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Jelly bean

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Posts posted by Jelly bean

  1. Hi there, 

     

    This is my first post here.

    Please be gentle, it’s been a wild ride for me.  
    I’ve been struggling with stomach issues and I finally found out I had celiacs disease June 24th,2024. They started  off an endoscopy which came back with a lot of information. Not only do I have disease. I also have inflammation of the esophagus, stomach inflammation, small intestine inflammation along with stomach sphincter pain issues , too many white blood cells on my small intestine and old inflammation in my stomach and esophagus .I was given omeprazole for 90days to help with all of that. 
     

    They wanted a rule out  celiac disease at first, so they did a blood test after my endoscopy and found out that I did have celiac disease. At first, it was really hard and I couldn’t stop crying , then I got excited to try all different kinds of gluten-free options and I found out that not everything goes well with an upset body that still needs healing before you try everything. Now I’m struggling with people not just people family ,friends that don’t understand celiac disease and think it’s just simple and don’t understand cross-contamination and how serious it can be, sitting crying  unable to sleep,  can some of you give me advice? Is there a book I can read? help me through this hard time please. I can’t stop crying. I’m tired. I’m ready to look in a positive direction. They don’t have support groups in my area and I honestly just want a friend sometimes I wish I had celiac friends. That would understand and I can hang out with them, because they understand me ,but that’s not an option because I’m the only celiac friend out there in the bunch of friends I  have. One of my friends thinks I’m just being a baby, another doesn’t want me to bring food … My husbands family is doing the same! They think it’s rude. I’m bringing my own food.
     

    I’M so lost for words at this point and I’d like to connect with people here. Thank you for reading and I pray for you all on here too , I wish we all were dealt with a different hand ….. This is hard and it’s only the beginning.

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