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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About emeraldskies

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  1. Does anyone use any personal care products from Natural Solutions or know if they contain gluten or casein? I saw on their site that some products contain soy: http://www.bewellstaywell.com/. The term "vegan" was generally mentioned, but I don't know if that applies to all of their products or not. Also, what about Nature's Gate or Desert Essence?
  2. Who's In Their 20's?

    I'm 27 and was diagnosed with celiac disease slightly over a year ago, but I've had signs of it since infancy. Yes, I've had a similar reaction even though I had most of the same health issues (and more) as the middle aged people I'd encounter. I was also told, "You're young; you'll bounce back from anything" repeatedly pre-diagnosis. I still haven't bounced back.
  3. Polycythemia And Celiac

    I have regular polycythemia--elevated RBC's and no other blood cells. My resulting symptoms are headaches, weakness, lightheadedness, fatigue, itching, poor circulation, flushed face on exertion, difficulty breathing, and pain in my bones, muscles, and chest. I'm not sure what is meant by "disturbed vision" in the descriptions of the disorder, but I do feel as if I am being asphyxiated during daily episodes (in that blackness closes around my vision). I haven't seen a hematologist yet but just got the results back from tests that were ordered. The bloodletting wouldn't work for me, since I'm also anemic, but I could try transfusions. I don't remember this showing up on previous CBC's, but I did have a thrombus in my arm after surgery several years ago.
  4. I was just diagnosed with a condition that's similar but not the same, polycythemia. I have no idea what the cause is. The two most uncomfortable symptoms are poor circulation (my feet will never warm up) and numerous daily struggles to breathe. Even the tiny smoke released from the hair dryer is enough to make me fight for breath for over an hour. I guess I'm going to have to find a hematologist. Have you tried any treatments?
  5. Irish Heritage And Celiac's

    I'm half Irish and half German. My grandmother, from the German side, is the only other family member who has been diagnosed. Same here. I followed the food pyramid religiously. And a lot of "healthier" foods have more binders, like in Lay's chips.
  6. I feel the same. That would be my ideal career, research, but I'm not fond of schools and there seem to be a lot of roadblocks in the way of certain research topics. The main way I am different from most doctors I have encountered is that they often get caught up in treating symptoms. I wouldn't mind neglecting symptoms if they can eventually be lessened or removed by treating the source. The neurological problems are not really that limiting. I accommodated early and don't miss the things I am incapable of doing (such as ice skating, dancing, etc). The fatigue is much worse, and that is what keeps me housebound most of the time. How are things for you? I tend to get more caught up in finding disorders when I lack data. If I can't get the tests myself, I can't eliminate possibilities. Today, I got the blood draw, and I will be glad to get the results. I agree with you. I do have a family doctor who will write refills for me if I contact him. I don't plan on going back to see him, though. I don't think I will be getting any more referrals out of him either. It's sad that you had to fall to get help. The phantom smell sounds like a seizure aura. Do you ever get seizures? Do you get other sensations (visual or auditory) at the same time? Do you get occasional blackouts (other than during your fall)? Hopefully, the diet will help this. Good luck.
  7. It's in my personality to want to make connections to the bigger picture and to gain knowledge. I'm even more driven to get to the bottom of this. I can either give up or get back on my feet. Those are my only two real choices right now. I was lucky that I was tested or it would have taken me awhile to discover the casein problem. I still think I would be wanting to test it but it would have never happened yet. That's how a lot of things have been working out. I'm trying to get a bunch of tests done later this week. Have you heard of Fanconi's syndrome? I think there's a good chance I could have this. I'm getting a urinalysis done, among other things (testing for anemia and diabetes, nutrient levels, kidney and liver function, cholesterol levels, thyroid hormone levels, and food allergies. I hope I get some answers). I don't have a doctor at all currently. All they've done is put roadblocks in my path and have refused to test me or even consider why I am there, so I'm not going back until I know the doctor is good or my health is better, one of the two. Until then, I'm doing what I can to help myself. Thanks, Claire, there's no rush. Take care.
  8. Gf Medicine

