PattiD2

We have pizza brought into our company once a month. Last month, we ordered pizza from Uno's so I and a co-worker could get our gluten free pizza. Unfortunately, they delivered the gluten free pizza in the same bag as the regular pizzas. I wrote them an email letting them know that it should be handled separately. The regional manager sent me a very nice...

I'm not on this board very often, any more but I happened to see this thread so I thought I would add my input. My 15 year old DD has been diagnosed with celiac disease and eosinophilic esophagitus (EE). Eosinophils are white blood cells that are normally used to fight parasites. In this case, the body mistakenly reacts this way to certain foods causing...

I felt the same way about the Bob's Red Mill Gluten free oatmeal until I figured out that it requires longer to cook, than the Quaker Old Fashioned oatmeal. If I cook it between 10-15 minutes, it turns out pretty close to regular oatmeal. Give it a try, it can't hurt. Patti

I'm sorry that you had such a stressful time over the holidays. My family, especially my mom, has been so good about fixing gluten-free food for my 14 year old DD. She made a separate pan of hashbrown potatoes, after calling me to find out which brand to buy. My sister bought a brand of ham that I had checked to make sure it was gluten-free. I try...

Culver's has been very accommodating about gluten-free and allergy related requests. My daughter loves a chocolate shake but it has to be made with the chocolate culver's custard, not the chocolate syrup. We ask for a clean scoop and to have them clean the shake machine. Most often they will actually turn and show you as they are doing the cleaning. ...

I'm sorry to hear about your experience. It sounds like you had tried to be proactive but the school didn't follow through. Do you have a 504 plan? We are getting one set up for my 14 year old daughter, so we have a legal plan to back us up, when necessary. Unfortunately, the medical records people for our doctor, are refusing to release her medical records...

I'm sorry that I mentioned it but I do appreciate the other advice. Obviously, I am not going to get a new husband over this. We are both trying to figure this out, we just have different approaches. I think in some ways we help balance each other out.

I agree that we need a new GI, but as is often the case, not always easy. My DH is a pediatrician and coworker, of this GI. Although he is trying to keep an open mind, he tends to see things from the conventional medicine point of view. For instance, he was very relieved when they diagnosed IBS, because it is not a serious disease. I was appalled that...

We are in the process of applying for a 504 for accommodations at school. They hired a school psychologist at her middle school, instead of a second counselor, who has been very helpful and willing to adjust things for her. We are beginning to talk about home instruction, further assessments and pre-tests along with compacting her curriculum. The teachers...

I appreciate your insight. She has constant pain in her lower abdomen below her belly button, with occasional sharp pains on the side of her stomach, ranging from a low of 3-5, to a high of 7-8. Most days, her pain is constantly there. It has even started waking her up over the last couple of weeks. She has been gluten free for almost five months....

My 14 year old DD, has had a terrible couple of weeks where she has been in constant pain. The pain gets worse after she eats, so it is a challenge to find food she will try and she is losing weight. Our Pediatric GI person has now diagnosed her with IBS, in addition to the celiac and EE. She had a colonscopy and blood tests, in August, after 3 months of...

My daughter had original positive blood test that came back down to normal after 10 weeks on gluten-free diet. Moderate but not complete response to gluten-free diet. Lymphocytes on first biopsy, clear on follow up biopsy at 10 weeks gluten-free. Doctor has discussed gluten challenge some day in the future. I'm not convinced that we could go through...

My heart goes out to you! There is nothing worse than seeing your child in pain, but knowing that you can't fix it for them. Hopefully, you will get a quick diagnosis and resolution of her problems. The gluten-free diet is tough in the beginning, but it does get easier as you do it. There is also a growing awareness of celiac disease and gluten free...

She has been tested for everything that you mentioned. She is seeing a very good rheumotologist who has been evaluating her other autoimmune symptoms. They were concerned about the elevated ANA but it came down shortly after she started gluten-free and has stayed down. Thankfully, she has tested negative to Lupus, RA, crohns, etc. She saw an ophthalmologist...

Our GI doctor was trained at Cincinnati so she is very familiar with EE. She did have biopsies taken for EGE and they came back without eos. Slides from her first endoscopy were sent to Cinicinnati for a second opinion. They agreed with the EE diagnosis but suggested further celiac testing because they didn't think it was EGE. She is on zantac, zyrtec...