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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Lucydesi

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About Lucydesi

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  1. Feeling Lousy And Frustrated

    Fully agree with what people have said. Hope you feel better. I diagnosed myself with Celiac disease (which doctors just love )because none of the local doctors where I live even considered it. I had to keep pushing to get referred to great GI specialist who believed me and diagnosed me. I think ER docs for the most part are great, but really want to patch you up and get you out - sad state of affairs because of no health insurance. Hope you are getting more answers.
  2. Sometimes it seems like all I have the energy for is work. I would like to do more but my job is pretty emotionally demanding so it seems like I don't have much energy for anything else. I do fun things on the weekends sometimes, but wish I could swing more of a social life. I wonder if anyone else struggles with the demands of work and energy levels. I have been gluten-free for 3 years and am much better, but I am really cracking down on small amount such as those trace amounts found in lipstick. My house is completely gluten-free. Any tips on increasing energy? Thanks so much.
  3. Accidentally Ate Gluten, What Can I Do?

    We all do it but it will become more of a habit to read labels. I really like Align - the probiotic from Proctor and Gamble. You can get it any where but it is expensive. I don't give blood any more although I would like to. It just makes me too tired. Don't induce vomiting . . . you will just have to gut it out if you will excuse the pun. Really try Align and I am not a paid spokesperson.
  4. If you need a great gastroenterologist (sp), Dr. Gregory Sayuk in St. Louis is the best. He believed that there was something wrong and diagnosed me.
  5. No, Thank You!

    I can certainly relate. At lunch when I am eating something "weird" or not having cake for a birthday party, I just try to keep it simple and say "oh, I cannot eat wheat." Sometimes people want more info, but usually I get the look like that says I must be exaggerating. I remember I was that way when a friend of mine got diagnosed many years ago. I didn't understand how a minute amount can wreck havoc. I think I even go into denial although I have read a lot on the disease. At first I think my own dad thought "it was in my head" until he saw the results of the endoscopy. Now he is cutting back on his wheat, and has noticed a improvement in his health. My mom makes me gluten-free things which is very sweet. I have pretty much accepted that people are going to believe what they want. Once they are around you for a while, they notice that you really don't eat the donuts or coffee cake someone brought in. They don't understand how ill this disease has made me and I don't want to go back. I have lead to some people being diagnosed and their lives improving tremendously as a result. That makes me feel good.
  6. Wow, I think that is a great way too put it. My perceptions are changed for a while and it really sucks. People can really annoy me and I would normally just blow it off. I agree about the antidepressants, they can only do so much. Seems like gluten can override their effectiveness. I am really getting careful with everything now including lipstick. Tiny traces of gluten don't seem like a luxury I can afford.
  7. Just wondering how gluten affects your mood. I have been diagnosed with depression for years and take an antidepressant which generally helps. How can I describe this . . . I can tell when I have accidentally gotten gluten because my mood can just go down the tubes. It can take me a couple of days to feel better and happier. Usually I am very fatigued as well because that is how gluten affects me. Just curious how others feel about this.
  8. I have been diagnosed with RLS. Unfortunately it has not gone away. Maybe improved a little. Is there a connection between Celiac and RLS. Never thought of it before.
  9. Throat Ulcers

    I am so excited to see this. I went to a ENT and she told me that she thought the sores were coming from my gut. This eventually led to my diagnosis of Celiac disease. I too have been tested for strep throat, given antibiotics, and pain meds because they thought I had the flu. I could barely swallow. They always seemed a little surprised when I didn't test positive for strep. This disease can really make you sick.
  10. I can certainly relate. Like you I still have uncomfortable sensations in my stomach and almost a pressure feeling sometimes in my bowels. I really like the probiotic Align for pain in my intestines if I inadvertently get gluten. Some days I feel pretty good and others I feel tired and depressed. In many ways I feel "lucky" to have this autoimmune disorder but some days I get tired of trying to figure out why I feel like crap. Hang in. We will figure this out together.
  11. Diagnosed At 51

    Thanks so much for the tips. I am pretty sure MSG is an issue for me, and my mom becomes very ill if she eats it. I don't think I am lactose intolerant because once I quit the wheat/gluten, the burping and bloating went away when eating cereal and milk, and I don't have that if I drink milk now. How did you know that milk is an issue for you? The only way I would say I cheat is that I try to be gluten-free at restaurants, but sometimes you just don't know for sure until later. To the point where I just don't like to eat out any more. Thanks for the encouragement. You know what is weird - the bread isle in the grocery store smells disgusting to me now. Must be a psychological thing. This website is giving me renewed hope.
  12. Celiac With Fever

    Yes, I ran a low-grade fever for at least a year before I was diagnosed with Celiac disease. I am not sure why, but once I went gluten-free my temperature returned to normal. If I eat inadvertently eat gluten, I can get the fever back. For me, it spikes in the afternoons and makes me feel lousy.
  13. I was officially diagnosed with Celiac disease about three years ago and cannot begin to tell you how much better I feel not eating gluten. Like many people, over the past 30 years I was misdiagnosed with IBS, diverticulitus (sp), etc. I feel so much better now and have lost a lost of the joint pain, depression, and low grade fever but I find that I still do not feel 100 percent. Granted I am older but I find that despite my efforts at a restaurant, I can feel lousy just a few days later, and it can take me a couple of weeks to recover. I notice my mood is depressed, and my temperature will spike to 99.6 (which is high for me) or so during the work day. I know that Celiac disease has been harming my body for years, and my gastrointerologist said that in my case probably hormones and/or stress exacerbated the disease process, actually making diagnosis easier. I am going to double-check my medications and foods to ensure that I am totally gluten-free, but at my age and having eaten wheat/gluten for a long time, is the damage already done to some degree? I am blessed that I can work full-time but at times it is very difficult. Thanks for your input. P.S. I have been allergy tested and I am slightly allergic to eggs.