    I called them awhile back, and they claimed they don't add anything containing gluten but that there could be a risk of cross-contamination.
  9. While my celiac disease went undiagnosed, I first had an appendicitis attack at 20, then I had to have an appendectomy that day. Two years later, I had bad tonsillitis, and my tonsils were removed a year later. Here is a paper that talks about the association with celiac disease: Dig Dis Sci. 2001 Oct;46(10):2206-8. Increased risk of surgery in undiagnosed celiac disease. Ciacci C, Cavallaro R, Romano R, Galletta DS, Labanca F, Marino M, Donisi M, Mazzacca G. The diagnosis of celiac disease patients may be delayed by misdiagnosis. Our aim was to evaluate in celiac patients the prevalence of surgery before diagnosis. Two hundred forty-four adult celiac patients and 232 controls were retrospectively investigated for surgery before diagnosis of celiac disease. The prevalence of surgery was increased in celiac patients versus controls (P = 0.001). Frequency of appendectomy (P = 0.0001), tonsillectomy (P = 0.009), and hernia repair (P = 0.05) were increased in celiac patients versus controls. Appendectomy was related to anemia (P = 0.006) and abdominal pain (P = 0.005); tonsillectomy was related to diarrhea (P = 0.02) and weight loss (P = 0,04). Appendectomy was elective in 73% of celiac patients and in 46% of controls. Cosmetic surgery was increased in celiac patients versus controls (P = 0.058). In conclusions, surgery before celiac disease diagnosis is increased in celiac patients compared to controls, as a result of doctors' misdiagnosis and/or poor health status, which increases the demand for medical intervention. The frequency of cosmetic surgery in celiac patients may be related to impaired psychological profile of patients.
  10. I'm glad to have the ability to do something about the progression. I am actually casein free and stopped eating all dairy products when I quit having gluten. I had IgA antibodies to casein. I mentioned being casein free (Gluten-free Casein-free) in my sig, but I just changed it so it would be more clear. I react to casein in the same way I do to gluten. I'd read about its similar structure to gluten while trying to find out why I had such problems with it. Good luck with your test. I hope you can get to the bottom of this soon. I live in Colorado. With your background, do you have any added knowledge about bone disorders or about ways to help muscle atrophy? You've had a lot of good information.
  11. You can look up the name of the vitamin on their site, and they will list the allergens that the particular product does not contain. If it doesn't say "no gluten" under the ingredients, it's not safe. They have a lot of gluten-free vitamins. Most will have the allergen-free list on the back of the bottle. I can look them up for you if you aren't able to find them, just let me know the names. It appears that the Mega Men supplement contains gluten, if that's what you have. Here is their site: http://Lame Advertisement/products/Default.aspx?lang=en
  12. Aching Bones

    Here are a few possible causes: 1. He could have low testosterone, common with malabsorption (which can lead to thinning bones) 2. He could have a bone disorder from malnutrition (osteomalacia causes constant bone pain) 3. He could have thyroid disease, which is associated with celiac disease (hypo can have a fibromyalgia effect, and hyper can cause bone and joint pain)
  13. I never doubted your computer literacy--I know plenty who are computer illiterate and they would have difficulty finding this place at all. I don't know what happened exactly with your erased message. I tend to select all and copy the message repeatedly (sometimes pasting it into another application) while I'm doing anything in a web-based form because it's too easy to lose all your work. I've certainly taken the route of being proactive with my health for many reasons. I bet they don't have many neurologists on site in the ER, so there probably is a lack of specialists. In fact, I think the main ER doctor might have evaluated it herself. Can you get those gene tests done somehow? I looked further into NAC and CoQ10. I see what you are referring to, in that it (NAC) can halt the progression but not reverse the disease. They are both helpful, but my earlier impression of CoQ10 was based on what most believe is common and important, such as prevention of cancer or Alzheimer's. So, there is a lot more to it than I thought. One of the abstracts recommends taking 400 mg of CoQ10 daily along with 2100 IU of Vitamin E to help Friedrich's. I am definitely going to get both NAC and CoQ10 and take them regularly. Thanks for pointing out their connection to ataxia, or I never would have considered this! Supplements that do not contain wheat, gluten, yeast, dairy, or soy: http://Lame Advertisement/productDetails.aspx?&MS...=126811〈=en http://Lame Advertisement/productDetails.aspx?id=731910〈=en
  14. I think I have something similar. I had urinary tract infections all of my life, so I tried to stave them off with daily cranberry juice. Now that I have been on the gluten-free diet, I no longer get the infections, so I stopped drinking the cranberry juice. There is still something that persists that feels like a bladder infection. It feels like getting a chemical burn with a frequent urge to urinate. I tend to get it at the start of menstruation. I drink 1.5 to two gallons of water a day. Drinking large quantities of water that haven't been filtered by reverse osmosis could cause added diarrhea that will slow your recovery. I recently switched to filtered water (the grocery store has generic brands of water. I plan on getting an actual filter for the sink eventually) and went from 30 bm's a day down to 3-5 a day right away. The intestinal cramps are pretty much gone from that, too.
  15. A Hard Time With Fatty Foods?

    tarnalberry: Very interesting. That may be my problem as well. I've always had trouble with fried foods but not baked goods or stir fries made with olive oil. I wonder what causes this? Do any of you without casein intolerance experience this reaction? Jnkmnky: I had an ultrasound on my gall bladder and liver before, and they said they were normal, but that doesn't necessarily mean I don't have a problem now. I was told I didn't have thyroid disease a few years before I ended up being diagnosed. I'll look into it, especially if these issues continue. I do have some of the risk factors for gall bladder disorders.