cwj-tlj

Totally gluten. It will get better the longer you are gluten free. The first 2 years if I got glutened I was literally suicidal crying in the bed. Now I am just relly down and lethargic for 2-3 days. Thank God! However when I am in it it feels like am going to be there forever.

My symptoms were exactly like that. I become bascily Bipolar and have been treated for this while I started into recovery but have since gotten so much betterI am now only on lexapro which I am considering going off of. Now when glutened I defenitely have symptoms of insomnia cured with 1/4 Ambien. I also have depression mixed with mania.

Ok , here's the deal as I understand it...I got much better for the first month, then I got much worse even on the diet. A sort of hypersensitivity sets in whereas any minute amopunt of gluten will cause a severe reaction. My guess is you are still getting glutened. Do like everyone suggests and check everything. Things I ate the first month that didn't cause...

Just back from Mayo...Forget going there for help unless you have the classic celiac genes. I am having severe reactions with each accidental glutening. Neuro symptoms worsening with also now BiPolar symptoms . Anyone know about this? Thanks Bx neg after gluten-free 8 mo Blood neg after GF8 mo enterolab + caseine and gluten DQ3/DQ3

Because I went gluten-free before blood tests and biopsies and don't have the right Gene for celiac I can't seem to find anyone to help me because I'm not classic celiac. Does anyone know any experts on this that will take me seriously . I'll go anywhere!!! except Mayo tried this already.

I am gluten intolerant my blood and bx's were neg but done after gluten free for 8 mo. enterolab + My 12 y old gliadin antibody IGG positive 31 range >17 pos tissue transglutaminase IGA neg gliadin antibody IGG positive 31 range >17 pos gliadin antibody IGA neg...

Beware somewhat long: Diagnosed with gluten intolerance by enterolab 5/07: gluten free the day I sent off the test. Had the best month I can remember. Sx's: recurrent bouts of DEBILITATING fatigue with herpetic mouth ulcer worsened over 2 years came to a major crash after eating Kashi bars(whole wheat,barley,rye ) 2-6 per day I loved those things...

Check out new drug called Provigil....Helps alot with daytime sleepiness. I couldn't function without it when I'm glutened. Thanks

Not necessarily so. Check out the drug spironolactone (if you are a woman). Also great ,but very expensive hair treatment by Jan Marini with spironolactone in it. Hope this helps

3 days. I new immediately gluten was my problem before I even got any tests back. After a week I was on a pink cloud. Have had problems figuring it all out and I think I got supersensitized after going off, so I am being super diligent now after a few really bad episodes. Can't wait til the real me comes back. If you are like me, going gluten free is not...

Thanks for all of the suggestions. I guess "discipline" comes to mind and "even a molecule will get ya!" Got to get better at going to the store more often so I'm not at risk. My life is totally unmanageable with gluten. In fact it's close to wrecking my life at this point. I would just love to get a few weeks under my belt so I can remember how great...

I was diagnosed 3 months ago. At first I felt better than I have in years. Then it seemed I couldn't stay unglutened. I have been sick once a week for 4 weeks. I have had MRI of the head to apease my DH and boss. 3 days ago I ordered a Sonic salad minus the cheese and opened it up only to find a fried onion ring. Normally ,I would have thrown it away however...

I know this may sound strange but the alternatives didn't sound good and I am feeling better than I have been for years. It's fun to be getting older and feeling better. of course it cast lots of money and after finally finding the right doc to put it all together. I was having severe mental changes like suicidal thoughts, guilt, etc. Seriously I felt...