh! Sheeesh the marvels of modern medicine huh Anyhoo Bellababy... I hope this will both bolster yer spirit somewhat AND that perhaps it can lead ya to discover if there is some "hidden" gluten still managing to wreck havoc on yer poor guts. I pray you'll be able to ascertain any that may be present in your daily life, and that you will see improvement soon too!
  8. Howdy One & All Well sheeesh eh... I have been so completely swamped with tasks here lately that I haven't had much chance to get any where near my gardens, (AND da fact is we in BC's "lower mainland/fraser valley" are experiencing EXTREMELY unseasonable COLD weather, like even snow for pity sakes in April So gee whiz eh, reading all yer posts about all yer "plantings" has definetly turned me here GREEN wit envy Oh well... certainly, our turn does have to come eventually huh (Jist hoping/praying is soon!) Anyhoo though in the meantime... I have been mulling over the prospects of "trading seeds" with others on this forum as was discussed earlier. While I absolutely relish the idea of doing so, I gotta admit it has struck me now, "exactly how do we do that"? I'm wondering because of course, given "general internet safety" and "online prudence", I don't think it is either wise or recommended to "post one's actual contact info" so that EVERYONE in the entire whole dang world can "read/obtain" it besides the individual/s intended? Least anyhoo, I myself really would not be comfortable or inclined to disclose my actual address online. What about you Judyin Philly... were ya just gonna post me yer address to send ya the seeds at, or?
  9. Is Cc A Danger From "bird Seed"?

    Hi ravenwoodglass & DMS Firstly, regards my Finches current cage... it is a BIG (3 ft high x 1 1/2 ft square) and VERY old cage, which has NO floor actually... it is simply "set into" a just slightly larger "corrigated cardboard box with about 5 in. high walls", wherein I place an "aluminum foil oven guard tray" as a "floor" lined with those "pregraveled cage liner papers", there is also a "homemade seed shield" of sorts, I have surrounded the lower 10 inches of the cage itself with more "corrigated cardboard box" by simply "twist-tying the corners together". Thus really, the truth is it is in fact long overdue for replacement, and so in this instance "making a lifestyle change for Celiac" has actually turned out to be a blessing which I feel certain shall prove to be beneficial "health wise" for both myself and also for my 2 sweet little feathered friends, as I am SURE that "cardboard" is always a convenient desirable place for all sorts of "undesirable organisims" to reside, from germs, to parasites, to wheat /grain dusts and/or molds, fungus, or.... ya git da idea eh, da cage is jis a scary place! To DMS... well gee, I have to admit I am ignorant as to what exactly yer Guinea Pig "eats" Thus whether or not its presenting any dangers to yer "kitchen area" by "sharing the environmet" would seem to me dependant upon "whether or not wheat/rye/barley/oats are within any of its life requirements". As regards yer "budgies"... certainly step one for me here was "finding out what the ingredients of the seed I was feeding were, and whether wheat was present in it". In my case one turned out to be AFFIRMATIVE unfortunately, which meant a "change of seed product" was definetly necessary, but I was very pleasantly surprised that I was actually able to find a "Finch Seed Mix" which is completely safe having no wheat and no oats included in it, and amazingly "right in the same store I bought the other one at". In fact another added blessing I rather appreciate is this new "safe seed" is considerably "cheaper" too, as it happens to be the store's "house brand" (a'course not sure where ya live DMS, but I shopped at a store called "Price Smart" and the store brand is "Western Family", and I live in British Columbia Canada) Never the less though, where ever ya live. I think that if ya discover the seed/treats yer feeding to the budgies now DOES have wheat then ya will at the very least I'd say have to take a lesson from ravenwoodglass in the suggestion that you "scrub clean the cage/toys/etc", and then start a new utilizing ONLY foods and treats which contain NO "Celiac Grains" (or derivatives) wheat,rye,barley, and in the case of "lower pet grade products" I'd suggest staying clear of "oats" as well which can be also "contaminated by other lethal grains" However, the good news is, I do think it is possible that ya could just as I did, find a "suitable safe seed mix" for yer parakeets to live with ya long & happy! I do hope this is helpful to ya... sorry I can't assist ya much wit yer wee "piggie" but perhaps someone else will be able to provide ya wit information regards them yet. Meanwhile, shall pray it ALL works out
  10. Is Cc A Danger From "bird Seed"?

