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About statedrone

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  1. I did do a check of all my shampoo, soap, deodorant, toilet paper, paper towels, laundry and dish soap, and toothpaste. I don’t use make up or lotions, they tend to bother me. When I first started the gluten free diet, I was sort of scared, so I stuck with a meat and vegetable diet. My usual was natural boneless, skinless chicken breasts, steamed vegetables: corn, broccoli, cauliflower, green beans, carrots, sweet potatoes, celery, cabbage, and peas. Then after about 3 weeks, I started in on red meat, pork, potatoes, rice, added milk, butter, etc back to my diet. When I first starting eating gluten free, I wanted to go as basic as possible, and then add back slowly. I have been keeping a food journal of what I eat during the day. But I haven’t really been able to pinpoint one thing from another. The same symptoms appear day after day. Since this past weekend, I have gone back to the basics, chicken and vegetables, with the occasional fruit. We will see how that goes. I am going to call around tomorrow and see if I can find a less expensive doctor, and get some blood work done, but I know that will take forever. I do need the money, but also I am going stir crazy sitting here. Sick or not, I do not sit well. I need to be doing something. But then I do not have the energy to do a lot of something. When I am at home, my mind starts to wander, and then I get stressed about things I have absolutely no control over. Can you say control freak? Thanks for the advice, and the ear. I was in a pouting mood tonight my husband is asleep and the cats and dogs do not listen well.
  2. I guess I will add my "Me too" to the list. Chemicals have always bothered me. I also have sensitivity to any and all make-up, and perfumes. I get physically sick. Most household chemicals make me break out, and I have difficulty breathing. I did see an allergist about 6 years ago, and found out I was allergic to literally everything he tested me for. Of the 65 tests I was allergic to 64. I went for 3 years and got poked every 3 days or once a week, and I NEVER noticed any improvement. Finally I gave up. The only thing it did for me was make me feel worse.
  3. I will try and make this as short as possible, but even in written form I am long winded. I am frustrated, irritated, and just down right tired. I am not even too sure where to start. As I posted in my introduction post, due to being sick I lost my job, and my insurance. The COBRA was so expensive I could not afford the 700.00 a month premium. My regular doctor was in Internist, and just to walk in the door is 125.00. He was basically useless, as was the gastroenterologist. They both told me that since my sister had celiac, I had a better understanding than most and I didn’t need a nutritionist, etc. Also that since my blood work was fine back in March; they saw no reason to run additional tests. From March to August I lost 70 pounds. You think there may be a problem???? I guess I am the only one who thought so. I have gone gluten free, I am taking vitamins daily. I am eating healthier than I ever have in my whole life, but I still feel like crap. To run down the partial list: joint/muscle pain, fatigue, weakness, insomnia, occasional migraines, brain fog, and diarrhea still 2 or 3 times a week. I know it takes time for the body to heal but I have not had a bit of gluten since August 17, 2006. I gave away or threw out all the gluten in my house, and I have not eaten out anywhere. Even when I went to a relatives for Thanksgiving, I brought some of my own food, and my MIL triple checked everything for me, before I ate it. I worked in the criminal justice/social services/non-profit field. I have 2 bachelors and a master’s degree. I worked hard, very hard. But by the time I was diagnosed I was so tired, and so sick, and so mentally and physically exhausted, I was at a point where I could no longer function. I have spent the last 3 months learning how to cook again, and getting my body and mind back into shape. But it feels like it is not working. I have been out on the interview circuit, and have had a few interviews. Then the question comes up why did you leave you last job? I do not want to lie and they can call my last employer and confirm what happened. Also my job before that I was out sick quite a few times, due to surgeries (that I now think were related to celiac) so I tell them. But I also tell them that before that I had perfect attendance, and I am better now. But as soon as I tell them, I can see the look of panic on their face, and I can kiss that job goodbye. In addition, to that, I am not even too sure I am able or even capable of going back to work, and working the 50-80 hours a week. Every job I have ever had that was my usual work week. I tried temp work back in October, I made it a week, and I could not go on. When I would get home at night I would fall into bed, unable to do anything. I guess I am at an impasse and not too sure where to go from here. I guess what I am asking for is any advice? Any words of wisdom? Anything?
  4. Elfkin, I just wanted to say THANK YOU!!!! Tonight my husband and I went to his cousins for an early Thanksgiving dinner. They knew about my Celiac and really did try to accommodate my restrictions. I told them I would bring some desserts and my deviled eggs. I made your pumpkin bars last night (my only change was I added some Xanthan gum). I also cut the cake in half and on one section poured the icing and on the other section I dusted powdered sugar on it. The bars were a HUGE success. My husband's aunt made a homemade gluten filled spice cake, and after everyone got a sample of mine and tried a sample of hers, they really liked the pumpkin bars the best. Even she said it was excellent. In fact my bars were all eaten and her cake was almost whole. I got asked for the recipe by everyone there. I just want to say thank you. Making this and having it turn out so good really boosted my confidence.
