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AliceW

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by AliceW

  1. AliceW
    Bklynceliac, What do you mean by "a prolonged shot"? 2 months? 6 months? A year? And what about accidental gluten ingestion? Would accidentally eating a bit of hidden gluten set me back to square one every time? I'm really worried about my ability to avoid gluten 100%. It seems to be everywhere! (Incidentally, I'm in Brooklyn too..near Prospect...
  2. AliceW
    Do you mean that I may not have a gluten sensitivity, despite these test results, if I don't have the genes for it? The eosinophilic disorder thing is interesting...I read up on it a bit after you first suggested it to me. However, everything I read said that eosinophilic esophagitis typically doesn't respond to acid blocker medications, and my heartburn...
  3. AliceW
    OK, so I just got my enterolab results back, and I'm not sure how to interpret them, or exactly what to do now. I think I need to provide a little bit of back story, so please bear with me. My story in brief: I had perfect digestive health until I had a terrible case of mononucleosis when I was 19. I "recovered," but from that point onward I have had severe...
  4. AliceW
    OK, so my blood test results for IGA and AGG were negative, but those were the only tests my dr did for the celiac screen! Ugh. I was hoping to get an answer one way or the other, but this doesn't make me feel like I can know for sure. Now I'm wondering whether I should 1) Make an appointment with Dr. Green at the Columbia U celiac center to have a...
  5. AliceW
    I don't blame you. In contrast to the others who have responded, I had pretty bad experiences with previous endoscopies, and I, too, am debating whether or not to do another one to have the biopsy. I dread the prospect of another endoscopy...I've had two because of my long-standing GI issues, and both were very unpleasant...I gagged and retched a lot...
  6. AliceW
    Hi everyone, I think I've decided to proceed as follows: I've already gotten the blood tests (I'm waiting for results now), and I'm going to get the enterolab tests. I'll then get a biopsy only if my blood test results are positive AND the gene test is positive. And, I'm going to try the gluten-free diet (unless my enterolab results are 10...
  7. AliceW
    OK, so I LOVE to bake bread...I have a bread stone, a peel, baguette pans, I've made my own starters, you name it. People love my bread (if I may say so myself! ) and look forward to it at my dinner parties. My BF is a total bread fiend and really loves my homemade bread, too. This is all great...except that I have a growing suspicion that I have a...
  8. AliceW
    Hi everyone! Thanks for the insights. I'm pondering the whole thing and will let you know what I decide to do next. I'm definitely going to try the diet no matter what, though...the things in question are the endoscopy and shelling out the $$ for enterolab. It's only $350, though, so maybe it's better just to do it. Maybe I'll at least wait until...
  9. AliceW
    OK, I had an appointment with my primary care doc, and he is running a Celiac Panel. He also wants me to get an endoscopy (mostly because of my chronic gastritis and acid reflux), but I'm reluctant, even though I know it's silly. I just found the previous two endoscopies I've had to be SO unpleasant...major retching and gagging even though I was very sedated...
  10. AliceW
    Wow, Laura, this is extremely helpful!! As it happens, my yearly physical is scheduled for Monday, so I am going to ask for the tests you suggested. (Anyone have any suggestions about how to broach the topic with the doc? Just tell him about my GI woes and tell him I want to rule out gluten intolerance for peace of mind, I guess?). So, I I (hopefully...
  11. AliceW
    Wow, Laura, that's so interesting that mono seeems to have triggered celiac disease for you!!! It has always seemed so weird and suspicious that I would have NO gastrointestinal problems whatsoever before having mono, but terrible symptoms requiring daily medication ever since...but every doctor I've spoken to has just shrugged when I've mentioned that. ...
  12. AliceW
    Thanks, jerseyangel and carlab! In a weird way I almost hope that gluten intolerance is what's causing my problems, because at least then I'd have a potential way to solve them. But on the other hand, I ADORE pasta and bread (I love to bake bread) and I live in NYC and eat out all the time, so going gluten-free would be a major lifestyle overhaul. I know...
  13. AliceW
    Hello all, This is my first post, and I'm hoping someone can help me...I'm very confused! I have been having various GI issues for many years, and lately I've begun to wonder if a wheat intolerance could be to blame. I became very sick with mononucleosis at the age of 19, and from that point onward I had terrible gastritis/acid reflux on a daily basis...
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