mm&j

By the way, what does GERD stand for? I am assuming Gastro-something... I had absolutely no Gastro symptoms by the time I was diagnosed. My intestines were as smooth as glass by then. mm&j

God Bless you, I feel your discouragement. It is probably true that you are super sensitive to even the most minute amounts of gluten or perhaps have refractory sprue or unresponsive Celiac. There are forms of medication that people are put on to help with these conditions and promote healing. I think they start with prednisone, but I am not sure. I am just...

That's funny, I was just headed up for a nap before I read your post and it is only 9:45am! It does get better and everyone is different depending on many factors, especially how long you may have been suffering with the disease before being diagnosed and how much damage to your entire body has been done. Before I was diagnosed, I litterally slept round the...

I was looking up another medication and I saw that Calciferol drops by Schwartz was listed on the gluten suspected list. I was horrified. My pharmacy told me that they looked up all of my medications and they were all gluten-free. I have been taking these drops for Vitamin D for 2 years, ever since my Celiac diagnosis. Does anyone have any information that...

Nancym- thanks for the information. I actually had googled and found that kiskas.org and signed up. I also just had a big piece of steak and salad for lunch and am going to limit starches even more than I have. It can't hurt I'm sure until I am actually being diagnosed. mamaw-I am in Wexford. I am Celiac-diagnosed in 2007. My thyroid is fine, no fibromyalga...

I need some help. I have been gluten-free for over a year. My severe bone pain and fatigue is not subsiding. It is torture to get through the day. My husband wants me to get my 'Joy" back. I can't even comprehend what joy is anymore I am in so much pain and depression. I am suspecting that there are other autoimmune diseases in play along with the Celiac...

I was reading over posts and haven't been on lately. I have been gluten-free for over a year and my joint, bone pain and fatique haven't gotten any better. I went to a new Dr. and he is going to "research" my complicated case. He seems like he thinks another autoimmune disease my be in play alo and I agree. Could anyone give me anymore information on AS or...

Can I add that I am so depressed and feel so hopeless that I am in tears every day?

I just wrote another post about being extremely discouraged and then I saw yours and wanted to say that yes from the beginning, extreme fatique and sleepiness have been some of my biggest issues. I feel like I have been drugged or perhaps had 5 margaritas and then am trying to function. It lasts long after I injest some gluten. I really don't know what to...

It is Sept. 9th. I know I got some gluten, (very little) at the middle to end of July so that is over 6 weeks ago and I am still experiencing numerous symptoms. There seem to be a string of things that happen to me. I'll try to put it briefly...first intestinal problems, then the skin rash on elbows and behind knees, followed by extreme fatique, almost like...

Thanks Elaine for your response. I just logged on after a few days and noticed yours and other replies to some of my questions. I appreciate the information and insight on the heart beat/palpatations and blood pressure. I will check with my doctor as I have an appointment tomorrow. Thanks again. mm&j (Susie)

I forgot to add that I always get those blisters in my mouth and throat, too.