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carynanne

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by carynanne

  1. carynanne
    I must not be understanding this correctly. Is the tranglutaminase test for antibodies to gluten? And if so, how can there be any antibodies to gluten at all in the blood stream and the patient not be considered gluten sensitive? I can understand how a higher concentration of antibodies could suggest a higher sensitivity, but if there are any antibodies...
  2. carynanne
    Hi. To add to the website answer, in short: With autoimmune diseases (I have a thyroid one), there are 2 factors to consider: genes and the environment. You have to have the genes to carry the risk of an autoimmune disease, but something in the environment has to trigger it. The trigger for celiac is unknown. If you have it, you've carried a propensity...
  3. carynanne
    There are 2 tests online that I've found, though I haven't done either of them. I'm still waiting on my labwork (it's been over a week--??), but here are the websites for them: Open Original Shared Link A saliva test to see whether you carry the genes for celiac. Apparently about 30% of the population carries them, though, so this sounds interesting...
  4. carynanne
    The reason I change my meds periodically (which consists of taking a week off of them here and there, or taking an additional 1/2 pill a day for a week at a time occasionally) is because when my hashimoto's was diagnosed, it was diagnosed based solely on an antibody level in the 1700s with a reference range of 0-35. My TSH was 4 and my T4 was and has always...
  5. carynanne
    Your TSH was 20??? Wow! Mine was 4 both times they tested me before diagnosis. When I was diagnosed with Hashimoto's, it was my antibodies that gave it away --- they were insanely high. The TSH, I'm finding, is mostly useless in determing appropriate levels of Synthroid: I change mine based on symptoms, without permission. And since only some of my problems...
  6. carynanne
    Wow. Your story sounds EXACTLY like mine. I'm 30, have Hashimoto's which I was diagnosed with 3 years ago, have always had irregular periods, everything blamed on thyroid, normal colonoscopy, recent rash, infertility (though I have 2 kids -- I had to try hard with drugs for them), and an initial celiac test (uncertain what tests were run exactly) that...
  7. carynanne
    Thanks! I didn't think to look at their website (duh). If these tests come back negative, I think I'll come a little more prepared and show them where they can find them. It sounds crazy, bt I really wish I could just get a diagnosis of celiac so I can stop wondering... even tho that means that I have a "disease." At least it would explain things.
  8. carynanne
    Anti-gliadin (AGA) IgA Anti-gliadin (AGA) IgG I dunno. I went to a Wellstar (they're big in the Atlanta area) physician's clinic, and they use Quest. I wonder if these labs are listed in a different section of the book. Or if they needed to say "antibodies" after them. The doctor was perfectly friendly about it, but he sort of acted like he had...
  9. carynanne
    [ Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Total Serum IgA
  10. carynanne
    Also, does anyone recommend that MYCeliacID genetic test that is like $369?
  11. carynanne
    Hey, I was on here 3 years ago looking for a diagnosis, but when I went to the GI doctor they ran a million GI tests, with only 2 of the tests I know are for celiac -- the gluten antibodies one and an ANA. Gluten antibodies was negative. The ANA came back positive, so they ran several other tests for lupus, diabetes, etc., and they found out I have Hashimoto...
  12. carynanne
    Thanks!! You people rock.
  13. carynanne
    Hi, I'm going to a GI doc tomorrow and I read in here somewhere recently that there is something called a "complete celiac blood panel" which can give you a very strong idea of whether or not you have celiac disease. I can't seem to find where I read it. Can anyone send me a link? I think it was 4 tests. I want to go to the doc tomorrow prepared and...
  14. carynanne
    I just thought I'd write in and say that I just got up out of bed at 12:30 because my stomach was growling and I couldn't sleep. I guarantee you I ate a full meal for dinner... I wonder if it's to do with malabsorption? Your body not using the calories properly because of damaged villi? Assuming we're celiac, of course. (I've already half-convinced myself...
  15. carynanne
    I should start with: I don't know yet if I'm celiac but strongly suspect it. That said, I have at least a similar problem: I eat ALL THE TIME. I snack on anything I want, eat large amounts of fatty foods (I stay away from sugars because if I eat those, I'm STARVING half an hour later) and don't exercise (just because I've recently gotten out of the habit...
  16. carynanne
    My sentiments exactly!!! The more I read about it, the more I think undiagnosed celiac disease is everywhere!! I was reading a story about an autistic boy in Reader's Digest, that described how a gluten-free diet had helped him to some degree, and had also helped many other autistic children virtually overcome autism. We wonder why children nowadays have...
  17. carynanne
    Why are you having a hysterectomy? Caryn
  18. carynanne
    It has been 5 or 6 days since my last post here, and I just wanted to tell you that I have made an appointment with a gastroenterologist to be tested, but here's what's interesting: Ursula mentioned that amenorrhea is a sign of malnutrition. I hadn't considered that, for some reason. I didn't want to experiment with a gluten-free diet because I want accurate...
  19. carynanne
    Jules: I am so sorry you are having so much difficulty! We just moved to a new location and bought a house, and are now worried about being able to afford it because my husband's employer promised him more money than they are giving him. And he is a tough person to be around under stress, too. It seems like so much is at stake in your life- your brother...
  20. carynanne
    I do have to say that while I was in college I gained my freshman 15 and kept it on till I graduated, then lost it all plus about 10 pounds right after graduation. Even during that time I had very irregular menses. Go figure. Caryn
  21. carynanne
    The main reason I would want to get a diagnosis would be to prove to my family, who all suffer from one malady or another that are possibly related to malnutrition, that celiac is a possibility for them, too. My sister has an seizure disorder that started when she went off to college, and has progressively gotten worse. Epilepsy does not run in our family...
  22. carynanne
    How close are your exams to your biopsy? Could you go gluten-free until the exams, then get back on gluten, or are they within days of each other? Did the doctor tell you that you had to stay on gluten for the entire month?
  23. carynanne
    Hello! I am a 27yr old F with issues. I have always been very thin and wiry, and I did not start my period until I was 16. It's been irregular ever since, and I go anywhere from 2 months to 1 1/2 years between menses. I was diagnosed 2 years ago with Polycystic Ovary Syndrome, but that diagnosis doesn't sit well with me: true, I had cysts on my ovaries...
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