Flyttfag3l

Hi Scott, You're so kind to follow up! My biopsy was negative which was a relief. I was diagnosed with a very small hernia (which I honestly think is a result of my pregnancy), and eosinophilic esophagitis. My GI feels it’s NCGS and I agree. Even 48h off of gluten changed my body and mood. I stopped eating gluten on 7/6 and my digestion just snapped i...

Hi all, I have my endoscopy on Wednesday morning (been waiting MONTHS). I’m excited to finally be off my gluten challenge. My symptoms were awful at first, but my body seemed to adapt a bit, however I’m still dealing with brain fog, joint pain, inflammation, migraines, neuropathy, etc.. the last few weeks my fatigue has been debilitating (especially yes...

You bring up a good point about the biopsy. My rheumatologist and I initially decided to keep me on it because it has helped some of the severity of my Sjogren’s symptoms, and a sudden change might be just too much for me right now… but he gave me the go ahead to stop altogether or skip weeks. Something to think about I guess. your symptoms sou...

I had totally the same logic and he said that research shows that the drugs to treat many AI diseases are “more targeted” although I have heard of similar immunosuppressive therapies used to treat refractory celiac disease. either way I had pizza for dinner. 50/50 tomorrow is a rough day at work!

Fascinating! I asked my rheumatologist if taking my immunosuppressant drugs that I take for sjogrens would calm down autoimmune activity everywhere and he said “not likely”.

Hi Trents! thanks for your thoughtful reply. You are correct that I have not had a full panel despite what I asked for. Instead, my Dr. Scheduled the endoscopy. I plan to do the genetic testing on my own before the scope appointment. I will also continue to eat gluten despite the exhaustion, fog, reflux, acne, etc (can’t wait to be done)! Anyone e...

Hi All, In February of this year, I was negative on recent blood tests for Celiac (TTG IGA antibody negative and normal IGA). I have primary Sjögren’s syndrome and my mom is a seronegative celiac. My iron levels have been slightly low, but I am also regularly supplementing With a super B complex, D and Iron. I asked for the testing due to starting me...