doulagrl

Thank you everyone for your responses so far. Just hearing your stories and knowing we aren't the only ones experiencing this has helped. The additional information we have received has also been very helpful. I had often wondered if there was an additional food sensitivity that was contributing to the problem. I also knew that enzymes played a key role...

Unfortunately we are on a National Health Service here which will not pursue further testing until they have a more definitive answer regarding whether or not this is Celiac's. Also our main problem has been that our son has not gained any weight since he was 2.5yrs old and he is now 4+yrs old. We've been told that in some cases the villi simply don't heal...

Our 4 yr old son has been gluten free since October of last year but we've seen little improvement so we've been referred to Great Ormond Street Children's Hospital in London and the Gastro doctor expressed concern that since there has been no marked improvement in growth and blood tests were done after his ped said to go gluten free (I'm Celiac so it was...

Thans for the advice. The doctor called and suggested a elimination test as well so DH will listen since it is the Dr's idea not just mine. By the way that cake in your profile pic looks amazing Melody

Hi, We've just had our 3.5 yr old tested for Celiacs. I was tentatively diagnosed during my pregnancy last year but was unable to have the blood test because I had already been gluten free for several months and they couldn't do the endoscopy because I was pregnant and by the time my other son was born I had been gluten free too long for the endoscopy to...

I had Hyperemesis (HG) with my last pregnancy with my son. I agree that no one can understand what it is like without having been there. My mom loaned me her laptop computer to keep me busy but even the blinking of the cursor would send me running to throw up. Our insurance company wouldn't pay for Zofran so I was on Phenegran and Reglan and the whole...

Hey Everyone, I went to see a doctor today for the first time about my suspected celiac disease. He was very understanding and after asking a bunch of questions and discussing my health history says my symptoms and then improvement on a gluten free diet are strong indicators of either celiac disease or gluten intolerance. He called a doctor who is...

Hey Everyone, I'm still new to celiac disease and could use some advice. When my son was born he had very bad colic and ezcema. I was breastfeeding him and kept a food log, eliminating one by one the things that seemed to trigger his symptoms. In the end I was down to grilled meats, carrots, peas, apples, bannanas, rice milk and rice cereal. Suddenly...

I just wanted to relate my personal experience with Rice Krispies. What led me to realize that I couldn't have gluten was the very strict diet I was on while I was breastfeeding after my son was born due to his severe colic. I only realized two years later that I had felt so great not because of the hormonal changes of breastfeeding but because of the strict...

Thank you everyone for your support I'm going to stay gluten free and I doubt I will ever go back just to get that paper diagnosis. I think my husband's concern for our son is if I put him on a gluten free diet and essentially self-diagnosis him without blood tests that I'm subjecting him to a very restrictive diet for the rest of his childhood and if he...

Hey Everyone, I've noticed that the cereals I've been eating even though they don't have wheat in them they do have barley malt extract, another that is supposed to be all oats has wheat fiber added. Are these two items off limits as well? Thanks, Mel

Hey Everyone, Has anyone else had problems with people not accepting that you are gluten intolerant based on improvement on gluten free diet? Even my husband has said, "Well can't you go back on the wheat for 3 months and get the blood test just to be sure" I"m 27wks pregnant, already carrying a child with a cleft lip which could be a result of poor...

Hey Mart, I'm so sorry you had such severe HG with your pregnancy. I was told by my midwife that the diagnosis of HG is made based on the symptoms of severe vomiting but can have a variety of causes, including but not limited to excess HcG. The fact that many of the anti-nausea drugs are actually antihistamines has led some researchers to believe that...

Thanks everyone who has responded so far Mel

Hello Everyone, I was just wondering how you found out your child had celiac disease. I'm new to this group and am awaiting testing for myself but now am strongly suspecting my 2.5yr old son has celiac disease as well. He suffered from terrible gas and bloating from birth along with ezcma which was resolved when I eliminated everything from my diet (I...