kaylee

Did the doctor specifically say there was damage to the villi on your son's biopsy? "Evidence of a food allergy" isn't quite as clear ... You have been seeing such good results on the gluten-free diet that that is already a strong indication that being gluten free is a good plan. There are tables available that show the probability of having celiac disease...

No, I would never dream of saying "no birthday cake for you" - that's exactly the point! On monday there was a birthday party and my son had his little (gluten-free) green frog cupcake like everone else. The thing I'm thinking about is more about the transition from my controlling the diet altogether to his taking over and really "getting" it. As Nini...

Hi Nini, how old is your daughter? I'm interested to know how the learning process went about staying away from gluten things. I have been explaining to my 2 1/2 year old basically from the start (as of 18 months) that certain things make him feel sick but others don't. He seemed to understand from a very early age as he just about never asked for anything...

Hi again, thanks for your input, I appreciate it. Here's the weird thing: it turned out he had virtually no reaction. I am still scratching my head as it is the first time ever this has happened. He has reacted to gluten like clockwork always, up until Friday. He had the worst reaction he's ever had about 10 days ago, which is precisely why...

Oh, I hadn't seen your latest message. I can relate to that too! It must feel good!! Keep up the great work! Kaylee

Hi, Sitting here reading these posts is bringing my own experience with my son (now 2 1/2, and gluten-free for over a year now - wow, time flies!) back with a vengeance. I felt so alone at the time (no help from the pediatrician, unfortunately), and can remember so vividly those feelings of being beside myself with worry, knowing something was very wrong...

Hi and thanks for your replies- I'm going to send my mother the links you provided. Also thanks Kaiti for the heads-up about the other thread. Lots of people are obviously dealing with symptom issues not to mention doctor issues. The two are clearly linked. Having a doctor who is uninformed can make it very hard for the patient to feel committed to...

Hi, I just had a call from the daycare. Apparently my son has just eaten an entire mini croissant. I am trying to evacuate my feelings of anxiety before I go to pick him up. The reactionm should start in 1-3 hours from now. He hasn't eaten anything of the sort since he started the gluten-free diet over a year ago. Last time he had a gluten accident...

Hi all, after a period of refusing to get tested because she "knew" she didn't have celiac disease, my mother has just been diagnosed. Her doctor has made the suggestion to her that since she has no symptoms (only osteoporosis, hypothyroidism, arthritis, chronic allergies and sinusitis, balance problems and chronic fatigue), she doesn't have to go gluten...

Hi, my son has incredibly severe reactions to even the smallest traces of gluten and he has never had a reaction to any of the flours we buy regularly in Asian shops. Lucky you to have found potato starch there, I still haven't found a reasonably priced one (I don't have a clue why potato starch is so expensive - just because of low demand? Is there...

Hi Andrew, figuring out exactly what to eat so you feel your best AND have enjoyment is not necessarily and easy thing to do! Apart from the other suggestions, I'll just mention that dairy products in general appear frequently to be not well tolerated by people with celiac disease, especially in the early stages of the new gluten-free diet when the...

taweavmo3 - crying and clinging, not being able to go out ... that is exactly what we went through! Also, in terms of gluten accidents, I think that the longer my son is gluten free the worse his reactions to even the smallest amounts of gluten are getting. He reacts to a trace amount in the same way he used to react to a full serving (e.g. we had a...

Hi, you are definitely not alone! The relation between acting out (mainly screaming) and physical state has been clearcut since my son was about 6 months old. He's now 2 1/2 and has been on the diet for just over a year. Jekyll and Hyde was exactly how I described his different sides to the gastroenterologist on our first visit. I am still amazed by...

Wow! All this input is great! I had never heard of the fever/pain link, but it would certainly fit my son's situation. Thanks for the info. Aili - have you tried taking your daughter off dairy? With the extra details, her situation actually sounds quite different in several ways from my son's, but for what it's worth, we only saw a complete improvement...

Hi, are you referring to stomach/intestinal pain? If so, although I have not had it myself, ever really, my young son has severe pain with ingestion of even trace amounts of gluten. The first time he ever put two words together was following a gluten accident, when he said "tummy hurt." Needless to say, that broke my heart. He literally writhes in...