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MarathonGirl

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  1. The other thing you should try doing is weight-bearing exercise. I started walking and then running years before I got my celiac diagnosis. I started exercising because I was so frustrated with being sick all the time, and thought the exercise couldn't hurt. When I finally got the Celiac Disease diagnosis about 9 years later, I was happy to find out that at least I did NOT have either osteopenia or osteoporosis. The vitamin D I got by running outside combined with the weight-bearing exercise kept my bones strong, even though my gut was a disaster. Plus exercising makes me feel that I am more in control. The 9 years I was sick and misdiagnosed, and told that since I was still complaining I wasn't better it must be because I needed psychiatric help, the running kept me sane. I ran the Chicago Marathon before the diagnosis, and the Boston Marathon this spring. In December I plan to run the San Antonio and the Honolulu marathons. (See my posting about American Airlines "no-gluten-free business decision for overseas flights". ) Good luck with your biopsy. Drink some good beer while you still can pre-biopsy! I really miss good beer now that I am gluten-free. Redbridge is better than nothing, but I miss good beer.
  2. I am travelling first class from the midwest to Hawaii on December 11, to run the Honolulu Marathon, on December 13. It is now July. I am travelling to Europe later this month, also on American Airlines. American Airlines provides gluten-free meals on overseas flights to Europe. (Thank goodness). When I travel to Hawaii I will be changing planes in LA. American Airlines has flights from LA to Europe, on which they provide gluten-free meals. However, according to Karen Paluch and Customer Service rep Jan at American Airlines in Dallas, American Airlines has made a "business decision" to NOT provide a gluten-free meal on the overseas flight to Hawaii, EVEN THOUGH THEY PROVIDE THOSE MEALS TO OTHER OVERSEAS FLIGHTS ORIGINATING FROM THAT SAME AIRPORT (LAX). I said that I have a documented disability, and that I don't understand why American chooses not to accomodate it, particularly at an airport where the disability relief I need is being supplied to some overseas flights already. American said IT WAS A BUSINESS DECISION. When Jan and Karen told me this, I suggested to them that business decisions that result in a lot of negative customer feedback are business decisions that can be changed. There are 5 months until I fly from LAX to Honolulu. Doesn't it make sense to you, my fellow celiac, that an airlines that supplies some overseas flights originating at LAX with gluten-free meals would, with appropriate prior notice (5 months), also supply my overseas flight with a gluten-free meal for me? What does FIRST CLASS mean, after all? Evidently it does NOT mean first-class service! Let's give American Airlines some negative feedback so they reconsider this BUSINESS DECISION! Marathongirl.
  3. I am happy to hear the dinner show at the Excalibur will make a gluten-free meal. I think I will make reservations for it. We are staying at a MARRIOTT residence Inn so I can make my own breakfast, and lunch too, but I do want to go out in the evening too. My problem is getting to Las Vegas. The airlines have all discontinued special meals, and the last time I flew coast to coast, TSA in San Francisco ignored my doctor's note and confiscated my food. So it was a long, hungry flight. Has any one had better luck with airlines? I am flying American Airlines to Las Vegas, and they aren't even able to tell me what is available as a snack or to purchase on any of my flights. Flying TO Vegas I can at lese get up early and make a breakfast at home before I leave. But flying Back I will have to hope that either TSA doesn't confiscate my food again, or that AA has something I can eat on board.
  4. I saw Sicko on July 5. I cried during the part about France. If I had the type of support the Frenchwomen described when my children were little and I was desperately ill without knowing the cause, it would have made such a difference in my life! It really made me realize how unsupportive the USA is of families and children despite the rhetoric. What the movie says about the profit motive in health care creating an incentive to unjustly deny care is absolutely true. I worked for Blue Cross Blue Shield for two years. I was appalled to hear management proudly discussing their techniques for getting their claims denial rates up. They were actually proud of this, not ashamed! They also had different nurse case managers depending on who was calling. If the caller was a corporate bigwig who was involved in choosing the health insurance provider for the next cycle, their calls went to nurses who were instructed to approve claims. If it was an unimportant normal worker who was calling about a precertification or an existing claim, their call was routed to the OTHER case managers, who were instructed to deny claims wenever possible. This was so the executives in the companies insured by Blue Cross would have a positive experience with claims and ignore or discount any complaints their employees might make. They never realized their claims experience was different from that of their employees. When I left Blue Cross I was offered 1 months salary if I agreed to sign a document to never divulge any of this. I refused to sign, did not take the money, and that is why I feel free to tell the truth about them. I think Michael Moore is right, that we need Universal Health Care. It is not perfect. But our current system is awful. There is a massive infrastructure to support our adversarial claims system. We waste so much energy and money on claims tracking systems, billing clerks, case review nurses, and expensive computers to support it all. That money could much better be used in helping patients and furthering medical research.
