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  • siren

About mailmanrol

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    Rhode Island

About Me

I was recently diagnosed with Celiac and now must contend with a major change in my eating habits. God knows I have a terrible diet. I love junk food....chocolate, chips, pastry....and also love pasta and cream sauces....meatloaf has been one of my mainstays. One of the few things I can cook and know it will be good! ha ha... now all that must change. So.... I am here to hopefully get help coping with this disease. I was tested for Celiac primarily because my sister was just diagnosed with Celiac, and since it is hereditary, I decided to have myself tested and....well....here I am! Now to get my brother to be tested. So, in ending I will say 'HELLO' to all my fellow Celiac friends.

  1. Happy Thanksgiving Everyone! Today will be quite a test for all of us. Trying to eat gluten free and having to ask thousands of questions to our hosts for the day about all the food they've prepared. I will be visiting with my brother and the rest of our family at his house. This has been the tradition for the past several years. It is usually a huge feast and I leave there feeling sooooo FULL!! But now, I must be cautious about what I am eating. Maybe I should have been in the past also, but I didn't know then that I was Celiac. Anyway, I am baking.....er....going to TRY to bake, a gluten
  2. Also.... make sure the turkey being served was NOT self basting! Self basting turkies have gluten injected between the skin and meat. So ask you host to be sure the Turkey was not self-basting. As for the gravy, tell your host to save some of the turkey drippings for you to make your own gluten-free gravy. You just thicken it with CORN STARCH instead of flour. Or maybe she will just make all the gravy that way? But also beware if she stuffed the turkey with a bread stuffing....cross contamination!! You can go to Whole Foods...and probably any other health food store....and buy
  3. You should know that most yogurt is NOT gluten free! I was diagnosed about 2 months ago as a Celiac and had lower back pain, neck pain, a very itchy neck and trouble sleeping. Almost instantly after going gluten free all these aches have disappeared except the lower back pain. I think that is more about my age and my job now causing that problem. Also, my doctor did not advise it, but my nutritionist did advise staying away from milk for at least 6 months ( even Soy milk ) because, even though I am not lactose intolerent, the lactose in the milk is considered too harsh on the damaged smal
  4. thank you for the birthday wish :) you are sweet xoxoxo..

  5. So, last night I went to 'Whole Foods' in Providence for a free tour of the store with other 'Celiacs' given by a Nutritionist/Celiac of 15 years. It was very interesting as we went through the store and she explained many of the products and showed us what to look for on labels and how the store will segragate many of it's gluten-free products in each aisle. She also told us what some of her favorite gluten-free foods were and how to prepare some of them. Whole Foods also has many of their own gluten-free baked goods. The store gave each of us on the tour a little 'goodie bag' with a few glut
  6. Hi Chrisco, First, have you been eating gluten free? If you have been eating gluten free, you can test negative for Celiac Disease. Second, yes, you can test negative and still have celiac disease. So PLEASE!!!!!....DO THE ENDOSCOPY!!! It is painless. The worst part is, of course, the 'preparation' for the test the night before. The endoscopy should PROVE if you do or do not have celiac disease. So, my advice is.... do the endoscopy....set it up asap and hopefully it will show posative for celiac disease and you will soon be on your way to a healt
  7. mailmanrol

    Dr. Called

    The Dr called yesterday with the results of my bone density test, and it showed that I have weakening of the bones.....Osteopenia....and am to continue taking calcium tabs with vitamin D. He is going to confer with an endocrinologist to determine what medication will be suitable. So I guess I'll be hearing from him again soon. Made some gluten free blueberry muffins last night. They are ok....I hope I become a better cook! Also prepared gluten free 'american chop suey' and shepards pie so I have my meals for the week. Have a great day all!
  8. Well, today I go for a bone density test to check for osteopenia or osteoperosis. The dr just wants to see if there are any problems considering my age and not knowing how long I may have had celiac disease. Yesterday I made some gluten-free brownies using Bob's Red Mill brownie mix. They are actually VERY GOOD!!! Moist, and taste like real brownies! Added some walnuts... YUM!!! Much better than the one's that I got from the bakery. Those were sooooo DRY! Of course, I have my favorite restaurant, Crazy Burger in Narragansett, R.I. that I am hoping will be able to accommodate my celiac d
  9. Hi Rebecca, Thank you and you have helped me know that I am not alone, but you should also know that YOU ARE NOT ALONE!!
  10. Hi Rebecca! Thanks for the info and encouragement! I do find myself thinking of the things I love to eat that I can no longer have and I think that is the hardest part of this, but I am determined to change my eating habits and learn to live with this. I am hoping that my bone density test will not show too much damage, but I will take whatever steps I must to improve my situation. Hopefully you are doing great and will continue being healthy. Thanks again for your great comments!
  11. Well, I just got out of the Dr.'s office. We went over all my tests and for the time being, in addition to now having to live 'gluten free', I am to start taking calcium and vitamin D tablets 3 times a day. Next Thursday I am going for a bone density scan because Celiac Disease can cause osteoperosis, and because of my age, and not knowing how long I have actually had the disease, the good Dr wants to see what condition my skeleton is in. It's best to know I suppose. Anyway, just x-rays of some sort...nothing horrible to do. So the calcium and vitamin D are to help build me up ha ha. I have b
  12. Recipie sounds great! I am assuming that the topping can be anything and not just cherry? I love pineapple. Thanks for the recipie!
  13. I got home from work last night greatly anticipating having my home-made gluten-free meatloaf....I love meatloaf....the way I USED TO MAKE IT! I had to modify it by using gluten-free bread crumbs, and other seasonings. I was disappointed at how dry it was. The flavor was just OK.... nothing to write home about. Maybe the gluten-free bread crumbs absorb more of the grease from the ground beef? Maybe I need to use less of them? And maybe REAL chopped onions and peppers instead of the freeze dried ones from the spice rack? And maybe add more ketchup... it just seemed to be VERY bland
  14. Spent most of last night cooking for the week. Had to empty all the food out of my 'fridge' and cupboard to make room for gluten-free food. Made some gluten-free pasta and a meat sauce, and a meatloaf. Used to love my meatloaf! It was made using Lipton onion soup mix. But that can't be used now, so I had to get gluten-free bread crumbs, and used some makeshift seasonings to try to imitate it. It looks dry, but I took a little taste and it seems to taste ok. I can no longer eat instant mashed potatoes, they have gluten. They are just so easy and quick and don't spoil! ha ha. so I bought some
  15. the ones from the store.. I just toast makes it easier. google gluten free bakery's in your area their bread is softer. or go to a natrual foods store they might have it too.

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