Thanks for your support!
Hi! I just wanted to let you know that it is possible that you've had celiac disease for 30 years without knowing it. I was always sick and finally diagnosed at 32. At 33 I was hospitalized with Type 1 diabetes. I went to a Celiac conference a few years ago where they said the two diseases share a gene and about 5% of Celiac's get Diabetes. Also, I had osteopenia (pre osteoperosis) when I was first diagnosed with celiac disease 6 years ago, but now that I've been gluten free for so long my bones have built back up. Keep up the good work taking your supplements and remember there is a bit of a learning curve with getting completely gluten-free, but you will feel better than ever when you start healing. Hopefully, you won't get any other autoimmune diseases due to your lack of diagnosis for so long but keep it in mind if you start having other symptoms. Good luck!
I've used the term "medically challenged" to describe myself for years. When I Google the term it seems to describe people with mental disabilities, but I think it describes my life perfectly. I've been sick since I can remember. When I was very young I would be so starving I would beg my mom to order me a lot of different foods and she would say, "Are you sure you want to eat all that?". Yes, yes I did want to eat all that even though I was so skinny people continuously commented on my size. But, I would take one bite of the food I wanted so badly and immediately feel nauseous. Extreme nausea is more like it. So, of course my mom would claim she would never buy me all that food again but the senario played out over and over again for years. What was she supposed to do? She knew I was too skinny and "ate like a bird" so if I said I was going to eat 5 side items and a dessert from Morrison's cafeteria she just hoped one time I would. I always ordered macaroni and cheese, mashed potatoes and gravy, cake, etc. All things that I would find out when I was 32 would cause me to end up with Type 1 diabetes. If only one of the doctors I started going to when I was 7 years old had thought to test me for Celiac Disease. They did x-rays, barium enemas, sigmoidoscopies, endoscopies, colonoscopies......for years and years. It sucked. And I was eventually convinced by the many, many specialists I visited that the severe pain, nausea and vomiting fits were, in fact, "all in my head." Now I can't believe that they ever talked me into that. But, they did. I remember laying on the floor in a ball when I was in my mid-20's crying and begging God to make it stop. To make me stop. How powerful of a brain did I have anyway? I should be a rocket scientist! As I remember the pain I think, how did I endure all that horror. I guess because I had no choice. I thought of suicide many times, but I had such a great family I didn't want to break their hearts. I thought of going to a mental institution, but I don't think I really believed deep down that I was crazy. Anyway, I made it and even with the challenges of several autoimmune disorders I'm glad I did. Hopefully, this blog will help me release some of the anger I've been feeling over the years and help someone else understand that they are not alone.
I also live in West Mobile and have lots of trouble finding new restaurants that are safe. There are so many chain restaurants here I would love to be involved in a dinner group where we could start to provide info. to the area places. I know the owner/chef at Blu Bistro is very knowledgeable, but it's pricey. Be careful ordering the spicy chicken soup at Carrabba's because twice I have found a piece of pasta in it. I basically don't order it anymore for that reason. They have some other great stuff though. Bonefish and Outback are two fairly safe bets. The lunch at Sunflower Cafe on Airport serves a sandwich and pizza that are gluten-free. Also, the Sunflower Cafe in Fairhope serves Redbridge, which is Budweiser's gluten-free beer and is pretty good. Nothing like going to a restaurant for beer and pizza! I moved from LA (Los Angeles, not Lower AL) where they have gluten-free pizza delivery but I feel lucky to be in a place where I can at least go to a restaurant and have it even if it is 25 min. away. Fresh Market and sometimes Winn Dixie carry Redbridge beer, also. Let me know if you want to start up a group together. I've been here two years but I don't know a lot of people.