    Hi Folks A brief update on the situation here with Da'Guys... Well the BAD news was/is that I did confirm that in one of the "Vitamin Fortified Finch Seeds" (Hartz), there is GROUND WHEAT Fortunately, I was able to find an available "Finch Seed Mix", (Wetern Family) which contains NO WHEAT & NO OATS either, it is just a "millet & niger" mx, so at least that will be safe... never the less, a'course this still means that now I need to REPLACE THE DANG HUGE CAGE & EVERYTHING THAT WAS IN IT, e'cept Da'Guys! AND as it happens, I can't get to do that for another week or so as am swamped, so am dreading lightly around the cage etc in the interim, and otherwise trusting by faith the Lord will grant me needed grace.
  11. Is Cc A Danger From "bird Seed"?

    Nancym... oh my oh my oh my... the bird seed, feathers, etc goes everywhere in the "little" suite I live in I'm afraid eh! I do "wash after handling seeds/suets", and I store them "in sealed containers apart as much as possible from my kitchen area" BUT my suite is sortta "1 big (wee) room" Sheeeeesh, I do hope it will NOT now prove necessary for me to not only go gluten-free, but also "Finch-Free"!!! kbtoyssni... I don't think there is such a thing as "gluten-free Bird Food" for the Finches, they eat "grain" Dang eh... may be a dilemna I'll need to confront yet, but fer now I'll see "how/if" I can "minimize" within the environment to enuf degree. Lord willing I won't have to part with "Da-Guys" I truly adore their "chatter & cooing" in my daily HECTIC existing. yolo... As I said above... I think that would be NO. Finches eat "a grains mix" that does contain "highly likely contaminated Oats" within it fer sure. The other "seeds" in it are "millet & niger" I think, but it may even contain "wheat" or "rye" as well. Incredibly, I have to admit thus far I actually have NOT read the "label" of the 2 seeds I feed, as when I bought it I had no idea I needed to and disposed of the box when I put the seeds into at first "a big plastic bag" so I could "mix the 2 up". Now I have it in an airtight container and not a bag, but have to recall to "read the boxes at the store" when I'm there, assuming that my combo "Brain Fog & Early Onset Alzheimers" permits me to remember it that is!
  12. Hi Judy Yer welcome... BUT really I am so sorry that I failed to mention it on the lists themselves for ya'll. So folks to reiterate Judy's sentiments on my last post... this is me YELLING (in red at ya now... DO NOT EVER COMBINE AMMONIA WITH EITHER "VINEGAR" or "BLEACH", IT CREATES TOXIC FUMES!!!! That said, I would like to reassure everyone, you will NEVER find any "lethal combination" given "within" any of the recipes provided on the recipe lists I posted ya. IMHO and rule of thumb, it is NOT wise to just "experiment" and "change or alter" ANY formulation recipe apart from basic "substitutions", say in a case as we discussed prior, "using corn flour in the cat deterent spray", or interchanging "dish-soap and baby shampoo", where the ingredients are "equals" rather than "additional or different". Just FTR eh
  13. Hi Gang! Okay so now I am wondering about "bird seed" and it's danger of CC. I have 2 Zebra Finch caged birds, AND as an obvious part of our Canadian Wildlife Certified Backyard Habitat Gardens we feed da birds! Is there a danger of CC from handling the "grain laden" mixed bird seeds, suets, etc?
  14. Good Day Gardening Buddies! Well gee, this post is definetly one which is done in "hindsight" now... AND hopefully will NOT be a case of being "too late"! However, it just occurred to me this morning that I really should have included in the "cautions/warnings" portion of the "recipe lists" I have provided to ya'all one other particular warning which may or may not be "obvious" to everyone here who may utilize those recipes. So I'm providing it here now, and praying it shall be "better late than never" for ya all to receive. PLEASE, be aware you must NEVER, ever, combine "Ammonia" with either "Vinegar OR Bleach"!!!!!! To do so creates "toxic fumes" which could very well KILL YOU
  15. Evening Judy Yer most welcome for the recipes, my pleasure to provide 'em Absolutely you can substitute, either "potato or corn" flours for this recipe. The ingredient is changeable. Hope this eases yer mind, and provides a worthy use fer yer "sit'n round potato flour" as a bonus!