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glutenfreek

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I spent the first three years of my daughters life searching for answers to her constant declining health - I was frustrated by doctors who thought I was crazy, and walked out of more doctors offices than I care to count. You see, not even ten years ago doctor's didn't think very many people had celiac and that it wasn't genetic and so the fact that my daughter exhibited classic signs + the fact that her paternal aunt was diagnosed with Celiac was of ZERO interest to them...But it was very interesting to the University of Utah, who at the time, was doing research on the disease. By the grace of God we were all tested and it was that research which helped prove Celiac was indeed genetic. The study has been passed on to numerous medical institutes, most recently UCLA and currently City of Hope. Its hard to believe that they ever thought it wasn't genetic! Thanks to all the research we now know we are a whole clan of celiacs. Both my husband + myself + both our children + numerous family members on both sides. I have been instrumental in our little community in directing numerous people in search of answers regarding being diagnosed and living with a diagnosis. The most rewarding, a little neighbor girl who I was babysitting at the time.

I would rather go hungry than purposefully place gluten in my mouth. Honestly, the side effects are a lot more tolerable!

  1. Ok, I have to laugh b/c my PMS is gone too! No more cramps, bye bye heavy irregular periods! My migraines are gone too! Isn't it awsome! This alone is enough encouragement to keep me gluten-free the rest of my life! My sister experienced the same thing too. And can you believe before I went gluten-free I had a doctor write me prescription to help my...
  2. I can't speak for myself but for my better half - my husband was diagnosed ADHD as child and I can say most assuredly that he suffered with bouts of depression and bi-polar although he was never formally diagnosed. He went 100% gluten-free in 2004 and it was the best thing that ever happened!!! I tell people all the time that I got a new husband - same...
  3. Thank you for this information, it has been very helpful! I had completely forgotten about making this post and found myself back here three years later! Can you believe it? My daughters KP flared up this past week and I've been on the search once again! I think we are going to try a Sea Buckthorn regimen; soap, shampoo, lotion and possibly an oral supplement...
  4. Add one more person with celiac and bites their tongue...literally. I have wondered about OCD, never been diagnosed, but that doesn't mean much. Like others have mentioned I remember doing this as a child, my grandmother did it and so does my father. I have tried to stop numerous times, hence why I am on this site right now, seeing if anybody has ever been...
  5. I have to admit I am rather perplexed, my moons went away after I went gluten-free, before I had huge moons on all my nails, and was told they should only be on my thumbs, that it was toxins being released from my body. I take mega doses of B12 for appetite control and my moons have never come back. My seven year old daughter, diagnosed with celiac at...
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