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AnnaNZ

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Everything posted by AnnaNZ

  1. AnnaNZ
    I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
  2. AnnaNZ
    Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one...
  3. AnnaNZ
    Hello. Do you mind saying what symptoms led the doctors to test for bacteria in your blood?
  4. AnnaNZ
    Hi MJ I wonder if you will read this 3 years on... did your burping ever cease? Did you figure it out?
  5. AnnaNZ
    Hi 'ConfusedCelic'. I was very interested to read your post and the letter from Prof. Federico Biagi you linked to. Blown away actually! I am DQ7.5. I tested sero-negative for Celiac 10 days AFTER giving up gluten (August 2023) when I knew very little about this topic. I now know a whole lot. I am not game to do a gluten challenge. My body is still ...
  6. AnnaNZ
    Trents and ceebee1807, which of your liver enzymes were elevated? Did they stay elevated long-term or did they fluctuate?
  7. AnnaNZ
    Hello there. I think the restoration of hair colour is due to the replenishment of vitamins/minerals rather than just giving up gluten. Perhaps you need to get those levels checked? (from another-but-older green eyed mama 🙂
  8. AnnaNZ
    I started greying in my 40s, gave up gluten in September 2023 aged 59, have taken courses of Vitamin D, B complex and zinc and my completely grey hair has started to regenerate dark brown. Real visible proof of malabsorption.
  9. AnnaNZ
    Hi guys. Sorry I fell off the radar for a while. It has been a bit of a crazy time. I will give you an update. I am not even sure I can remember everything that has happened... (I am keeping a comprehensive diary though.) I am now taking a multivitamin, 1000 IU Vitamin D 4 times per day, Histagest-DAO in the morning with a probiotic pill. (All prescribed...
  10. AnnaNZ
    Hmmm, I would not have thought that breakfast was healthy...
  11. AnnaNZ
    Thanks Knitty Kitty. One issue I have is no diagnosis so it's hard to know how far I go down this path until I get one. I saw my GP on Thursday and we have agreed to proceed with the gluten challenge. I was hoping to get rid of my pain before that happened. The throat tightening has made me nervous about doing a gluten challenge too. I have taken 1 x...
  12. AnnaNZ
    Fats vs carbs - the pain usually starts late morning - I guess that relates to breakfast? I have some kind of rice-based bread for breakfast. lemon and ginger tea. The GP and GE seem to be happy with my gallbladder. (Burping is much reduced, no more heartburn.)
  13. AnnaNZ
    Hi. My joint pain is negligible now which is good. I usually start with under the rib pain late morning. And sometimes I have abdominal cramps in front. Sometimes gurgling noises in my throat and sometimes feeling like it is tight in my oesophagus.
  14. AnnaNZ
    Hi Trent. What I mean is, is that part of the healing after giving up gluten? As opposed to one of the foods I am currently eating giving me further trouble.
  15. AnnaNZ
    Wow! That is a long sad story (with a happier ending). It is great that you are on this forum to inspire people on! Did you get a biopsy in the end or had you had enough of the medical system? Would it be safe for me to assume that if my lower intestine is fine and I have no bloating, then the pain is to be expected rather than due to a particular...
  16. AnnaNZ
    Thanks a lot for the advice!! Funnily enough I happened to drink ginger ale for the first time in decades 3 nights ago! What I haven't been able to figure out it, is the pain to be expected no matter what I eat, just a fact of a damaged gut that needs to get better or is the pain because of what I am eating that particular day. Most mornings there is...
  17. AnnaNZ
    OK thanks Russ.
  18. AnnaNZ
    That is really interesting Wheatwacked! Thank you. I am off to bed now but I will look into this further tomorrow.
  19. AnnaNZ
    It looks like you and I have the same genetic variant but here in NZ they only seem to list the troublesome (?) markers. Mine was given to me as: DQA1*05 and DQB1*03:01 (DQA1*05) = DEMONSTRATED Relative risk for coeliac disease: HLA-DQA1*05 (Very Low) Your doctor was incorrect saying there is no way you have coeliac disease. The chance...
  20. AnnaNZ
    Thanks for your response Wheatwacked. I haven't had thiamine or choline tested but Vitamin D has been tested. 25 Hydroxy Vitamin D Results: 57 nmol/L Range: 50 - 150 Results: Reference range:<25 Moderate to severe vitamin D deficiency 25 - 50 Mild deficiency 50 - 150 Optimal target range for bone health Here in NZ we are still...
  21. AnnaNZ
    Did your doctor share with you your actual genetic results?
  22. AnnaNZ
    Oh the AIP diet is harsh! I thought I was doing it tough now. I think I need a restriction holiday for a few days (not the gluten though).
  23. AnnaNZ
    Hi Trent. Thanks for your response. Yes I have certainly considered NCGS. There seem to be differing opinions on the net as to how far NCGS goes. I haven't heard of the AIP before. I can look at that. I have kept an extensive food diary and every time I think I have nailed it, I am proved wrong. Which makes me start to wonder, will it hurt...
  24. AnnaNZ
    Hi all. I have just signed up (from New Zealand). I have been reading posts on this forum many times over the last 3 months and it has been very helpful and interesting. Thank you so much for this. This is my story. One day in mid-August this year, I UNUSUALLY ate a lot of white bread. That evening I developed a pain under my right rib. In the days...
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