Jump to content

srokie

Advanced Members
 View Profile  See their activity

  • Posts

    38

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by srokie

  1. srokie
    Ok here's the info Dr. Saviano gave me about soy in September of 2006. I told you I would tell you the SECOND I got my hands on it and I kept my word. Open Original Shared Link Here are some notes I wrote the day she talked to me about soy: Soy = 06 gene Liver takes gliadin and treats it like wheat. T-cells drop like a rock. Prolamine with a fraction...
  2. srokie
    No I haven't read your posts and no I'm not going to; this is just FYI because you may recall I'd give you info the second I got my hands on it and I keep my word. Someone said gluten is only dangerous if ingested... Here is a doctor saying it is dangerous if it is inhaled. I am making no comparisons to anything I have previously said so don't go yelling...
  3. srokie
    You know what, forget you guys. Use all the flour you want. Obviously nothing I say is good enough for any of you. I met a few people on here who I will keep in contact with, but as for the rest of you, you obviously could care less about getting help unless some MD supershot tells you all the info. This is my last post, thanks for shutting me down again...
  4. srokie
    I was told by that celiac friend of mine that it was Charmin and Bounty, and when I asked for clarification, she said it's anything made by Kimberly-Clark. She is extremely sensitive and wouldn't tell me something like that unless she was having a reaction to it.
  5. srokie
    It is too true, and I wouldn't have posted it if I weren't sure. I know you are all skeptical, but I'm trying to help you. Why would a newsletter that and EXTREMELY sensitive celiac I know gets completely make up their info? This girl was feeling bad for a couple of months until she discovered the Kimberly-Clark fact, and hasn't had a problem since....
  6. srokie
    I don't know if this topic has been addressed or not yet, since it's not "new research" (and it's not from Dr. Saviano, haha) - I got this information from a celiac at my college, who got it from a celiac newsletter or magazine.. or something... Anyway, any toilet paper and paper towels made by Kimberly-Clark are dusted with flour to make them more absorbent...
  7. srokie
    Just an update - My mom has a roommate who is a doctor, and he demanded answers about this soy issue. Dr. Saviano gave me info to give to him, and after asking him where it is in his room and ransacking it, I can't find it. He gets back from his winter break on the 20th... I will share the info when I get my hands on it.
  8. srokie
    That made me crack up Amen!
  9. srokie
    This is really sweet; many thanks to all of you. I didn't start posting when I was diagnosed because I was just too sick. I barely had the energy / willpower to get through each day with the difficult new diet on top of everything else. Now that I'm feeling better I have the energy after work to see who else is out there suffering with me. I am extremely...
  10. srokie
    Thank you Deb - can't wait to read these when I'm off work!
  11. srokie
    I absolutely agree! Unless it says (from corn) after it, I refuse to eat it. Labels are not reliable. Planters dusts their nuts with wheat to keep them from being oily, and they just pay a fine not to put it on the label. They've been given a time limit but I see no help in sight. ... Stupid honey roasted peanuts I used to eat like every DAY!!
  12. srokie
    There's a girl at my college with celiac... and I'm almost positive she sees Dr. Rudert because the name sounds extremely familiar. And this girl has never talked about soy being a problem. Soo basically we're down to 3 options: 1) my doctor misunderstood my question and the soy thing only applies to a specific gene of celiac (i think mine is 0305...
  13. srokie
    Yeah, I'm sorry I made that so unclear. I didn't mean to convey the message that all celiacs can have butter... I just meant that soy and casein both have prolamines I know a celiac who can't have casein or whey, so she's out of options as far as dairy.
  14. srokie
    I am also forwarding these on to Dr. Saviano. The last time I asked her questions it took a good month for a response, just to give you a head's up.
  15. srokie
    Thanks for the recommendation!
  16. srokie
    Was that really necessary? She clearly said she was doing some internet research on her own... and if people didn't express their opinions on this site, we wouldn't be able to help each other. If she thinks soy is hurting her, and another person thinks it is helping him/her, that is an important contrast to consider, don't you think?
  17. srokie
    Before I asked her the specific question about soy, my understanding was that it was only the specific GENE of celiac that she and I have (she cannot have soy either). Perhaps she misunderstood my question somehow, and that original thought was correct. I am emailing her now.
  18. srokie
    I ramble all the time... feel free to go on My mom has a roommate who is a doctor, and he never believed the soy part of my diagnosis. I don't think Dr. Saviano has written any articles, but I will check on that.
  19. srokie
    I hope so too. I was really looking forward to soymilk because even if it's gross, it's still milk... I tried rice milk (can't steam that to make lattes) and almond milk (really watery). Unfortunately I think it is true. Once again I will post info the second I get it.
  20. srokie
    I agree whole-heartedly. My dad never smoked in his life and died at 59 of a lung disease. My grandfather (other side) drank alcohol and smoked heavily from his teens on, and died at 88. And I've heard of alcoholics having perfectly clean livers. So who the heck knows....
  21. srokie
    I appreciate your comment and will forward it to Dr. Saviano. As you can imagine, she's really sick of being questioned, but I'd like to see what she says to this. And were you referring to me? My name is Ashley
  22. srokie
    Yes, and by no means am I saying that my doctor is the all-knowing being who could never be wrong. But don't you guys think that - in the event she is right - I would be quite negligent as a fellow celiac not to share information that could make you all feel better?
  23. srokie
    All of you make very valid points and I obviously look like the stupid one since I don't have the documentation, but like I said, on January 2nd I specifically asked her if what she said about soy applied to ALL celiacs and she said yes, this is new research that most people don't know. Also, like I said, the second her incompetent receptionist replies to...
  24. srokie
    You're right, but I am sure she was talking about casein. Thanks though
  25. srokie
    Absolutely not... well, depending on the milk... but I was told butter is mostly the fat component of milk and not the casein component.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.