GFinMN
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Actually I saw the Celiac specialist doctor at the Mayo Clinic and he said those with extreme celiac sensitivity such as those with the double gene are suseptible to even airborne gluten. I have the double gene unfortunately and get sick from even minute amounts of gluten that many others can tolerate. Just FYI.
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ARCHIVED Very Interesting Article On Celiac From 7/24/08 - Journal Gastroenterology
GFinMN posted a topic in Publications & Publicity
Intestinal Gluten Receptor Is Gateway for Celiac Disease Finding could offer new treatments for other autoimmune disorders, study says Posted July 24, 2008 Here is the link. Not sure if the link will work or not by pasting it in here but I'll try anyway. Open Original Shared Link -
ARCHIVED Is There Gluten In Latex Paint? Please Help!
GFinMN posted a topic in Related Issues & Disorders
I have been remodeling my house and have painted some of the bedrooms off and on, and each time I paint a room I get DH as though I had been glutened. Does anyone know if there is some kind of wheat/gluten binder in latex paint? I was told by Mayo Clinic that I have the Double DQ8 gene, so I am suseptible to even "airborne gluten" due to be extremely... -
ARCHIVED Genetic Testing - Double Dq8 - Anyone Else Have The Double?
GFinMN replied to GFinMN's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
yeah, i seemed to be A LOT sicker than any of the other celiacs i know. mine came on very suddenly. within one week i had tingling in hands and feet, pins and needles over entire body, unable to swallow food, major nausea. this was pre-diagnosis. first they thought i had MS or some neurological disorder, then ruled all that stuff out and finally found... -
just got my genetic test results back from the mayo clinic. double DQ8. the doc thinks that is causing me to be an extremely sensitive celiac, more than most. does anyone else have the double? does it really make a difference? i'm new to this genetic stuff and don't totally understand it. thanks.
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hi, when i cut those things out of my diet, it cleared up pretty fast. i think there was a residual where it would sometimes still itch for maybe 1-2 weeks, but then it was completely gone. of course, there are always places where malic/tartaric acid sneaks in though. i had a bad outbreak for a long time and couldn't figure it out - finally i learned...
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ARCHIVED Centrum New Formula
GFinMN posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Does anyone know if the Centrum New Formula is gluten-free? It lists Modified Food Starch on the ingredient label whereas the old Centrum did not. Thanks! -
I have eczema caused by apples and grapes. It's the malic acid in the apples and the tartaric acid in the grapes. These acids are also found in many sweetened candies and some jellies if you read the ingredients list. I've had this since I was very young. The allergist explained that I'm missing an enzyme to digest these two acids so it comes out my skin...
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ARCHIVED Hormel Natural Choice
GFinMN replied to a topic in Gluten-Free Foods, Products, Shopping & Medications
I would not touch the Hormel Natural Choice again. I am one of the most sensitive celiacs and get DH when exposed to gluten, so my body knows there is gluten in something even when my stomach feels okay. Every time I eat Hormel Natural Choice I get DH. So I have sworn off it. I was eating their bacon which said gluten free and also their lunch meat... -
thanks for all this info on what happens at the mayo. my doc said they may be referring me there next month but i wasn't sure what to expect. i live in shoreview, mn. seems to be lots of celiacs in our area i have been gluten-free since april 1 but continuing to have other issues that the doctors cannot figure out - hypoglycemia type symptoms, bouts...
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cookie22 - thanks for the reminder of other's going through things much more difficult than we are. it's so easy to fall into a pitty party - i know that 1st hand. it's easy to get discouraged and frustrated. when i do i think of this little girl here in minneapolis that had a terrible accident a few weeks ago. i saw it on the local news. she was at...
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was anyone else told by their gastro doctor that their intestine was "scalloped" when they saw it with the camera during the endoscopy procedure? does that mean you have a worse case of celiac than most or does that happen with everyone who has celiac? what exactly does scalloped mean when referring to your intestine? thanks!
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ARCHIVED How Long Between Eating Gluten And Getting Dh ?
GFinMN replied to GFinMN's topic in Dermatitis Herpetiformis
thanks so much for the replies. i was thinking mine was more like april's where it seems to show up within 48 hours (i get it on my elbows too), but that is very interesting about the months later thing and how unpredictable DH is. i know i got glutened at the dentist about 3-4 weeks ago too. yeesh - this is tough figuring it out! thanks again! -
ARCHIVED How Long Between Eating Gluten And Getting Dh ?
GFinMN posted a topic in Dermatitis Herpetiformis
can anyone tell me how long it takes between accidentally eating gluten and the DH rash showing up? i am trying to trace back my foods and figure out what is glutening me. i saw a dermotologist and she said it could be 2 weeks or more between eating the food and the DH rash. however, it seems sooner than that for me. i'm really not sure. is it different...