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Alison

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Alison

  1. Alison
    Have you or has someone you know been diagnosed with celiac disease? Do you or does someone you know have gluten intolerance? Are you looking for possible answers to your health problems? Would you like to find out more about the gluten...
  2. Alison
    The brand-new Gluten Intolerance Resource Group of Marin (Marin County, California) will have its first meeting TUESDAY JUNE 2, 2009 7:00pm - 8:30pm Location: 5 Bon Air Road, C-116, Larkspur, CA, 94939 Sheila Wagner, PT, CN and...
  3. Alison
    My mom had polymyalgia rheumatica, an inflammatory muscle disorder (different than fibromyalgia). She tested negative for celiac, but went gluten-free with me the day I got my celiac diagnosis. She no longer has any pain from polymyalgia like she did before and no longer takes any medication for it, unless she has gluten -- then the symptoms come back!
  4. Alison
    Don't give up on mixes! They are a huge time-saver and there are many that are really good. I am a huge fan of Pamela's mixes. They are versatile, with lots of different recipes on the package and they always come out great-tasting (in my experience). I also think 1-2-3 Gluten-Free is excellent. 'Cause You're Special makes good ones A small company in...
  5. Alison
    That's pretty much it, unless they want to check her vitamin levels for deficiency due to celiac disease. Vitamin levels should normalize on a gluten-free diet anyway, so be careful about any supplements if she is already taking, especially iron. You probably won't get much help or advice from your doctor about living gluten-free but there are lots of resources...
  6. Alison
    The problem with just giving a child a piece of bread to see what happens is that it can take days, months, even years for symptoms of gluten intolerance or celiac to manifest. During that time, there could be damage happening that are not obvious gastrointestinal problems like vomiting or diarrhea. It could be subtle behavioral or neurological problems....
  7. Alison
    Both my daughters have been gluten-free since the womb -- they are now almost 5 and 3. We are a gluten-free household and I agree with many people that have said already that the inconvenience of having a child gluten-free outweighs the risks associated with giving him gluten. I strongly believe that I am preventing possible health problems that have been...
  8. Alison
    Hi - If you live in or near San Francisco and would like to help educate dieticians about celiac disease, they are looking for young people to be on a panel of speakers. They want to hear your frustrations and successes associated with having celiac disease. They will probably ask questions and then all the people will give their answers. It is on April...
  9. Alison
    Hello everyone! I wrote a while ago (look back a few posts) while I was pregnant. I thought it was time to give an update. 3 1/2 months ago I gave birth to a perfect, beautiful girl! She weighed 7 lbs 2 oz and arrived only 4 hours past her due date. For those of you who are worried about the nutrition of the baby or your own nutrition, remember that...
  10. Alison
    Yes, high liver enzymes are related to celiac disease -- this has been confirmed to me by doctors who know about celiac. Mine were high, as were several celiacs that I have talked to. The numbers fell into the normal range once going gluten-free.
  11. Alison
    I had asthma my entire life and was on steroids for years before my diagnosis. Before I went on the steroids, I woke up every night because I couldn't breathe. I would also get asthma while exercising (but not always). After being gluten-free for about 3 months, I decided to take myself completely off the steroids. I had never had a reaction strong enough...
  12. Alison

    ARCHIVED Genetics

    Alison replied to LisaRN's topic in Related Issues & Disorders

    I was diagnosed with celiac disease. My parents have since been gene tested and each possesses a gene that predisposes someone to gluten intolerance (mom has DQ2 and dad has DQ8). They are both gluten-free and feel much better for it -- they are clearly gluten sensitive. I got gene tested also and ended up with both DQ2 and DQ8. According to the geneticist...
  13. Alison
    I was severely anemic for 10 years (at least) before being diagnosed with celiac disease. I had tried iron pills but when your intestines are damaged you cannot absorb iron. After going gluten-free, my iron levels were back up to normal within 3-6 months!! My doctor couldn't believe it. I certainly felt the difference too -- more energy, more color in...
  14. Alison
    Hi everyone, haven't posted in a while, but I'm in the book too! (just tooting my own horn! ) I have been reading the book non-stop since I got it and am so amazed by everyone's stories. I am tempted to get a copy for each of my doctors and send it to them -- especially the gastroentreologist from my story! Congrats to everyone for sharing their stories...
  15. Alison
    I was diagnosed with celiac disease a year and a half ago. I was severely anemic at the time and had horrible digestive problems (and a bunch of other problems that I won't go into here). I am now 5 months pregnant with my first child and am so grateful that I was on the gluten-free diet before getting pregnant. I have had a wonderful pregnancy with NO...
  16. Alison
    Not all Aidell's are gluten-free. Be careful of the ones with soy sauce in them.
  17. Alison
    Shula, Everything you have mentioned has been linked to celiac disease and/or gluten sensitivity.
  18. Alison

    ARCHIVED Vitiligo

    Alison replied to Alison's topic in Related Issues & Disorders

    Here is a link to a site that has some good pictures showing vitiligo. Open Original Shared Link
  19. Alison

    ARCHIVED Vitiligo

    Alison posted a topic in Related Issues & Disorders

    I am curious how many people out there have Vitiligo? I have read that there is a connection between celiac disease and Vitiligo. Here is a definition for those that do not know what it is: Vitiligo is a skin condition resulting from loss of pigment which produces white patches. Any part of the body may be affected. Usually both sides of the body are affected...
  20. Alison
    I have been gluten-free for a year too! Coveowner, Regarding the gluten-containing flour, I wouldn't touch it let alone bake with it!! I do think you probably breathe it in and since even the tiniest bit of gluten can affect you... Steven and Sarah, If I have a tiny bit of gluten, I get a rash under the skin on the back of my right knee only. Weird...
  21. Alison
    The book "Dangerous Grains" by James Braly M.D. and Ron Hoggan M.A. is EXCELLENT!
  22. Alison
    Hi everyone. I celebrated a year gluten-free on December 27! I feel so amazing and am still noticing changes in my health. I had a lot of stuff going on before and never realized they were all connected, nor that they were even symptoms at all. Here are some of the things that I DON'T have anymore after being gluten-free: -- asthma (I was on medication...
  23. Alison
    Has anyone experienced really long menstrual cycles? I was on the pill for many years and then was diagnosed with celiac. I went gluten free and then a few months later went off the pill. I didn't have my period for a few months and had to take progesterone to get it started. Now I get it only about every 37 days (sometimes longer, sometimes shorter) and...
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