  5. I am hosting a foreign exchange student this academic year. She is a German girl who also has Celiac Disease. Since I have Celiac I know all about the special diet, and will not have a problem cooking for her. This girl is coming through Youth For Understanding. I have hosted with them before, so I know they are a good organization. She will come in August and will attend high school with my son, and return to Germany next June. The YFU coordinator just emailed me with information about Thomas, a Celiac boy from Switzerland who is also looking for a host family. If you have been thinking about hosting a foreign exchange student, and if you have a stable, loving family and a high school that allows foreign exchange students, then you might consider hosting as well. The host family is not paid, and must pass a criminal record and background check. It is really a rewarding experience. you learn a lot about the foreign country the student is from. Also you gain a friend for life. I was a foreign exchange student in high school, and I still remember my host family fondly. If you are interested, please send an email to the YFU coordinator. She is Pat Peterson. Her email is peterson@yfu.org. The students will begin arriving in August, so don't delay! If you want more information about it, post here and I will try to answer questions.
  6. I was just diagnosed this February. Since I love to eat foods with texture to them I have been experimenting with all sorts of baking. I don't like most gluten-free breads, as I find them to be too sweet and without enough texture. Recently I have been experimenting by adding one to two cups of cooked Quinoa to the gluten-free bread recipes that I have found. It improves them a lot. I also leave out all sweetener but 1 T of honey. Once I get the recipe perfected I will post it on this forum. Right now it still isn't rising as much as I would like. I may have to add more yeast or perhaps some baking powder. I just made the recipe in the July 2007 Gourmet magazine for corn-meal cookies. Instead of the 2/3 cup of wheat flour in the recipe I substituted 1 1/4 c Bob's Red Mill all-purpose gluten-free flour. I used more of the gluten-free flour to roll them out, and they came out great. Here is my new and improved version of the Gourmet Magazine recipe: Margaret's Corn-Meal Butter Cookies 1/4 cup yellow corn meal 1 1/4 cup Bob's Red Mill All-purpose gluten-free flour 1/2 c powdered sugar 1 stick (1/4 pound) salted butter 2 egg yolks 1 tsp vanilla 1 tsp lemon zest more gluten-free flour as needed for rolling granulated sugar as needed for topping In a mixing bowl, mix the butter until it is soft. Then add the corn meal. Add the egg yolks. With the mixer whirring add the vanilla, the lemon zest, and the gluten-free flour. The dough should be a little sticky, but not so much that it sticks to your fingers. If it is, add more gluten-free flour. Put a generous amount (about 1/4 cup) of gluten-free flour on the clean counter and gently spread the dough out using the flat of your hand and fingertips until it is 1/3 inch thick. Use a small round biscuit cutter to cut out circular disks. As you cut them out place them of a very well buttered cookie sheet. Once they are all on the sheet sprinkle the tops with granulated sugar. Bake in a 360 degree oven for 12 - 14 minutes. They should be a nice yellow color when they are done. Lift them gently onto a cooling rack to cool. These are a delicious tender shortbread cookie. The corn meal in them gives them a nice crunchy texture. Let me know what you think of my modified recipe!
  7. It is nice to hear from you all. Thanks for the responses. Since I first began this topic, I have kept up my training. It is WONDERFUL to be able to run a long distance without the many pit stops! In fact, I don't know how I could even stand it before! The St. Louis marathon is this coming Sunday, and I am really psyched up. I hope the weather improves In any case, I have been enjoying the Bobs Red Mill gluten-free hot cereal, and the Mesa Sunrise flax, corn, and amaranth cold cereal for breakfast. I have been having sardines on rice crackers for lunch, with raw cashews, and other unsalted nuts. Nuts are really satisfying. I like to bring a bag of dried fruit with me so if I get really hungry I can snack on something gluten-free. For dinner I have made a lot of potato and rice dishes with whatever fish, meat, or chicken I am making for the rest of the family. I invested in a rice steamer which makes it really easy to throw brown rice and water in, start it up, and leave for half an hour while it all cooks perfectly. I always make extra so I can do a stir-fry with it later. It has been nice to have Passover, since there are some really excellent Kosher macaroons in the store. I have been nibbling on those when I get really hungry. For the Easter gathering at my family, we made meringue cookies; delicious and I could eat them. I also made a quinoa casserole ( I just made up the recipe) and it was so good even the non-celiacs in the family asked for the recipe. I may post it in the recipe forum. I have also noticed that now that I have been gluten-free for a month, an old hamstring injury that has bothered me since I ran the Chicago marathon in October seems to finally be healing. I think it is because my nutrition is better, and I am absorbing the nutrients better.
  8. I am currently training for my fourth marathon. I ran the Chicago Marathon in Oct 2005 and 2006, and the Lewis & Clark Marathon in Sep 2006, where I finished second in my age group. I also just got the diagnosis of Celiac Disease. I am so happy to finally find out why I have been making an average of 8 pit stops a day! I have been having a lot of trouble with dehydration on my long runs when I had to make so many pit stops. Also, I had a lot of trouble with chafing and chapping. Are there others out there who have trained for and run in marathons post-diagnosis of Celiac? Is Gatorade gluten-free? What about gels? My next marathon is the St. Louis marathon in April, so I have to get busy and educate myself fast! Also, does anyone have any advice about "leakage" and bleeding during long training runs? I am hoping that now that my gastroenterologist put me on antibiotics for the small bowel infection and that I am living gluten- free that the symptoms will subside. My diagnosis has been a long time in coming; about 5 years since the symptoms first began. How long does it take for symptoms to subside? I am looking for advice from those who have "been there and done that".
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