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Mags88

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  1. I have been gluten free for about 8 months with occasional glutenings, so the celiac panel is out of the question for me.  I have been to a gastroenterologist and she is doing a endoscopy on Tuesday just to check for any damage still in my small intestine.  My symptoms were pretty severe, so together we opted for the genetic testing instead of a gluten challenged because of how bad it would be for my health.  

    I understand that it isn’t an official diagnosis, but with all of the symptoms and the gene, I’m ok with accepting it as “my diagnosis”.  My question is did I get the gene from my mom AND my dad.  Is there a way to know that from my blood results? I realize I can’t know which one it came from, but is there a way to know if it came from one or if it came from both?  Thanks!! 

  2. 4 hours ago, Mags88 said:

    I was hoping someone can help interpret these results.  My doctor called and said I tested positive for dq2 and mailed this to me. From what I can tell, it looks like both of my genes are dq2.  Is this correct? 8ADA8168-8EAA-498B-96D5-7AF4802C47A5.webp.6bc689199231003022ea24479443407f.webp

    A little more to add.  From what I understand, you have two genes - one from your mom and one from your dad.  So my question is, does this mean both of the genes I inherited are celiac genes?  Or is this one gene composed of different parts?  Obviously, I’m no geneticist. ?

  3. I saw a gastroenterologist for the first time yesterday, after being gluten free since November.  She said all of my symptoms (before November) were consistent with celiac.  She ordered the genetic blood test, and I’ll also have an endoscopy (in case there is still damage in small intestine and to rule out anything else going on) and a colonoscopy (dad passed away from colon cancer in 2015)) in a week and a half.  She explained and I am aware that I will probably not get an official diagnosis since I have been gluten free for months.  She said the only way to get an official diagnosis would be do to the gluten challenge, and she doesn’t suggest it because it would be bad for my health.  Anyway, this rash on my thigh has popped up and I’m wondering if it could possibly be DH.  I don’t want to go to dermatologist if it’s definitely not, thoughts?  I guess I should say even though I have been gluten-free since November, I have accidentally been glutened several times since then.  The most recent being about a week ago.  Thanks in advance for any input - this forum has been so helpful.

    99483095-6011-40D9-80BC-DC17E90F1C23.webp

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