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margie

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About margie

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  1. I find myself educating my child's pediatric dentist about Celiac. She has been great once getting hip to our reality. DS has had loads of work, poor babe. However, the permanent teeth are coming in strong and hard. Like I said, the dentist gets it now. I remember the day she told me she'd only seen such enamel issues like my son's in children adopted from China. I have friends who adopted from China and they dealt with the teeth issue, too. Still, I admit, after hearing this I went home, found a private place, and sobbed. But his permanent teeth seem to be developing well as of two days ago when we went in for a check up. Sealants next month on the incoming molars just to be on the safe side. I would suggest not putting up with any dentist who denies the fact that our kids have soft teeth due to their autoimmune disease. Educate them, let them know that pediatric dentists are often the first to point out to parents that they might test their kids for celiac when they find these issues. I've only read this myself, but once the dentists I speak with do their research they seem very interested. I admit it would be cool to have health practitioners whom we dont have to educate, but until that day...
  2. The teacher has been great in cooperating with us and is very concerned. She has him wash hands frequently w/ soap I provided, has the tables wiped down w/ wipes I provided, only uses gluten-free playdough I continuously seem to be making and I've meticulously scrubbed every play dough accesory. She actually is trying to create a gluten free classroom. I actually fell apart and cried in front of the principal after a pta meeting this week. He was generous w/ the hugs and we are meeting to walk the school grounds and discuss things further on Friday. I plan on requesting a SST meeting to address this and I will come equipped w/ doctor's notes, more info on celiac and the school nurse from the school I work at (the school nurse at his school is out on maternity leave until March and the district won't provide a sub!) This morning I am taking my son to the doctor. Yesterday he came home from school w/ diarrhea caked all the way to his ankles. It happened in the afternoon and he didn't tell the teacher. The diarrhea has become extremely watery. When he goes to the bathroom he leans over and we have to hold his hand and rub his back and sooth him. In this position the splattering is quite messy and I must clean the toilet afterwards. I feel so bad for him, but thus far he is handling it extremely well. Over the past few years of having a kid w/ celiac there have been moments I've felt the stress or been somewhat sad or frustrated about the challenge this creates in his life, but he's become so well adjusted to it that it didn't seem like that big of a deal. Now, for the first time, I feel like I am struggling w/ the emotions of a parent who has a kid with a disability. That is not a term I ever felt the need to use before. Here I go getting all teary again. Time to put on the happy mommy face and go get the boy ready for the doctor's appointment.
  3. Yeah, that's all being addressed. However, maybe I should go through art supplies a bit more closely. Which are the danger brands? I still am prone to blame the yard where hundreds of kids everyday are eating their snacks and treats that consist of crackers or muffins or cookies. It's loads of gluten crumbs everywhere. I teach at another school that has a much bigger yard and kids don't customarily get fed snack on the yard in mass like at his school. I notice the difference in the quantity of gluten on the ground. Am I crazy to be zeroing in on this as the culprit?
  4. My son started kinder and has had diarrhea ever since. Actually, it started to clear up when we took him for a 4 day weekend, but then once back at school his stools started getting progressively looser and we're now at the critical point again where I want to give him another long weekend just to give his little body a chance to heal. He absolutely loves school so it's not emotional. There have been no changes anywhere else in his life that I can track. It's been too long to say maybe he has some stomach bug. He is not a cheater and really tries hard to do self-care and to advocate for himself. The teacher and cafeteria staff are working w/ us extensively to keep cross-contamination from those areas, and I've done all the classroom stuff one is supposed to do. Heck, I'm the most participatory mom at the school I've seen. This week we've even decided to shampoo the classroom rugs! I have celiac and he's been diagnosed since two, so it's not like we're new to the lifestyle. I haven't kept him in a bubble; he went to a family daycare w/o problems, has always gone to parks and classes and all the regular kid things w/o problems. I never considered him super sensitive and on the occasions he did get gluten to varying degrees he always has healed up rather quickly. I am at a total loss on what to do next. Or maybe I just am feeling overwhelmed about what the next step entails. This an urban school. That means a smaller yard space with many, many children using it. The schoolyard gets totally contaminated with smooshed crackers and cookies. I've noticed this after morning snack and recess on the yard, after lunch and lunch recess, and although he is not in the after-school program, I see them eating their glutenous snacks on the yard as well. Could this be the issue? So much gluten floating around that it gets all over the little critters and can't be contained? Is it realistic to ask the principal and teachers to keep all gluten food off the schoolyard? What are our legal rights concerning such requests? Has anyone else had this experience? Any ideas? I'm calling the doctor again today to give the dismal update, but other than signing a legal health form for the school, I don't know how much more they can do. I guess run some new tests to see if there is some new intolerance, but the fact that he seems to get better when given a break from school makes me doubt this as a possibility. I'd really like to hear any feedback. My son loves his new school and so do we, but I can't allow him to continue on getting sicker and sicker. He's been an amazing little trooper through all this. I just want him to be able to go to school and be healthy as well as happy. Oh yeah, we are in San Francisco.
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