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faith

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  1. faith

    ARCHIVED Swollen Kidneys

    Hi, Sorry to here your feeling bad. I don't know if this will be any help but I suffer from kidney stones all of the time. My Urologist explained to me that because I have Celiac disease my body does not absorb fat like a normal body would, anyways celiacs get acid stones, I was just hospitalized last week again because I had stones in each kidney and they...
  2. Thanks for info, yea I was thinking the exact thing everything I like in gluten-free foods has the soy leciten, so I wondered how do people eat??? So I will definately try the soybean oil, and the soy lecetin and see how I react to it. Thanks again, and God Bless all of you also ; Faith
  3. Hi, I guess I have some questions after reading all this. I just got out of the hospital I was in for 10 days. I've been gluten-free since Jan.04, anyways I started getting really sick vomiting, diareaha, my DH got the worst its ever been my soars got so bad and massive my face and neck swelled 3 times its regular size, when I got to the E.R. everyone was...
  4. The Dr. in Indiana said that she had a rear type of lymphoma that is not something you see alot of, but she also had alot of other things that were going on while she was at the hospital in Indiana , she had gallstones, kindney stones, she starting getting very yellow, (from the problem with the bile), also her endoscopy in Indiana showed no villi and a tremendous...
  5. I guess we all seem to have our own ideas about the best way to get dx. and the best way to stay healthy, and its a wonderful forum to get alot of information, and learn how everyone deals with this disease. I guess I'm just one of the people that are on the over pertective side. Yes these tests can be expensive but an endoscopy once a year to check everything...
  6. I also have DH and have celiac, I was dx threw a biopsy. I have my own thought to this. I believe, that ANYONE, who has celiac should have a biopsy of thier sm. intestine also. But my thinking on this is alot of us have had Celiac for sometime before we get to the point of where we think of celiac being the cause. For example, I struggled with migraines for...
  7. I also was very sick with my last pregnacy, which was 4 years ago, it also started about 6-8 weeks into the pregnacy, I got terrible migraine headaches, diareha, vomitted all the time, I had to be fed threw a nasogastric tube, and had to be in the hospital until my 7 month, then I felt a little better, oh yea I also started having siezures which I never had...
  8. I also had the folds when I had my endoscopy, and hematomas, and my villi were completly flattened and there was alot of inflamation. That was my first endoscopy when I was biopsied for celiac, which came back positive. After I was on the diet for qite a few months he done another one to see if it looked better, and he said it was like night and day, it...
  9. faith

    ARCHIVED Weight Loss

    Hi, I lost 72 pounds in 3 months, thats when I got diagnosed, after the diet I continued loosing weight for about a good 3 months just because it took that long for my system to get back to normal. Now I'm at a pretty steady weight. You need to look at the diet were on, its really a very healthy one, so of course were going to weigh less than we did when...
  10. I know exactly what you mean, about people staring at you like they don't want to get next to you, they might catch it. When I first got DH I always covered as much skin as possible then came summer, I finally came to the conclusion that this is me and I have a terrible disease, which is enough to worry about, I'm not about to go on worrying about what people...
  11. faith

    ARCHIVED Frustrated

    I was dx in Jan. 04 with celiac disease, I started gluten-free diet and started feeling 100% better, I also have DH which comes and goes. But in June I was admitted into the hospital for kidney stones in both kidneys, and had them reforming for 2 months. Now just little ones. But the CT has shown alot of swelling in the mesenteric area, which they put me...
  12. lily 80: I was diagnosised with celiac disease 4 months ago I also have DH, it took me almost a year to get diagnosised, after I lost 72 pounds within 4 months!! Was very sick DH rash kept getting worse, finally the ER Doc called a GI Specialist told about the rash and fast weight loss, vomitimg, diareaha/constipation, tired all the time, and increased liver...
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