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carynanne

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  1. I must not be understanding this correctly. Is the tranglutaminase test for antibodies to gluten? And if so, how can there be any antibodies to gluten at all in the blood stream and the patient not be considered gluten sensitive? I can understand how a higher concentration of antibodies could suggest a higher sensitivity, but if there are any antibodies...
  2. Hi. To add to the website answer, in short: With autoimmune diseases (I have a thyroid one), there are 2 factors to consider: genes and the environment. You have to have the genes to carry the risk of an autoimmune disease, but something in the environment has to trigger it. The trigger for celiac is unknown. If you have it, you've carried a propensity...
  3. There are 2 tests online that I've found, though I haven't done either of them. I'm still waiting on my labwork (it's been over a week--??), but here are the websites for them: Open Original Shared Link A saliva test to see whether you carry the genes for celiac. Apparently about 30% of the population carries them, though, so this sounds interesting...
  4. The reason I change my meds periodically (which consists of taking a week off of them here and there, or taking an additional 1/2 pill a day for a week at a time occasionally) is because when my hashimoto's was diagnosed, it was diagnosed based solely on an antibody level in the 1700s with a reference range of 0-35. My TSH was 4 and my T4 was and has always...
  5. Your TSH was 20??? Wow! Mine was 4 both times they tested me before diagnosis. When I was diagnosed with Hashimoto's, it was my antibodies that gave it away --- they were insanely high. The TSH, I'm finding, is mostly useless in determing appropriate levels of Synthroid: I change mine based on symptoms, without permission. And since only some of my problems...
  6. Wow. Your story sounds EXACTLY like mine. I'm 30, have Hashimoto's which I was diagnosed with 3 years ago, have always had irregular periods, everything blamed on thyroid, normal colonoscopy, recent rash, infertility (though I have 2 kids -- I had to try hard with drugs for them), and an initial celiac test (uncertain what tests were run exactly) that...
  7. Thanks! I didn't think to look at their website (duh). If these tests come back negative, I think I'll come a little more prepared and show them where they can find them. It sounds crazy, bt I really wish I could just get a diagnosis of celiac so I can stop wondering... even tho that means that I have a "disease." At least it would explain things.
  8. Anti-gliadin (AGA) IgA Anti-gliadin (AGA) IgG I dunno. I went to a Wellstar (they're big in the Atlanta area) physician's clinic, and they use Quest. I wonder if these labs are listed in a different section of the book. Or if they needed to say "antibodies" after them. The doctor was perfectly friendly about it, but he sort of acted like he had...
  9. [ Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Total Serum IgA
  10. Also, does anyone recommend that MYCeliacID genetic test that is like $369?
  11. Hey, I was on here 3 years ago looking for a diagnosis, but when I went to the GI doctor they ran a million GI tests, with only 2 of the tests I know are for celiac -- the gluten antibodies one and an ANA. Gluten antibodies was negative. The ANA came back positive, so they ran several other tests for lupus, diabetes, etc., and they found out I have Hashimoto...
  12. Thanks!! You people rock.
  13. Hi, I'm going to a GI doc tomorrow and I read in here somewhere recently that there is something called a "complete celiac blood panel" which can give you a very strong idea of whether or not you have celiac disease. I can't seem to find where I read it. Can anyone send me a link? I think it was 4 tests. I want to go to the doc tomorrow prepared and...
  14. I just thought I'd write in and say that I just got up out of bed at 12:30 because my stomach was growling and I couldn't sleep. I guarantee you I ate a full meal for dinner... I wonder if it's to do with malabsorption? Your body not using the calories properly because of damaged villi? Assuming we're celiac, of course. (I've already half-convinced myself...
  15. I should start with: I don't know yet if I'm celiac but strongly suspect it. That said, I have at least a similar problem: I eat ALL THE TIME. I snack on anything I want, eat large amounts of fatty foods (I stay away from sugars because if I eat those, I'm STARVING half an hour later) and don't exercise (just because I've recently gotten out of the habit...
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