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About TheOtter

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  1. I certainly didn't mean to imply that I wasn't going to take the Lyme suggestion seriously - I appreciate any possibilities! But since (according to that site) blood tests are insufficient to test for Lyme, it seems to me I should rule out dietary problems first, right? Or are you saying that the Lyme disease could in fact be causing the dietary problems? Of their symptom list, I count about 10, with maybe 4 more questionable ones. I did grow up visiting Canada a lot, so if it's very common there, I certainly couldn't rule it out. Is there any way of getting a positive diagnosis for Lyme without eliminating the other possibilities first? --Rob
  2. Thanks for the replies, both of you as well. Just what I wanted to hear (obviously). I realise it's a 100% thing, and I thought that was what I was doing. That's what makes it so frustrating. I guess I never thought that a supplement for food intolerance would contain gluten without being so marked. To me, that's just bizarre, but there you go.
  3. CarlaB: Thanks for the suggestion. I'll keep the Lyme disease in mind, especially if Gluten-free Casein-free doesn't do any good after a few months. Are ticks the only way to get Lyme disease? I do remember getting bitten by a tick (I think) one time about a decade ago, but some of my symptoms predate that by quite a while. I don't know if that makes it any less likely, or what. I suppose I'm still in the kicking and screaming phase. I resigned myself to a life without gluten, and so if that's truly it, then ok. But the thought of cutting out other groups... I guess it'll have to be ok then, too. I don't know how some of you handle it - no this, no that, no other things. Plus, the frustration of thinking you're doing the right things for months, only to find out you missed something. Think of the donuts I might as well have eaten (maybe)!! Also, thanks for sharing, Mia H. I'm glad to hear you're feeling better. I hope you can get all the way there! I think I've pretty much decided to eat whatever for 6 weeks or so, unless I hear from someone with a good reason why I shouldn't... Then I can reset, go through everything I may have missed with gluten, get a handle on the whole casein thing, and see how I feel come Spring.
  4. I need to ask my nurse for a copy of all of the blood work my doctor had done, since it doesn't show up on my profile on their website. Until then, I'm not entirely sure what they tested for... A1C might have been in there, since he did say he was going to test for some general metabolic things. Unfortunately, I didn't understand half of what he said, as I thought I'd get a readout of all of it to go over later. I'm sure I can get one if I ask. So far, the Lactaid Ultra is the only thing I've been able to determine that may have been sneaking some gluten into my diet. Other than that (I think), I've been extremely careful with foods and ingredients. It does tick me off quite a bit that even though intolerances seem to come in groups for a lot of people, a product intended for someone with a food intolerance would not mark that there is gluten in their product - especially when they have another version (the regular) that is gluten free. Boggles the mind... After reading a lot of messages around here, I've started to suspect dairy protein. I think I'll have to try cutting that out and see what happens. I'm also curious what the specialist will say. I'm very tempted to go ahead and enjoy the holidays, and then take up an elimination/challenge diet after the New Year...
  5. Hi all. I've been meaning to introduce myself at some point, and just never got around to it. I do have a quick question (I hope), and I'll post my story in one of the "Share your story" threads soon. [note: turns out it's not a quick question. Sorry!!] Back in March, I saw a doctor for the first time in a while, and for the first time ever, this new doctor was concerned about some problems I'd been having that my delusional self didn't think were all that abnormal - like someone else around here said, who compares bathroom habits these days?? The short list includes: frequent BMs (when asked, "More than 3 a day?" I said, "Are you serious?"); burping, flatulence, and bloating; mysterious joint pains, chronic fatique (partly because of the gastro stuff making it difficult to get to sleep on time, I imagine), chronic post nasal drip / phlegm, body acne... ummm... I think that's about it. Anyway, he said he suspected some kind of malabsorption problem and ordered some bloodwork done. When that came back, they called me and said I had tested positive for celiac sprue, to stop eating wheat, give it 6 months and come back for more tests (and see how you feel). Well, six months later, there was virtually no change in my symptoms (the only thing is I seem to be able to tolerate hunger better now - I used to get a bit woozy and irritable between meals). All other symptoms were the same. The blood test numbers were lower, but still high. I also took a lactose intolerance test (gross drink [which did not make me feel ill, btw], repeated blood samples), which apparently came back "medium." Lactase enzymes have not had any easily discernable results, good or bad. I can't seem to find my September results, but here are the originals, from Quest Diagnostics: Antigliadin antibody, I 72 (Abn: H) (0-19 normal) Antigliadin antibody, I 14 (0-19 normal) Tissue transglutaminase 7 (0-19 normal) I'm sure you all understand, I have so many questions, but I'll try to keep it brief if it's not too late for this one post: 1. Any idea why the first two lines seem to be the same thing, but with one high and one normal? Maybe it's cut off, and they are two different antigliadins? 2. I'm guessing I'm also sensitive to something else, but is it possible (or probable) that gluten is not my problem at all? I've been reading more and more about intolerances and delayed food allergies, and I'm wondering if these numbers may not incriminate gluten at all... 3. What would you do next? Oh, I did find out (from this forum) that the Lactaid I was using until a month ago was not gluten-free, so it's entirely possible I've only been truly gluten-free for about a month now, but still with no change for better or worse. I'm scheduled to see a gastroenterologist next month. Part of me (a big part) wants to just eat anything for a while and start all over after seeing him, maybe with some better guidance. I mean, eating wheat never specifically made me feel sick. I have always had more trouble with large amounts of veggies (salicylates?), than I have with wheat. My comfort food used to be an english muffin with peanut butter, or a bowl of cereal... So, given that I wasn't as gluten-free as I thought I was, I'm rationalizing that starting (again) gluten-free in a month or two isn't much different than continuing it now. Also, since the tissue transglutaminase level was normal, and I saw someone post (can't find it) that other things can raise the IgA level, well, you can see where I'm going with that. Silly rationalization, or legitimate "what the heck - after all this, what's the difference with a couple more months of gluten, considering I don't feel any different off of it than I did on...?" --Rob
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