rebz

Oh this is so very interesting........ thanks for posting this information I am waiting for an appointment to see my GI to discuss my biospy results. I know that my biopsy showed only raised intraepithelial lymphocytes. My endomysium is negative, but I have a slighlty raised tTG, total IgA and anti-gliadin. I have been thinking that my biospy...

thank you for your replies. I shall wait and see what the GI says before making any decision on a gluten-free diet. I am reluctant to start without a definite diagnosis of celiac and these results are not convincing to me, though maybe others would think they are ?

Here are my blood results. total IgA - 4.38 g/L (0.8-2.8 normal range) Endomysium IgA - negative IgA gliadin - 35U/mL (15-30U/ml equivocal range) IgG gliadin - 13 U.mL (15-30U/ml equivocal range) IgA t-Transglutaminase 22 U/ml (normal range 0-15U/ml) Biopsy results only showed ' subjective patchy increase in intraepithelial lymphocytes' I am...

Thank you for your knowledgable replies. You are correct that they look only for villous atrophy, not for lymphocytosis. I think they usually do 4 biopsies at this centre, is it worth asking them to take more ? From what you are saying even if the biopsy is negative, and hence they won't diagnose celiac, it would be worth seeing if I have dietary response...

Hello I have just come across a scientific paper written by my GI doc, looking at the positive predictive value of the tTG IgA test ie if you have a positive test what is the chance of you having celiac disease. The centre looked at 2000 patients with GI symptoms ,then how many of those with positive tTG results actually celiac disease. The answer is between...

sorry - got confused myself. I am scheculed for a gastroscopy and a colonoscopy at the same time. My fear is that I managed the gastroscopy without sedation but that was quick - 5-10mins maybe. The colonoscopy info stuff says it can take 30mins. Not sure if I can remain calm while people prod me for that long. anyone got experience of colonoscopy...

Hello I have a gastroscopy and endoscopy scheduled for next week. I have had a gastroscopy before without sedation and that was fine. My friend who has had an endoscopy advised sedation. I don't know which I find the most scary - to be sedated or to have the procedures while fully awake. You experiences, good and bad, would be appreciated. thanks Rebecca

thanks for the replies I guess I am hoping for a negative biopsy and clutching at anything that might indicate that the other results were non-specific or false positives. I guess its a matter of not feeling ill and thinking of the foods I'll have to find alteratives too. I have a child with a severe nut allergy and that seemed a struggle at the...

Hi I'm confused - positive blood results except endomysium IgA which is negative. Have read loads of stuff about 'positive predictive value' etc and seems to be conflict between positive IgA tTG and negative IgA endomysium. Any ideas what this means. Gluten sensitive or not ? Thank you Rebz

Thanks for your reply. I am still confused about the negative endomysium result. Does the fact that this is negative suggest that the positive results could be 'non-specific' or 'false' positives ?

Hello I have had blood tests done and they have come back with some increased and some not. I am confused particulary about the negative endomysium test as I thought that was supposed to be the most specific for celiac and the fact that the increased ones don't appear very much outside the normal range. My doc suggested that I have a 10% chance of having...