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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.


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About kyga2

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  1. I am definitely gluten intolerant (which is another story), but it takes so long for symptoms to show up that there often isn't clear what or when I ate that did it. Recently I have been travelling a lot, eating out and in other people's homes. I had such terrible anxiety after being out of town two days that I barely slept. I got a haircut and I didn't like it much, but this was objectively speaking probably not enough to send me completely around the bend (sweaty, racing pulse, wanting to jump out of my skin.) This extreme anxiety and/or depression will happen to me, and then maybe the next day, or even later on that day, I will feel fine. I am trying to decide if I should go on medication. If the anxiety is indeed related to gluten, then would medication even help? There is a possibility that it's not, but I just can't know. I am afraid of medication because of the side effects, especially constipation, which is a constant problem for me already. I'm also concerned about fatigue because I am already fatigued. I will admit that I avoid gluten and dairy but I am not as careful about cc as I should be (shared cabinets, countertops, etc) with my gluten eating husband.
  2. I had to give up gluten (and casein) a couple years ago, and my daughter, who is 2, has never been able to tolerate gluten or dairy herself. Because I have been living it, and because I have learned a lot from different sources, including these message boards, I am convinced my older brother has celiac disease, or at the very least a severe intolerance. He has been intolerant of milk his whole life, and when he was a child he had dark stains on his teeth. No one could figure out why, so my parents just had them capped. My brother has been diagnosed with IBS, and has had 'bathroom troubles' as long as I've known him. He has always been rail thin, and cannot gain weight. Recently, he has told me that he is tired all the time, and he gets frequent, painful mouth sores. Yes, alarm bells all over the place. However, I have talked with him about this in the past and he kinda blew me off. Now that I know about the mouth sores and fatigue, I feel duty bound to say something once again. I think he is afraid of eating 'weird' food and also of being different. He is 41, but I guess we never get over not wanting to be different. I need words of wisdom or encouragement for talking to him. Thanks!
  3. My daughter, who is now 2 1/2, has this exact same type of poop you are talking about. She has it when she has eaten something she shouldn't have. She cannot handle gluten or casein. Her doctor thought for a while that it was lactose intolerance, but she was just as messed up on lactose free products. This weird poop is the only sign to us that she ate something bad, because she doesn't throw up. I'm a bit alarmed by the folks saying to check in with the doctor, because our doctor never seemed partucularly bothered by this symptom. I wonder if I should find a new doctor.
  4. My daughter, who is 2, used to have eczema but it went away after we quit feeding her dairy and gluten. In the last two months, she has developed a red, flaky place around one corner and under one side of her lip. It comes and goes. She has been glutened a few times here and there but symptoms vary so it can be hard to connect sometimes. My husband says this thing on her mouth is caused by her chewing on the side of her mouth. I have not witnessed this myself, so I wonder if it is eczema. However, it seems to get better if he puts chapstick on it, therefore he says it cannot be eczema. I just don't know one way or the other. Has anyone seen something like this in their kids?
  5. Hmm, all very interesting. In terms of grains, I was just thinking I couldn't get anything other than rice. We can get a doctor's note but my husband thinks we shouldn't bother. He reasons that he can have the bread and milk and whatever money we save can go to the almond milk, dairy free cheese, and gluten free bread. I'm trying to decide if this is a good idea or not.
  6. This happened to me recently for the first time and I had no idea what it was. At first I thought I had strep throat or something, then noticed the ulcer. Then of course I thought "Oh no, what if it's cancer?" Once I got ahold of myself I thought to look in the celiac information and there it was. I'm sorry this happens to you every time, because that one time was unpleasant enough for me.
  7. To make a long story short, starting this summer, my family will qualify for WIC. I am trying to learn more about this program. The focus is on healthy foods, but there are a lot of dairy and whole grains. Neither my daughter nor I can tolerate gluten or dairy. I hate to look a gift horse in the mouth, so to speak, and I am grateful for the fruits and veggies I will have access to, but do they ever make allowances/substitutions for food intolerances? As all of you know, anything gluten free or dairy free costs more so any help would be appreciated. It seems clear at this point that whole gluten free grains, almond milk, etc. are off the table here. I would be interested to hear anyone's experiences or expertise on this topic.