  5. Hi Stef-Ani And welcome to our little corner of paradise. I too was recently diagnosed (August of this year). I have a sister who was diagnosed last year, and I thought I had a handle on it, but I have to say I was very overwhelmed. It will be okay. As everyone else has said take a deep breath and relax it will get better. As so many others have said start with the basics. When I first found out I went through my cupboards (with a list) of what I could and could not eat, and started to pack it away. I gave my items to a food pantry and family. Rice is your friend. As is chicken/beef/pork/seafood, and vegetables. There are actually tons of things you can eat, just not anything with gluten. A basic meal for me and my husband is boneless/skinless chicken breast fried, baked, stir fried, or any way you like it. I usually will then have mashed potatoes, rice, sweet potatoes, or corn. Then I make a ton of fresh vegetables. When you look at the recipes you think to yourself how am I ever going to get the hang of this? But you do, slowly at first. *An easy recipe to build up your confidence: Peanut Butter Cookies: Pre heat oven to 350 1 egg 1 cup peanut butter 1 cup sugar Mix together above ingredients; form into balls onto a cookie sheet smooch down with a fork, put in oven for 10 minutes and "bam" your first gluten free dessert. *This is how my sister started me out. Baby steps. Last night I made pizza, and I have to say it was the BEST pizza I have ever had. I even cried as I was eating (I have been craving it now for 4 months). I was so scared I was going to screw it up that I called my sister. She asked what was the worst that could happen? It could taste bad. If so, throw it out and start anew. I am sort of a control freak so learning to "control" Celiac and not have it control me has been my biggest battle. But I am adjusting, as you will. Hang in there and ask questions, no question is dumb. Check out the internet and start reading some of the sites. Also go to the library and check out some books, even the small town library where I live had 6 books on Celiac. Once again welcome.
  6. Thank you, I never thought about the amount of soy. This is the first time I have had any soy sauce since going gluten free. Altough I didn't use a lot, it may just be my body couldn't tolerate the small amount I did get. Thank you all so much for your suggestions.
  7. Has anyone else tried to Wal-Mart Great Value Soy Sauce? It says gluten free on the label, so I bought some last week. Now I am wondering if it really is gluten free. I made fried rice and lo mein last night and used the Great Value Gluten Free Soy Sauce. Last night I started to feel SICK. Today I can hardly handle the stomach cramps, diarrhea and just general pain. I have been gluten free since 8/17/06 and I think this is the first time I have been glutened. Everything else I used last night I have used before with no ill effect. So I am thinking it had to be the soy sauce. Anyone else used it and noticed a problem? Or is it just me?
  8. I just wanted to say thank you everyone for your words of encouragement. As I stated earlier, I have learned so much. Everyday I call my sister with another tidbit about celiac I learned here. Thank you all.
  9. Since I have posted a couple of times I should introduce myself. I am 36, and I was diagnosed with celiac disease August 17, 2006. I had to make my own diagnoses and then force the doctor to give me the test. I guess I should start at the middle (the beginning would just bore you all). In 1999 I had gall bladder surgery, and after the surgery is when all of this started: gas, diarrhea, weakness, etc.). I went back to the doctor, and after seeing 2 specialists I was told I had IBS. I was given medicine and sent along my merry way. Only problem is, the medicine didn’t work. I felt worse. So I quit taking the medicine. In 2001 I had a tubal, then in 2004 I started having gynecological problems (at least that is what I and the doctors thought) I was having SEVERE cramping, pain, nausea, etc.. Six months later I have a hysterectomy, the pain continues. I was about to give up. I just learned to live with it, thought it was stress. Then in 2005 my sister got real sick. She went down to 79 pounds and was put in the hospital. She had the same symptoms. They had no idea what was wrong with her. Finally after about 4 months they diagnosed celiac. She is still way underweight (and is having a lot more problems than I am). However, we saw hope, we knew what was wrong and that is half the battle. I went back to the doctor and suggested that it may be what I had. Basically told Celiac rare, blah, blah, blah. Then this year I dropped 70 pounds in three months, had diarrhea 14/15 times a day, still they said it was IBS. I FORCED them to give me a biopsy. It came back positive. The following week, I lost my job due to missed work. (They didn’t put that down as the official reason on paper, but was told that in person). So now I am out of work and looking, and trying to get a handle on this disease. In some respects I am lucky, in that I was aware of what celiac disease was, and knew some of the lingo, and diet basics. But when it is YOU and not a family member your whole perspective changes. I felt like I had re-learn everything, I was a baby again, taking my first steps. My sister had her kids tested and one of them is positive. I have another niece that tested positive. So we are one big happy celiac disease family. The whole family has been great including my husband and mother-in-law. They are all supportive, and go out of their way to ensure we are not left out of events, and make sure that everything we eat is gluten free. It is amazing. I honestly didn’t think they had it in them. My brothers and sisters love to argue. So this is refreshing. Well enough of blathering off at the mouth. Thought since I had started to post, the polite thing to do was introduce myself. I also just wanted to say I have gotten some great information on here, so thank all of you.
  10. I get those pains often. I have had them on and off for 6 years. I had it so bad once I passed out at work. Dr. thought it was gyno problem ( had some things that were presenting as that) and had a hysto. Dr. thought pain would go away but it didn't. Then when I was diagnosed with celiac disease, and went gluten free the pain subsided quite a bit. I spoke with the specialist about the pain and he told me this: Gas builds up in the intestines (especially so with celiacs) the gas gets blocked at the intestines where they bend, the gas has a hard time making it past the bend and it can build up. Thus leading to the pain. He told me to lay either in the fetal position with a pillow between my legs or on my back with pillows under my legs and massage around the area where there is pain. That really does seem to help.
  11. I am in Portland, TN. It is just North of Nashville.
  12. I just had to post to this one. Recently diagnosed Celiac, first time poster. My sister and 2 nieces also have it. I have only been able to find these in a little health food store in Evansville IN ( I go through there to get to my sisters'). I usually have to pay about 7.00 or 8.00 dollars for them. They are excellent. I always save some back and use them in my meatloaf. My husband (non-celiac) has said he loves the meatloaf with the Glutino preztels in them better than when I made my meatloaf with crackers. I also use them for a crunchy crust for casseroles. There are a 101 uses for them.
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