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rosiemackymom

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Everything posted by rosiemackymom

  1. rosiemackymom
    I'm half or so irish, not the same families though (I'm McDonald, Dowling, and Inch) I have lived in Ireland though, and my experience was this: while they do eat boiled seasoned meat and cabbage, fairly often, its not a specific St Patricks thing. St Patricks is a religious holiday. You go to Mass. And, its during Lent. So the giant partying is an...
  2. rosiemackymom
    I had heard that about tTG and other auto-immune conditions before, but since my son also has celiac (or well, unless he has a negative biopsy) it seems likely to be celiac. I have type 2 diabetes, but it is not auto-immune and does not generate tTg. Honestly out of all of those options, I hope its celiac causing my elevated tTg! I think 504s are useful...
  3. rosiemackymom
    yes, I am having a biopsy I presume. I'm meeting with the GI April 1st (and am on the cancellation list for sooner) I plan to go gluten-free even if they say I don't have celiac, both because I have sympotms and to support my son. Thats why i want it. But its been so frustrating, to be delayed and delayed. Hopefully he is well enough tomorrow....
  4. rosiemackymom
    Yeah, I plan to go gluten-free even if my biopsy says I don't have celiac (yet). I figure this is the last time in my life I'm on gluten, thats why I want to do the biopsy now.
  5. rosiemackymom
    I guess the thing is, its all very short term, no matter what he and I are both going gluten-free as soon as all the testing is over. I just feel bad prolonging his issues during the whatever it will be, 3+ weeks after his biopsy before I can get the rest of my testing done. I don't really care about school hot-lunch, because as you say, its uh... not very...
  6. rosiemackymom
    Oh fadge, lovely, yes, yummy Irish food. I think that you could sub egg replacer or flax mucilage or probably just soy milk. The potato helps them hold together.
  7. rosiemackymom
    the thing is, I agree with you, but I want him to have as "legitmate" a dx as possible for school and so I can tell him if/when he is a rebellious teen later that we have "proof". For me, though... I would consider just going off it if they can't see me sooner. So you think the gluten would still be in my breastmilk say, 12 hours after I ate it? I have tried...
  8. rosiemackymom
    alas I've already begged and I am on their wait list to see any available GI doc in their clinic (have to go to them, stupid HMO insurance)
  9. rosiemackymom
    I've written about this a little bit here before, but its gotten even more complex, adding me into the equation too. so two years ago my son had a health crisis during which he had a celiac panel which was inconclusive due to low IgA, so they did a genetic panel and he has a celiac gene (I can't remember which, need to get a copy of that lab) and they told...
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