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I have Celiac disease and live in the San Diego area. I was sent to a very nice doctor named Ali Banaie. I had no idea what celiac's was and he diagnosed me after my first endoscopy. He is in La Mesa and his phone # is 619-469-5400. Good luck to your sister. Melanie Collins

Have you been gluten free? I had extreme bone pain also and since I have been gluten free, it has gotten so much better. I have way more good days than bad. I have been off gluten for almost 5 months now. It did take a couple of months for me to see a lot of improvement. I am hoping it will only get better and better. I don't cheat intentionally as...

I also was anemic and that was the reason I went to the Doc because I felt so weak and tired. My Hemoglobin was 8.9 and my stores of iron were quite low also. My hemotologist put a PIC line in my arm and I had 8 doses of Ferrlicet over a period of about 2 weeks. It brought my HMG up to 11.2 in about 1 month. After they did that they found I had Celiac...

Hey, does anybody know if the birthcontrol pill Loestrin24Fe contains gluten? My doc prescribed it to me but don't know if it is safe. I live on the West Coast so they are already closed so I can't call until Monday. Melanie

Hi Chrissy, Wow, you seem to have as many people in your house as I have. I have 6 kids,5 boys/1girl. They are 22,20,18,14,12,11. My oldest doesn't live with us any longer and has is own medical insurance so he hasn't been tested yet. I did call my GI doc yesterday and he said it would be wise for all of them to be gluten free since they all carry the...

Thanks Chrissy, I was thinking the same thing in case we run into problems later on. I am turning the whole household gluten free so hopefully things will go smoothly. Do you all eat gluten free? Did your kids get celiac disease from you or their father? My kids aren't too happy with me for passing this onto them! I am just glad they didn't have to...

Yes, they did run the TTG EMA IGA IGG, and those were positive on 2 of the 5. My GI doc said that as far as the others go that only have the gene to go ahead and have them eat gluten free since the celiac disease might just be dormant at this time.

Hi All, I just got the results back from my kids Celiac testing. They all have the HLADQ2 gene and 2 of the 5 have Celiac. I was wondering if they need to see a gastroenterologist, our primary doc ordered the test and doesn't know much about Celiac. I also am Celiac and have my own gastro doc but he isn't a pediatric doc. We are all new to this so I am...

I know this may sound like a stupid question, but if we have Celiac disease, does that mean that one or both of our parents either have it or carry the genes for it? And what are the chances of me passing it to my children? I have 6 kids so my chances are probably higher just for the sheer number of how many kids I have...They were tested on Monday so we...

Thanks everybody. I thought you would all say to eliminate foods to see if that made a difference. I am clueless on which ones or one to start with. I had no idea that I even had Celiac! I went to the doc for fatigue and anemia! Do you know if I have other intolerances if they would make my body hurt even though my stomach feels great? It just seems...

Hi all, I am getting a bit discouraged here. I have been gluten free for 2 months now. I noticed huge improvement belly wise in just a matter of a week and the bone and joint pain was considerably better. It now seems I am having more bad days than I am good. I have not intentionally ingested any gluten whatsoever. My belly troubles are okay but my bone...

I was diagnosed Celiac about 2 months ago and my GI doc said to have my 6 children tested from their primary doctor. We are using Prometheus Labs and was wondering if any of you knew which tests should be done on them. There is serology for antibodies and then there is genetic testing? Should we have them both done? My primary doc doesn't seem to know...

I am wondering if any of you know if Celiac can be tested from your stool. I have a friend who went to a homeopathic doctor and he told her that she had Celiac from testing her stool. I was diagnosed 1 month ago by biopsy and blood and I had never heard of the stool test. She also has had a chronic cough for 14 years and was wondering if Celiac could make...