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Diane110952

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About Diane110952

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  1. Diane110952

    Test results

    It looks like you were tested with the old anti-gliadin antibodies, which unfortunately are not good tests for Celiac Disease. These old tests show that at some point gliadin has gotten into your system and an antibody has formed against it. It may be a sign that you had "leaky gut". These kinds of antibodies can come and go and overall are not very helpful in establishing a diagnosis. But there are some other blood tests that still might be useful: the tissue transglutaminase (tTG-IgA) and the newer gliadin test: deamidated gliadin peptide antibodies (DGP IgA and DGP IgG). Some doctors will proceed with a biopsy if you have symptoms and negative celiac blood tests, because even in Celiac Disease blood tests are negative about 10% of the time. There are some screening checklists here: http://www.glutenfreeindy.com/screening-checklists.html If you have all the right tests and they are negative, you could still have non-celiac gluten sensitivity or other types of food sensitivity. At that point you could do an elimination diet to determine what is causing symptoms.
  2. Hi, This is to let you know that there is a new free publication on the Gluten Intolerance Group website, entitled "Could Gluten Be Causing Your Health Problems?". It contains a list of symptoms and conditions that support screening for Celiac Disease. This would be a good two-sided handout to use in any situation where you would like to encourage Celiac Disease testing. In our local support group we provide these for people who are newly diagnosed to give to family members. It could also be used at health fairs or talks - any event where you would like to give out a list of celiac disease symptoms. And it would be great if someone could hand this to their doctor to help with getting tested! Although there are hundreds of possible celiac disease symptoms, this handout contains the ones that are listed in the current medical guidelines - with the idea that it will be convincing to people who are able to go to the guidelines for verification. Links to the medical guidelines are provided in the references. This is a direct link to the handout: http://tinyurl.com/y495zzw It can also be found by going to the Gluten Intolerance Group website at http://gluten.net, then Resources, then Educational Materials. It is on that page under "Getting Started" Diane Hosek
  3. Some well-publicized research several years ago concluded that the lowest risk of developing celiac disease is when gluten is introduced between 4 and 6 months. However, near the end of Dr. Fasano's recent paper in Scientific American, he writes about new research that has so far shown that delaying the introduction of gluten until after 12 months of age resulted in a fourfold decrease in the likelihood of developing celiac disease! This is important information to get out to parents who are making this decision now. You can read more in Scientific American, here: http://tinyurl.com/mwcqn2 And also the study is described on clinicaltrials.gov: http://tinyurl.com/l9xfjl This new research has the advantage of being a prospective, double-blind study
  4. Try Lori Petrie at St. Vincent. Her office phone number is 338-2114 Our local support group - in case you're not aware of it - is GlutenfreeIndy. Our website is: http://glutenfreeindy.com Diane
  5. Diane110952

    Doctor In Fort Wayne?

    Can anyone recommend a doctor in Fort Wayne, Indiana? I'm asking on behalf of a support group member whose sister lives near there. The sister's doctor doesn't want to test her for celiac disease, in spite of symptoms and 2 other confirmed cases in her family. Why? Because he says the medicine for celiac disease is so expensive! Obviously she needs some else! Thanks
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