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Curious and Determined

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  1. Sorry to get angry. I have to look on the bright side at what I've accomplished. I was on Nexium and my stomach was still waking me up at night, and I kicked that by cutting back on the carbs and sugars, as well as the gluten. It's just that this irregular heart scares me, and I'm not sure what's causing it. I'd like to blame it on that half pancake,...
  2. So JayhawkMom, you have no external symptoms. How do you know what's happening internally? How can you keep motivated to stick to this diet when there's not a predictable, tangible reward? I feel like I'm grasping at straws, not knowing what's causing what in my body. Last night I couldn't get to sleep because my heart was pounding and skipping beats...
  3. I've been gluten free (for the most part) for a little over two months. I'm positive by Enterolab, negative by three docs, so I get surly and "test the waters" now and then. I was feeling frisky Monday morning and ate a half of a pancake at Denny's. Question - if you were having a reaction because of gluten, how long would you have expected before you...
  4. Well, I shouldn't be surprised. I had my endoscopy follow up today. The small bowel biopsies did not show any villi damage. So the PA at the GI office summed it up very quaintly by saying, "It's an awfully hard diet to follow. You can be glad you can eat all the gluten you want!" So my GI says no celiac, my GP says no celiac, only my neurologist who...
  5. I just had an endoscopy procedure this morning, and it looks like several things going on "down there". I was out of it, but the written report says: - My GI doc found possible Barrett's esophagus and took two biopsies. - There was evidence of gastritis of the antrum, mucosa appeared erythematous (does that mean inflammation in the lower stomach?...
  6. I had some blood tests done by my neurologist too, and I had one questiion maybe someone can answer about my results: Immunoglobulin A was high at 328 (normal 70 to 312) Endomysial Ab, IgA Screen was 0.6 with no normal range given Endomysial Ab, IgA Titer said "not done" Why would they do that? Is there some sort of protocol whereby you don't do...
  7. The tests for milk, eggs. and yeast were in the normal range, 9, 6, and 7 respectively. Not what you'd call low, but under 10. You're right - if I just concentrate on fresh foods I'll get there. Thanks! I think back to when we lived on an acreage in Nebraska. I lost quite a bit of weight after moving out there. At the time I thought it was just the...
  8. I received my EnteroLab results today, and wasn't surprised to find I was gluten intolerant and that I carry both sets of Celiac genes. Fecal Antigliadin IgA 14 (Normal Range <10 Units) Fecal Antitissue Transglutaminase IgA 11 Units (Normal Range <10 Units) Serologic equivalent: HLA-DQ 2,2 (Subtype 2,2) At first I was surprised...
  9. Is there harm in trying a B-12 shot for persistent feet tingling if it appears you're OK? Neurologists haven't come up with anything else causing it. B-12 570 (180 - 914) Homocysteine 12.3 (3.7 - 13.9) Methylmalonic acid <0.1 (0 - .4) Gliad ABS, IgA/IgG showing: IgG was 7.0 with 25 or less negative IgA was 35.8, with 30 or greater positive ...
  10. My neurologist checked for B-12, and it looked OK, or what do you think? I have a daughter with Hashimoto's, so I check that often. My TSH is getting lower than ever, but my T3 and T4 are OK. B-12 570 (180 - 914) Homocysteine 12.3 (3.7 - 13.9) Methylmalonic acid <0.1 (0 - .4) Ferritin serum 186 (11 - 307) TSH .8 (.35 - 5.5) T3 125 (60...
  11. Here's the topic I've been looking for! I was diagnosed with Parkinson's in 1999, but it has progressed so slowly that my latest neurologist is calling it Parkinsonism (PD symptoms, but caused by something else), and another is calling it Stiff Man Syndrome. I have a lot of tingling in my feet. They've called it Restless Legs syndrome, but I didn't buy...
  12. My son-in-law is from McPherson, and he and my daughter met at K-State. And you're from wheat country! I'm a relatively new Texas resident, raised in Iowa, lived in Nebraska.
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