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AliceW

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by AliceW

  1. AliceW
    Thanks everyone for the good wishes!! This board has been incredibly helpful to me. Feeling this good without any drugs whatsoever feels like being in the Twilight Zone...has any one else had that experience? I feel like I'm still waiting for the other shoe to drop...like it's too good to be true. I guess I'll just have to wait and see if it continues...
  2. AliceW
    Just had to post this: I have had NO anti-reflux medication and not a single antacid tablet since Tuesday!! And I'm someone who had been taking daily high doses of prevacid plus multiple rolaids every day for years and years. I've been gluten-free since Dec. 15, 2006--about 5 weeks. Astonished does not even begin to describe my feelings about this. ...
  3. AliceW
    I believe you only started the gluten-free diet in mid-December, and have been on and off of it since then? If that's the case, your blood test results might still be positive for celiac (if you have it) if you just keep eating gluten for another week or two. So it might be worth getting the blood tests, at least. That way if they are positive, you can have...
  4. AliceW
    Thanks for the suggestions, guys! I'd heard of the Triumph cards, but didn't know whether or not they were any good. Now that I have an endorsement I think I'll order them.Thanks again! Alice
  5. AliceW
    There seem to be a lot of books out there about navigating restaurants when you are gluten-free, but I'm not sure which one one to try. I live in New York City and love to eat out in ethnic restautants..mostly Japanese and Indian, but also Chinese, Thai...but I am currently afraid to go to any of those places because they use so many sauces and so many unfamiliar...
  6. AliceW
    I really hope this is true, because I adore sake! Also, does anyone know if this issue affects the safety of miso, too? I think miso uses starter cultures too. I wish I could find a guide to the gluten status of asian foods, because I love them and have been mostly afraid to eat them since starting my gluten-free diet. Anyone have any thoughts?? ...
  7. AliceW
  8. AliceW
    I think it's a very good idea to get the blood tests, so that you have a better sense of whether you have actual celiac disease or simply a gluten intolerence. As you're well aware, celiac disease is very serious...if it's not treated with a strict gluten-free diet it can lead to osteoporosis, cancer, etc. Do be aware, though, that if you're already gluten...
  9. AliceW
    Nu-world foods (google them for their online store) makes wonderful gluten-free amaranth-based cereals. I like their basic original Amaranth-Os--they ahve a great crunchy texture and are full of fiber. They are unsweetened, so they are bland by themselves, but with a teaspoon of maple syrup they are yummy. they also have a Cocoa Snaps cereal that is DELICIOUS...
  10. AliceW
    Hi Jerry, I had very similar result to yours: fecal antigliadin 27 units; fecal TTG 33. My conventional celiac blood tests were normal. I started a trial gluten-free diet last month (on 12/15) and seem to be responding amazingly well to it so far, but I'm withholding judgement for the time being. Good luck! Alice
  11. AliceW
    I"ve posted before,but it's been a while, so here's my background again (sorry this is so long!): Perfect digestive health until contracting a severe case of mono at age 19; daily reflux/heartburn require high doses of medication for the entire 15 years since. Intermittent diarrhea during my 20s; given a diagnosis of irritable bowel syndrome. Constipation...
  12. AliceW
    Thanks for the suggestions, guys! I'lll check out the Magick Botanicals stuff. Also, what was the specific type of Ouidad gel you use, TinkerbellSwt? I used to use their Climate Control and loved it, but it has wheat proteins (ie, gluten) and wheat amino acids in it. Alice
  13. AliceW
    Hi everyone, Can anyone suggest a good gluten-free hair gel for curly/frizzy hair? Even though I'd initially decided not to worry about my hair gel, I've decided to try to using a gluten-free one for a while. My hair is dry and tends to be very frizzy, so I need something that will encourage it to curl nicely instead of becoming like a halloween wig...
  14. AliceW
    Hi FF, Yeah, because I love to cook I know that sauces are usually thickened with flour . (I thicken them at home with cornstarch now. ) But the fish yesterday was in a light, clear broth, and I DID ask whether or not there was ANY flour in the recipe, and they said no. What else could I have done, beyond choosing something that seemed safe and...
  15. AliceW
    Thanks for the feedback, everyone. I am feeling much better now. It was just strange; the second week gluten-free I was feeling great, and then I felt terrible again for no apparent reason. I wish I had a crystal ball I could look into and just know for sure what I can eat and what I can't! It is so hard to tell, because it seems like reactions can be...
  16. AliceW
    Andrea--Thanks for the feedback. I think the most likely explanation is that the increase in symptoms I've been experiencing is unrelated to my having just started the gluten-free diet. It is a little weird, though. I will look into diary and soy as possible culprits. I think I am going to try an elimination diet concurrently with my gluten-free diet...
  17. AliceW
    OK, this is weird! As I've stated in previous posts, I had negative conventional bloodwork but tested positive for anti-gliandin antibodies and TTG through Enterolab, so I started an extended gluten-free trial in mid-December. I noticed no real change after going gluten-free for the first 2 weeks or so. Then, during the last week I swear I've been feeling...
  18. AliceW
    As always, thanks to everyone for the very helpful replies! I feel reassured. You guys are such a smart, supportive bunch of people; I feel really fortunate to have stumbled onto this site! Alice :)
  19. AliceW
    Hi everyone, Another CC question from a newbie! It seems that there are two categories of gluten-free foods: those officially certified to be gluten free, processed in a dedicated gluten-free facility, etc, and those that do not contain gluten ingredients but that aren't guaranteed completely gluten-free due to manfacturing processes. It seems to...
  20. AliceW
    Hi everyone, I have been making my best efforts at being gluten-free since mid-december, and for the most part I've done very well, I think. I haven't knowingly eaten anything containing gluten since the first day or two day of my diet, but it was a bit rough through the holidays...meals at my parents' house, who were supportive but clueless, so I'm sure...
  21. AliceW
    Thanks, guys! The gluten free diet is going fine so far...it's actually less hard than I thought. I was already eating mostly whole, unprocessed foods and cooking a lot, so avoiding gluten hasn't been as hard as I thought it would be. I even ate out on Saturday, and that was OK, too...I just called the restaurant ahead of time, and they were very accomodating...
  22. AliceW
    Hi everyone, Just hoping to get a bit of feedback. I've now been tested for celiac disease via enterolab, and also gotten conventional testing (a full celiac panel) from Prometheus Labs. Here are my results: Enterolab: Fecal Antigliadin IgA = 27 (Normal Range <10 Units) Fecal Antitissue Transglutaminase IgA = 33 Units (Normal Range...
  23. AliceW
    Duh! How long does it take before you stop making silly mistakes like that? It's silly...I did lots of homework, made sure my medications and even my makeup were gluten-free, then ate something totally full of gluten in a moment of inattention. I really want to be 100% gluten free, because I want to know for sure whether or not avoiding gluten...
  24. AliceW
    Hello fiddle-faddle, Your history sounds a bit like mine...severe chronic reflux, two endoscopies that turned up nothing, relatively minor intestinal symptoms...so I'm curious: what led you to go gluten-free, and did going gluten-free make your reflux go away? Also, (I've asked this question elsewhere on the board), how long did it take if so? Thanks...
  25. AliceW
    Hi all, I don't know if any of you remember my previous posts, but I'm in the process of exploring a possible link to gluten for my chronic, severe reflux and gas/bloating/constipation problems. I was tested by enterolab and my results came back positive for gluten intolerance--Fecal Antigliadin IgA 27 (Normal Range <10 Units), Fecal Antitissue...
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