HeatherR

Caryn, I have fibroid tumors and an enlarged uterus. Also some pain that gets pretty fierce at times. HeatherR Ravenwoodglass, I have many of the same symptoms as you wrote about yourself. I was curious about the nerve damage, whether it stays or not. I am on year 13 of misdiagnosis, and am concerned that much of my problems will stay. When you...

Well, I talked to my primary doctor today, who filled out the lab work for me at my son's pediatrician's request. But he doesn't know what it means!!! He said I have one of the genes: HLADQ2? He is sending the lab work to my son's GI, so I will get more information on Oct. 5. I've been staying on gluten until I know whether I have to have a biopsy....

Thanks so much for your replies! Yes, my son is off all gluten, and has been for years. He is also off all dairy. If we had to give up rice and potatoes we'd be sunk! We see the g.i. specialist next week and I am going to ask her about the biopsy. I know that six weeks of eating gluten will not show anything on the biopsy. I just feel so bad for him...

My son has severe joint pain. Does anyone else deal with this? He is 12, and is allergic to ibuprofin, Naproxin, basically the meds they use to help with this. I give him acetomenephin (sp?) but it only helps so much. Right now both of his heels are hurting him, and it makes it difficult to walk. Any suggestions? Is this something that will stay forever...

I get the metallic taste too! I have at one point or another had everything you've mentioned except weight loss (I Wish!!). When I told my doctor that my tongue feels swollen, she rolled her eyes. I'm just waiting for my bloodwork to come back. I've been tested for lupus, but it was negative. I'm not ruling it out, since it can take a few times of...

Thanks guys. I have been eating gluten, always. Is there a different test than the one I did? It just said celiac profile. I guess I'll find out soon enough. I really want to get started just to get some of this weight off. I'm having surgery soon, and I'd like to have a little headstart, ya know? HeatherR

Walmart's brand of soy sauce is gluten free and very good. HeatherR

Thanks for the input. I am still eating gluten at the moment in case I need to be tested. I have gained almost 60 pounds due to new meds for pain and such, and feeling increasingly desperate. As soon as I get the test results back, I'm going on low carb again. I feel much better and maybe I can get some of this weight off, or at least stabilize. I...

Hello all, This is my first post, but I've been reading through your posts. I don't even know where to start. My son has the celiac gene and has been BACK ON wheat for the last month or so to have his biopsy. He is 12. We've been dealing with this problem since he was five and the doctors would just give him a laxative and tell him he needs to try harder...