  8. Thanks for all the helpful responses! I think my main issue with the counselor was that I was concerned I would get diagnosed with depression and put on meds, which becomes the 'pre-existing condition'. I will be able to get insurance, I would just prefer that it be reasonably priced. Good (if that's the right term here?) to know that I am not the only one, and not crazy. The primary form this bad thinking is taking is the weird pleasure and relief I have in not eating things. People offer me something and I refuse on the grounds of the food intolerance but inside I'm secretly glad to have an excuse not to eat. People keep saying I look too thin and I just say I have food allergies. Um, that's true but . . . My husband won't eat gluten free stuff with me, on the grounds that it's expensive so I should get all of it and he gets the cheap stuff. However, I end up feeling panicky when I make a batch of something and realize I have to eat the whole thing myself. Our freezer is full. I will keep at it and not quit. At least I am aware when I am thinking disordered thoughts that I am thinking them. I would be interested in exploring this issue further. It's a sub-group of a sub-group, and I feel sorta lame for even bringing it up because I keep reading the posts of people who struggle so hard to lose weight.
  9. I have the same problem, although it sounds like not as bad. Like you, I haven't even bothered sharing this with a doctor because it will just get a shrug. This feeling occurs when I am stressed, but also randomly. The way I describe it to my husband is that it hurts to wear clothes. It's that feeling like when you have a fever and ache all over, only I don't have a fever. It goes away after a couple days or so. I suspect it's tied to getting glutened for me.
  10. Has anyone also dealt with an eating disorder in the past? I feel like I had successfully conquered mine, and then with the need to be gluten and dairy free, I have found myself having to think about food WAY more than is healthy for me. Instead of merely a pleasure and source of nourishment, food is once again full of potential danger and that need to be vigilant has pushed all of those unhealhty thinking buttons. I can't really go to the counselor about it because I'm about to lose my health insurance and I don't need another pre-exisitng condition to prevent me from getting new insurance. Can anyone recommend a book or website or perhaps your own experience in successfully navigating this issue? Thanks.
  11. Somewhere, somehow, my daughter who cannot tolerate gluten or casein was exposed to one or both of those things about two weeks ago and had diarrhea and related trouble. We put her on a very simplified diet and she seemed to get better. We slowly reintroduced food that she normally eats. On the day she got her soy milk, she had bad diarrhea again. My husband is the one who noted this, so without being aware I gave her soy milk the next day with the same results. Does this sound like a potential soy allergy to you? Can a child all of a sudden be sensitive to something previously tolerated? Or, perhaps, was it just a bug? If it were a bug I don't know why we're having problems still after almost two weeks.
  12. A brand called Daiya makes a quite good dairy free shredded "cheese." It comes in mozzarella and cheddar flavors. It's a bit expensive, and can be difficult to find in a store, although there are places online where you can order it. This has been the best option I have found.
  13. My daughter, who is 2, cannot tolerate gluten or dairy. Once we figured it out she has been mostly fine. The last two days she has had weird diarrhea. Because of the food intolerances, I don't know if she's just sick or ate something she shouldn't have, in which case I need to review what she's eaten recently. My question for you all is, how do you, or can you even tell when your small child has eaten something he or she shouldn't have?
  14. I am currently about five days into a cold. I thought it might be flu or something so I went to the doctor and it turns out it's "only" a cold. With all of my health problems I have learned to be pro-active, and a lot of that involves getting opinions on this site, so here goes. I have terrible achiness in my joints that is not helped at all by anti-inflammatories (ibuprofen, etc.) It's kind of new because usually those help. Generally when I get sick, whether I have a fever or not, and actually whether it's actual sickness or something else (recovery from surgery) I always feel it in my joints. This time is a little disconcerting because nothing is helping this time. Is this joint ache thing related to gluten trouble? If you have experienced this, how do you deal? Thanks in advance for your responses.
  15. I too feel weirdly disconnected from the world at times. The way you describe it is not exactly how I have experienced this disconnection, but I was interested to hear about it. I have chronic vertigo; it can't rock in a rocking chair, bounce, or shake my head because I get symptoms. Whether or not this is related to the gluten thing I don't know. I was starting to think I had a social phobia or something, because of this disconnection. There still may be, but after getting really serious about gluten free I will see if any of this improves.